Jump to content


Biomarker for Diffuse Scleroderma skin has been discovered!


Photo

In Loving Memory of Janet "Miocean" Paulmenn

donation in memory

  • This topic is locked This topic is locked
8 replies to this topic

#1 Joelf

Joelf

    Star Ruby Member

  • Topic Starter
  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 11 October 2016 - 05:29 AM

In loving memory of Janet Paulmenn, a donation has been made by Anonymous, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter to the nonprofit International Scleroderma Network. (Also see ISN: Janet Paulmenn and Sclero Shop/Donate) Reposted 10/07/2016.

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#2 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 23 August 2016 - 07:41 AM

I'm so very sorry to hear the sad news that Janet (miocean) has passed away.

 

She was a lovely and helpful member of the Forums, always ready with advice and support to so many of our members, a gifted volunteer and many of her beautiful art works can be seen on the pages of the website.

 

Like many others, I felt she was a true friend and all my thoughts are with her family and friends at this very sad time. 


Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#3 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,275 posts
  • Location:Minnesota

Posted 23 August 2016 - 02:34 PM

Hi Jo,

 

I really miss Janet. I'm so sorry to hear this. She was a wonderful friend, faithful volunteer and loyal and ever-supportive Sclero Forums member. She was such a delight, and an amazing artist, leaving a beautiful legacy with her paintings that she donated to decorate some of our main website pages.

 

I send my sympathy to all her other friends and family. We all feel your loss and your heartache.


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#4 Buttons

Buttons

    Senior Silver Member

  • Members
  • PipPipPipPipPipPip
  • 610 posts
  • Location:UK

Posted 25 August 2016 - 10:55 AM

So sad to hear the news about miocean, she was always very supportive to everyone.

Would just like to let her family & friends know that our thoughts & prayers are with them at this time.

Buttons



#5 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 26 August 2016 - 09:15 AM

Tears! So sad to hear this news. 

Sending love to her family and friends.  :crying:


Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 Margaret

Margaret

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,001 posts
  • Location:Pennsylvania

Posted 27 August 2016 - 09:36 AM

Tears...... :crying: :crying: She was always there for me.....so supportive. I will miss her.

Thoughts to her family and friends.

Take care, Everyone.
Margaret

#7 Kathy D

Kathy D

    Silver Member

  • Members
  • PipPipPipPip
  • 242 posts
  • Location:Rocky Mountains USA

Posted 27 August 2016 - 12:16 PM

In Loving Memory for miocean

 

 

:crying:

 

  :sorry:


Diffuse Scleroderma Diagnosed March 2009

#8 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 06 September 2016 - 11:17 AM

Dear Janet was here before me, I remember reading her posts and marvelling at her struggle which she was determined to overcome. Janet never gave up and was searing honest throughout. If anyone, particularly a newbie, wants to know how to manage scleroderma successfully, they want to read her story that unfolded through her posts.

Janet was so very unique and never will the gap she has left be filled.

Miocean, thank you and rest easy, friend.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#9 greypilgrim256

greypilgrim256

    Senior Bronze Member

  • Members
  • PipPipPip
  • 74 posts
  • Location:New Jersey

Posted 09 September 2016 - 01:11 AM

R.I.P. to a fellow New Jersey-ite and scleroderma warrior.  I had a lengthy conversation with her when I first was diagnosed.