Hello, I hope everyone is doing well today -
After several months of morning thirst and some puffiness (my face and ankles), my doctor performed a 24-hour urine protein test and my results came back somewhat high - at just over 500 mg's.(anything above about 200 is considered too high). I just learned of this and really don't know where this leaves me or what my doctor is going to recommend. A recap of my situation: scleroderma symptoms for about 15 years but no diagnosis of scleroderma. All antibody tests are always negative and I have no skin involvement. I have Raynauds, esophagus dysmotility, reflux, heart arrhythmias, and other "stuff." On the outside, I look perfectly healthy. All my damage seems to be completely internal. My disease has always been in extreme "stealth" mode!
I have done a lot of research on the internet and see where chronic kidney involvement (including protein in the urine) and slowly declining kidney function in scleroderma is common but has not received much attention over the years because the more severe acute renal crisis is mostly what is talked about and studied. Anyway, I am wondering after 15 years of disease if finally these "chronic" changes are showing up in my kidney. At any rate, can anyone else relate to these kidney symptoms - especially protein in the urine? I'd sure like to hear from you!
All my best,