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Welcome To New Member Relicmom


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#1 Sweet

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Posted 15 April 2007 - 07:25 AM

Hi Relicmom,

I saw your first post on another thread, but I want to officially welcome you to the Sclero Forums! I'm sorry you found us due to having CREST and other symptoms.

You will find a wealth of information here, support, as well as good friends.

I look forward to knowing you better!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#2 relicmom1

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Posted 15 April 2007 - 07:51 AM

Thanks!! It has been quite an adventure called Scleroderma!! I honestly don't know how I've made it this far!! I have a wonderful, very supportive family. And it was a blessing that I found this website. As much surfing and research as I've done thru this I don't know how I ever missed it. It is a wonderful site. Unfortunately I'm not alone in this battle, but it is nice to know I'm not going crazy!! People who don't know anything about this disease looks at me as if I'm a nut. For all intents and purposes, I look "normal" but I sure don't feel normal!!! And they just don't have a clue. Well, won't get long winded like before and hopefully this doesn't have as many typos as the other did!!I was really tired then. Thanks for the welcome.
Peace :)
Barbara aka relicmom1

#3 Heidi

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Posted 15 April 2007 - 11:13 AM

Hi Barbara,

I just wanted to add my welcome! I am glad you found this forums, but sorry it is because of having CREST. I am sure you will find everyone here very warm and supportive....and willing to share lots of information and advice when we can.

Warm wishes,
Heidi

#4 CarriePan

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Posted 15 April 2007 - 12:00 PM

Dear Barbara~
Welcome, welcome, welcome~
I feel the same way...I look normal but don't feel like it. I'm glad you all are out there to validate my concerns and pains. Having a good support system definitely helps! And to others.....pfffffft B)
Hugs~
Carrie
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#5 relicmom1

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Posted 15 April 2007 - 02:36 PM

Yes, the support of my family means more to me than the world. I'm a true southern girl, you know the kind that keeps a spotless home, always volunteer for whatever the kids originizations need, thankfully they are out of that phase of ther life. But I am so very fortunate to have my children still at home , son age 22 and his fiance and my 17 yr old daughter. They have seen far more than they should have to with my disease. It was the hardest thing I had to do in not keeping the perfect house and doing everything for everybody. My saying now is if it gets done great, if I thought about doing it , good and if it just didn't get done, well, it wasn't that important anyway! Two of my other sayings these days are "this too shall pass" and "it ain't nothing but a thing" The family dogs are with me 24/7. They know if it's agood day or a bad day and adjust their care of me accordingly. They have also been sent from sbove, I'm sure Today's not been a good day, with this crazy cool, windy weather. When storm front move thru, I get so stiff and so much extra pain. When I'm having this kinda day, both of the dogs follow me everywhere I go, even into the potty!!. We live in a tri level, but I moved from our bedroom on the third floor to the den on the ground floor About 4 years ago,because of the climbing the stairs allthe time. I have periperal neuropathy and have trouble walking in the dark, and with the pain and meds run, I need to go into the kitchen several times a night. I also felt bad keeping my husband up, bless his heart, he still has a job The dogs stay with me and make sure I'm ok There have been times my daughter slept down here in the den wiht me because I was feeling so bad. All of her friend call me mmomma2 and they come by from time to time That's kinda nice, but I wish they would have a similar relationship wiht their parents, but they dont and I'm the chosen one to be mom nd even now that I can't do for them like I use to, they come by to see if they can do for me, so don't think the entire teenager/youn adult group is bad. Well, enough of my soapbox for now. Remembert to enjoy this life, it's the only one you've got an the alternative isn't fun!!!
Peace :)
Barbara aka relicmom1

#6 nan

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Posted 15 April 2007 - 04:23 PM

Barbara,
Welcome to the forum! I am sorry that you have CREST. I too have CREST, Sjogren's, and Fibromyalgia. I too am blessed with an incredible support system. Keep up your positive thoughts and take care!
Nan

#7 CarriePan

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Posted 15 April 2007 - 11:46 PM

We call all these little disturbances in our lives little speed bumps! :lol:
CarriePan :fairy:

#8 janey

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Posted 16 April 2007 - 07:37 AM

Barbara,
Welcome Darlin'! Glad you found us in your surfing. You sound like you have a wonderful attitude and a great support system - both of which help us survive this thing and move past the day to day problems.

Animals are great aren't they? I think they have a better sense of how one feels than us humans. I have two cats and they always know when I need some cuddling. Actually, my hubby does too, but he can't crawl in bed with me in the middle of the day if I need him too. :D The few times I have to get up in the middle of the night due to reflux, I have one cat that is always there within seconds, in the lap, keeping me warm and helping me to calm down.

Thanks for telling us a little about yourself. It's always good to meet our new members. Again Welcome! Please join in often.

Big Hugs,
Janey Willis
ISN Support Specialist
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(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)