I am new to the forum, and to my diagnosis as well. I was diagnosed with diffuse systematic scleroderma. I was diagnosed while I was 7 months pregnant with my 2 month old baby. I had symptoms before the diagnosis, but they were so different that they were treating me for isolated things like heartburn, a believed skin rash, and for a supposed carpal tunnel. When I became pregnant my skin manifestation spread rapidly, I began with swallowing problems, and the joints in my hands became more stiff and contracted. My knees also suffered greatly in range of motion and in pain. It has been difficult after my baby was born. I weighed 137 pounds prebaby now post baby I weigh only 113 pounds. I lost weight during the whole pregnancy. My delivery was very hard and complicated.
Now I face the fact that my body is so different from how I had it. I feel a little sad. I have always been a very independent person, and having to ask for help for simple things I took for granted before frustrates me. I will get used to it. I do have a few questions. Does joint contracture get better with treatments? Is there any exercises I can do to help? Does anyone else have a problem with weight loss or difficulty gaining weight? Thank you for your feedback. I am glad that there is a way to communicate with others going through similar situations. I have another unrelated question. How can I add my picture to my profile?