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Biomarker for Diffuse Scleroderma skin has been discovered!


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New Rhemie And Very Frustrated.


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#1 kelowna52

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Posted 17 April 2007 - 05:16 AM

I went to see my new rheumatologist yesterday about the results of my blood work that I had done 3 weeks prior. I went into his office thinking that the bloodwork had to show something, considering I was diagnosed about 3 years a go. Well, he comes into the room, looks over everthing for a few minutes and then says everything is negative, I can't find anything wrong with you. I was stunned. He said why are you on all of these meds, I was like what! I feel awfull, that's why I'm on all of these meds. I went through so much testing at UCLA in LA, and all of my doctors there agreed, I have Scleroderma. I mean what do you say to this new rheumatologist? I told him everything that was going on with me and he said well you can come and see me again in 3 month's and we'll see how your doing then. Plus he wouldn't renew my scrips. The only reason I decided to switch Rheumies is because I didn't want to drive to Seattle for everthing, which is 1 1/2 hours away, at least. I really like my rheumatologist in Seattle, my rheumatologist in LA referred me to him and he prescribed almost all of my meds. Now I don't know what to do, my sister is an RN in Canada, and she thinks I should definately go back to my Seattle rheumatologist. What do you all think I should do?

Jackie S.

#2 Sweet

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Posted 17 April 2007 - 06:46 AM

Wow!

Does the "new" rheumatologist have all of your chart notes from LA? If not I would make that happen if you decide to stick with him. But what I would do is continue with the 1.5 hour drive to Seattle to the rheumatologist you like. I have a 3 hour drive one way, and to me that's no big deal to see someone that I know is one of the best! I would call one or both of your old rheumies and get those meds filled!

Sorry you have to go through this. :(
Warm and gentle hugs,

Pamela
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International Scleroderma Network (ISN)

#3 Sam

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Posted 17 April 2007 - 09:44 AM

I would continue to see the other rheumatologist in Seattle. They know you and that is what you need. Aparenlty he didn't read your medical records forhand. So that is what I would do. I hate starting to see a new doctor. Sam
Sam

#4 nan

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Posted 17 April 2007 - 10:12 AM

You poor thing! I think she should go back to your old rheumatologist.
Nan

#5 kelowna52

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Posted 17 April 2007 - 10:55 AM

Thanks Pamela for getting back to me. I called the Rheumies office I went to yesterday because they didn't give back all of my paperwork from all of my tests. I spoke to his nurse and asked her how on earth this bloodwork could be all negative and she said oh! that happens quite often, she said I have seen it go both ways from Neg. to Positive and vise a versa. So I don't know, but as far as my meds, I really don't understand that. All of my prescriptions have my rheumatologist's name from Seattle on them. I used to drive 2 1/2 hours each way in California, to my rheumatologist there. This doctor, I have seen in Seattle was referred to me by my rheumatologist in L.A. I really like the doctor in Seattle, I'm just tired of the driving, but I guess I'll just do it. It's not so bad driving for appointment's every three month's, it's when you have to have tests done or see other doctor's down there that he wants you to see. Anyway I know alot of you have to drive a fair distance so I guess I will probably go back to Seattle. Thanks again Pamela.

Jackie S.

#6 kelowna52

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Posted 17 April 2007 - 11:18 AM

Thanks Nan and Sam, I beleive you are all right. I think I will definately go back to my doctor. in Seattle. Thanks again.

Jackie S.

#7 janey

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Posted 17 April 2007 - 02:56 PM

Jackie,
I have nothing more to add except for a (((((((((((HUG)))))))))))). I can imagine your frustration with the new guy. So since it's frustration you don't need, go back to Seattle. Some things are just worth the time and effort.
Big Hugs,
Janey Willis
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