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SCLERO Skype Chats!

skype chats

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#1 Joelf

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Posted 06 July 2016 - 12:18 AM

Hi All,

Just to let you all know about the exciting group Skype Chat with Shelley and myself on Tuesday, July 12th.

It will take place at the following times:

UK time: 8pm - 9pm
US Eastern time: 3pm - 4pm
US Central time: 10am - 11pm
US Mountain time: 1pm - 2pm
US Pacific time: 2pm - 3pm
Australia time: 11am - 12am
New Zealand time: 8am - 9am.

The chat will be for an hour and the topic will be Fatigue; it's impact and coping strategies. Please be prepared to talk about how fatigue affects you and any tips for coping with the problem which you can pass onto other members.

For anyone who's worried or would like any more information about any aspect of the chat, please PM me. As explained previously, it will be necessary to let me have your Skype contact details via PM and you will have to be online at the chat times, to enable me to call you. Please be assured that we do take your online security very seriously and it would be possible for you to participate without using the video camera if you would prefer that.

I'm looking forward to meeting those of you who would like to join us. :happy:

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#2 Shelley Ensz

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Posted 04 August 2016 - 03:53 PM

Thanks, Jo, for hosting our many Skype chats!  It is a delightful way to meet Sclero Forums members, and to provide support and patient education for scleroderma and related illnesses.

 

Sclero Forums members who have over ten posts approved to Sclero Forums (which basically is meant to prove that you have read and are following our forum guidelines, and that you are likely not a salesperson or scammer), are welcome to join us. Simply send a PM to Jo to let her know you are interested, and she will check the schedule for possible openings.  We limit each chat to just a few people, and occasionally we can accommodate different time zones (as Jo is in the UK).

 

:hug-group:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Shelley Ensz

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Posted 16 September 2016 - 12:10 PM

Just a reminder to all that we have regular Skype chats for people who are interested in scleroderma, pulmonary hypertension, and related illnesses. You don't need to be diagnosed to attend the chats, however be aware that we are not doctors and we cannot, and will not even try to, diagnose you. That's just not our role. However, we can refer you to our many resources for getting a diagnosis, as well as our lists of scleroderma experts.

 

Our Skype chats also follow all the same rules as Sclero Forums.  To make sure people are aware of the guidelines and in the groove before Skyping, we request that forums members have 10 messages that are approved and posted before joining us in the chats.

 

To put your name on a waiting list for upcoming chats, which are generally held at 11:30 AM Pacific Time lately, just send a PM (private message) to Jo; her member name is Joelf. Jo hosts nearly all the chats, and I try to attend as many as I can.  Jo will then let you know when the next opening is, and what the topic for the chat will be.

 

We look forward to Skyping with you soon!

 

:hug-group:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#4 Shelley Ensz

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Posted 22 November 2016 - 10:46 AM

This is just to let our new members know that we still have regular Skype chat sessions available. We keep the groups small so they are personalized. We are not doctors and do not provide individual medical advice.

 

So this is a general reminder that it's not the spot to ask, "Do I have scleroderma?" Please save that for your scleroderma expert, as it is very hard to diagnose and the process typically takes a very long time (usually about 3 to 6 years). 

 

The sessions are guided by topics and well-moderated. We have a few openings in the future, so sign up by sending a PM to Jo to let her know when you are available and your time zone. She will get back to you in mid-December.

 

:hug-group:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.





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