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Young and new to morphea

morphea morphoea newbie help advice

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2 replies to this topic

#1 Emilythejester

Emilythejester

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Posted 25 June 2016 - 11:45 AM

Hi I'm 17 and I was recently diagnosed with morphea. So far I obviously have a mark on skin and I'm also experiencing fatigue, joint pain and eye strain.

I'm just wondering what tips anyone has on working through it and what I have to expect.

Thanks !

#2 Joelf

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Posted 25 June 2016 - 08:24 PM

Hi Emily,

Welcome to these forums and I'm sorry to hear that you've recently been diagnosed with morphea.

UVA1 phototherapy is now the recommended first line treatment for morphea and I've included a link to our medical page to give you some more information. We also have two threads of information about morphea and also here which have been written by Amanda who has first hand experience of several types of morphea and one of her excellent videos is included on in the first link I gave you.

Now that you've found our forums, please do keep posting and ask as many questions as you wish; we have a wealth of information and support amongst our members.

Kind regards,

Jo Frowde
ISN Assistant Webmaster

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ISN Sclero Forums Manager
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#3 Shelley Ensz

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Posted 30 June 2016 - 03:52 PM

Hi Emily,

 

Welcome to Sclero Forums!  I'm hoping you've found a good doctor to treat your morphea, and that things are going well for you. Please keep in touch with us.

 

:hug-group:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.





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