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Sleep Test And Respiratory Therapist Evaluation


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#1 Clementine

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Posted 15 April 2007 - 07:44 AM

I am still trying to get that new RX for oxygen. Tomorrow I have a respiratory therapist coming to my house to do a 6 minute walk on level ground, around my house with a pulse oximeter on. NO sure where we are going to walk. Anyway, just walking around my house my pulse does not drop, it's when I'm going up and down stairs or working out. Does anyone know if this is going to effect whether or not my RX oxygen is refilled? The walk is going to agree that I do not need o2...but I definitely need it as I test myself when I am working out or doing stairs.
I also have to do an at home sleep study with the pulse oximeter. Maybe this is just doctor's protocol for prescriptions.
Thanks,
Jennifer

#2 Sheryl

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Posted 15 April 2007 - 03:05 PM

Jennifer, do you always use your oxygen at night? If you do the study at home will you have to do without the oxygen for part of the night? Good luck with your sleep study. Keep us informed. Sheryl
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#3 Clementine

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Posted 15 April 2007 - 05:00 PM

Sheryl,
I have done this same study once before. It's through the oxygen provider, but my pulmonologist ordered the test because he was giving me a new prescription. The last time I slept with oxygen and the oximeter. I guess I'll find out tomorrow. I will let you know! How are you Sheryl? I have been thinking about you all day, since I read one of your emails.
Wish I were there to show you more support.
Jennifer

#4 Clementine

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Posted 15 April 2007 - 05:01 PM

Sheryl,
Sorry...I did not answer your question. Yes, I always use oxygen at night. Seems like they would still have people sleep with the o2 on at night during the study since it could be unsafe for some people.
Smiles,
Jen

#5 janey

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Posted 15 April 2007 - 05:51 PM

Jennifer,
My original prescription for nighttime oxygen was due to the results of an all night pulse oximeter reading. My pulmonologist ordered it. Then once I got my oxygen, the O2 supplier had me do it again to make sure that 2 liters was sufficient to keep my O2 high enough when I slept.

My O2 sat drops when I walk, even on a flat surface. This was determined at the doctor's office. They have a track. It really tanks (low 80's) when I do hills and steps. Originally I was given two 6 pound tanks for walking, but the PT that worked with me after getting out of the hospital was able to order a 3 pound tank. It's great! No one has mentioned anything about a new prescription for O2. As far as I know, mine is indefinite.

When I had my sleep study they did leave the O2 off for the first 3 hours, then had me finish off the night with it. Without O2 I was constantly in and out of apnea, but the O2 (and sleeping on my left side) completely stopped it. I guess they had to make a comparison.

Let us know how the walk goes. You might suggest doing some steps at least for a comparison of sorts. Good luck on your PFT Wed. I have one then also.

Big Hugs,
Janey Willis
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#6 Margaret

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Posted 16 April 2007 - 02:21 AM

<<Without O2 I was constantly in and out of apnea, but the O2 (and sleeping on my left side) completely stopped it. I guess they had to make a comparison. >>

Hi Everyone,

I am curious here. If Gareth already uses a C-Pap machine, does that mean his O2 levels are OK at night? No one has mentioned him seeing a Pul doctor yet even though the PFT showed mild restrictive lung disease. He's got to see the rheumatologist next week.....guess I should ask him. I know the C-Pap machine keeps the airway open and prevents apnea, but does it do anything for the O2 levels?

Take care, Everyone.
Margaret

#7 janey

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Posted 16 April 2007 - 03:50 AM

Margaret,
Please ask your rheumatologist this question. I would "assume" with the C-Pap that his levels are fine (but you know what assuming means :D ) With apnea your breathing stops or gets very shallow so it reduces your O2 levels of course because it cuts off your air. The C-Pap forces air which keeps you breathing, which in turns helps you to get enough O2. Of course all of this is provided that you don't have lung problems that prevent the transfer of that O2 to the blood stream, which is the case with fibrosis. When Gareth had his sleep study, I'm pretty sure they were monitoring his O2 levels so they probably would have said something. I know they monitored mine.

Hope this helps, but please still talk to your rheumatologist.

Big Hugs,
Janey Willis
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#8 Margaret

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Posted 16 April 2007 - 04:26 AM

<<When Gareth had his sleep study, I'm pretty sure they were monitoring his O2 levels so they probably would have said something. I know they monitored mine.>>

Janey ,

I know they did because his O2 levels dropped to the low 80% when sleeping. He has been using the machine for over 3 years.....way before this sclero issue started. I will ask next week. Maybe they will do another study to be sure.

Take care,
Margaret

#9 Sheryl

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Posted 16 April 2007 - 08:36 AM

Jennifer, your husband is going to be in stitches when he sees you all wired up tonight. You can have some good laughs together. I bet it is just policy that your doctor needed this test done. Maybe every so many years. My mom has been on night time oxygen for about 2 years and hasn't had to redo any tests. In fact she never even took a sleep apnea test. Her pulmonary doctor just prescribed her to be on 2 percent oxygen. Her levels drop while she is doing the hall walks. My oxygen doesn't change when I walk. I wish they did one with stairs. I would be gasping for air after the first time down and back up. I am doing well today. I am keeping my tension levels at bay. I never used to get tense or upset about very much. Now, I can't seem to handle the least bit amount of stress put on me. My nerves must need a break. Ha! I have been getting a bit testy of late. Don't know what is causing it. I haven't been doing alot of late. Not because I can't, but because I just don't want to. I am afraid I got use to lounging around alot in Florida, and my get up and go fled. Can't seem to catch up to it. We are on different paths. I'll think of you tonight and I will get another turn next Tuesday. Sheryl
Strength and Warmth,
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#10 Clementine

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Posted 16 April 2007 - 10:22 AM

Hello!
My visit with the respiratory therapist was simple. I walked around my house without oxygen supplement for five minutes to see what my o2 dropped to. It went to 84 but quickly went back up after I sat down. Then, I walked around for five minutes with oxygen on and tested, which was 95. Tonight I will sleep without oxygen to see how low I get. Ideally, they want 4 hours of straight sleep but there is no way that's going to happen at Casa Le Doggies.

Sheryl, sorry things are getting you down lately. Hopefully it will go away soon. I seem to go up and down....and thankfully, the downs don't last too long.
Yea, I'll look a little better tonight with just the pulse oximeter on my finger opposed to the oxygen cannula AND finger all wired up. I think we should all retire to Florida and relax!!!
Jen

#11 janey

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Posted 16 April 2007 - 11:49 AM

WOW! - I bet you don't have a problem getting your oxygen prescription renewed. I guess when we move, our poor little heart-lung systems can keep up. I know the extra O2 really helps me when I move. Mine picks right back up when I sit down a well. Glad the O2 helps.

Good luck tonight! Glad to hear it's just the pulse oximeter and not the 25 wires or so for a normal sleep study. YUK! We've had to start shutting the cats out of the bedroom at night because I just wasn't sleeping. They love laying right up against me which keeps me from being able to turn over (which I do a couple times each night). Maybe tonight might be a good night to shut the bedroom door at your house so you can get that 4 hours of sleep. But then you'd probably have dog scratches on the door in the morning. LOL

Hope all goes well.

Big Hugs,
Janey

#12 Clementine

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Posted 16 April 2007 - 12:29 PM

Janey,
Did you say your PFTs are Wednesday too? Let me know...or send me a private message so we can compare results.

Do you think dropping to 84 is really bad? I know it's not good to go below 88-90, but I don't know what is bad. I tried talking to the respiratory therapist about my numbers but he didn't seem to want to talk about things that mattered, only our kitchen cabinets. :(

Oh Janey, you will think I am the crazy dog lady, but a night without my dogs sleeping with me would make ME sad! They are small dogs and we have a king bed so it's fun to have them with me.

I've never had to have the real sleep study but oddly enough, that is what my neighbor does for a living...gives sleep studies.

Have a great night. Good luck Wednesday.
Jen

#13 Sheryl

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Posted 16 April 2007 - 12:31 PM

Jennifer, I am also glad it is just the pulse oximeter also. I was immagining the 25 wires up and down your legs and into your scalp. Guess you won't be laughing about that. Sweet Dreams. Sheryl
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Sheryl

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#14 janey

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Posted 16 April 2007 - 04:49 PM

Jen,
First of all - I LOVE your new avatar. What a beautiful couple!

My pulmonologist said the O2 sat should not normally drop below 95 but once it drops in the 80's or lower it really starts to put a stain on the heart. Since I already have an electrically challenged heart, it doesn't need to work any harder than it already does. I don't know what the levels of good, bad, and worse are. We're probably in the "bad" category. That would be a good question for our doctors.

Yes, I get a PFT on Wed as well as an appointment with my pulmonologist. I'll PM my results and let you know what the doctor says. Of course I have the same problem that you have in that I hope they can get some reliable results with this chronic cough. My last PFT was a bust because I couldn't get through any of the stages without coughing. UGH!

Have a great night's sleep with the hubby, the doggies and the oximeter,
Janey

#15 barefut

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Posted 16 April 2007 - 08:30 PM

Hi Guys,

I was wondering.....I have seasonal allergies and have been known to snore (so I'm told) in addition to having mild-moderate ILD.

A few recent days in a row (high pollen counts) I've woken up feeling like I never even slept and I couldn't shake the groggy, hung over, thick-headed, feeling all day. (I had not taken any allergy meds or any other meds than my usual ones.)

Do any of you think that could be because I wasn't getting enough oxygen at night?

Should I mention it to rheumatologist on May 1st so she can tell pulm doctor? I don't see him til Aug. 1.

Thanks,
GOING TO SLEEP NOW!
Barefut