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Teeth And Healing


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#1 Clementine

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Posted 18 April 2007 - 02:39 AM

I thought my latest dental escapade was worth mentioning. I had a crown and root canal in July 2006. I went to the dentist yesterday for another tooth that was giving me trouble, to find out that the root canal and crown I had done almost a year ago has not healed properly. I have to get an antibiotic shot next week! The dentist believes it is because of Scleroderma and being on Cellcept. I went in for a completely different tooth and found out this one was also messed up. Just to remind everyone that regular dental checkups are very important, as I felt no signs of infection in this particular tooth.

I have really noticed my teeth going down hill the last few years. I have to have another root canal and crown on Monday.

Take Care,
Jennifer

#2 ErinF

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Posted 18 April 2007 - 03:30 AM

Hi Jennifer,
I'm so sorry you're having such teeth trouble! One of the lesser known things that happens with sclero is dental issues--something about the stuff that holds our teeth in becomes fibrotic and no longer working right. As if sclero sufferers didn't already have enough to worry about!!
I hope you start feeling better!

hugs,
ErinF

#3 Heidi

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Posted 18 April 2007 - 04:13 AM

Hi Jennifer,

What a bummer! I am so sorry you are having to deal with these teeth issues. I am sure it must have been quite a shock to hear that your root canal hadn't healed properly when you weren't even experiencing any problems with it. I hope everything turns out just fine.

Warm wishes,
Heidi

#4 Clementine

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Posted 18 April 2007 - 10:45 AM

My rheumatologist just said to me today that it is bizarre that I am having teeth problems, when I do not have dry mouth. However, when I was in the waiting room at the hospital, I met a lady who also has Systemic Sclerosis, and she was told she has Sjogren's (diagnosed by lip biopsy) and she said she did not have dry mouth. Her dentist prescribed her something for dry mouth, so I am going to check into that.
My eyes are dry too, but I blame it on contacts and high altitude.
Jennifer

#5 Sweet

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Posted 18 April 2007 - 12:54 PM

Hey Jen,

Sorry you are having dental problems. This is a problem for those with sclero. Also make sure you are drinking a lot of fluids and keeping your mouth moist, that helps.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 ErinF

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Posted 18 April 2007 - 03:16 PM

I have Sjogren's, but never really thought I had a dry mouth, just really dry eyes. But I just had my 6 month dental check up and had 4 cavities!!! In just 6 months! Guess my mouth was drier than I thought! Sometimes I think we have so many symptoms that we actually overlook others as they pop up, or we've had them for so long that we no longer think of them as "symptoms" and therefore don't connect them to anything.

ErinF

#7 nan

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Posted 18 April 2007 - 03:32 PM

Erin,
I have Sjogren's too. I take Evoxac. Do you?
Nan

#8 relicmom1

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Posted 20 April 2007 - 07:11 AM

Hello everyone. Yes, I too have suffered first hand the wrath of this awful disease on my teeth. A year ago last month (I was 47) I finally lost my battle and had to have all of my teeth pulled and get dentures :( I must say, though I fought a heroic battle!!! I am on Salogen (insurance won't pay for Evoxac). My dentist recommended ACT mouthwash over all the others, but alas to no avail. I fought the teeth problem for almost 4 years before I lost. It was a hard thing for me to accept, losing my teeth. As a child, teemager and even into adulthood I had beautiful teeth. To go thru what I did and still lose them was hard. I have gotten use to my choppers though and at least that's one pain I no longer have (allthough I have plenty of others). I do agree that this is one problem that you really don't hear about attached to this frustrating disease.......OK ...I've been long winded enough....Hang in there everyone!!!!!! my motto..."It's better than the alternative" :P
Peace :)
Barbara aka relicmom1

#9 Guest_Sherrill_*

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Posted 20 April 2007 - 01:32 PM

Barbara,

I sympathize as I am fighting the same battle you just fought with your teeth! I am at the stage where the dentist is trying all sorts of things to help me hang on to my teeth, but we've already lost the battle with some recently.

What sort of things did you try? Did you try any implants, as that's the next thing on the agenda for me with a top eye tooth which has to come out in 2 weeks! Ugh! It's at the stage now where I am wondering just where you give up!

I'm really resisting having any sort of plate, partial or denture, as my mouth has become so much smaller with the sclero. Food in it is bad enough, and I can't eat large mouthfuls. I can't imagine how it would feel to have a plate and food to manage at once! How did/do you manage with your dentures, or is your mouth still a good size?

I also have the dry mouth from Sjogren's, and I believe you do need saliva to help hold a plate or dentures in.

When I had a tooth out recently the dentist found I lost 3mm of jaw bone in the 3 months since, from where it came out. Lack of jawbone is a problem too with dentures, as my mother has this problem severely. The dentist also tells me that implants stop the jaw bone disappearing in the same way your own teeth do.

Anyway, I would be very interested to hear what lengths you went to to keep your teeth, when you decided enough was enough, and how you manage with your dentures?

Warm hugs,

#10 Clementine

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Posted 21 April 2007 - 02:31 AM

Scary...I know this is a sclero forum...but I want to know if anyone's had a root canal and it was even more swollen on the 3rd day. I look as though I have a golf ball in my jaw. No pain though, and I wonder if the Cellcept has anything to do with that, since it has some anti inflammatory agent in it. I am just taking 600mgs of Ibuprofen every 4-6 hours as directed by my Dr.
If anyone has any experience with root canals, please let me know.
Thanks.
Jennifer

#11 relicmom1

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Posted 21 April 2007 - 02:40 AM

Fortunately my mouth hasn't lost much size. And yes you need moisture to help hold the dentures in, but way before I really started loosing teeth, I was severely dry and I have a "trademark" cup that goes with me 24/7 with either water or diet soda (I know even the acid in the soda isn't good, but I'm a pepsi-holic and I refused to loose one more thing to this disease :blink: ) Now, I was told implants weren't an options because of the bone loss and future bone loss. I really would have preferred them. It did take me a good three or four months to finally get use to these things. I do feel like I have a huge wad in my mouth, but over time I'm getting use to it. I have to be super careful about my mouth gums and roof because the skin can break down real easy and then I'm in real trouble. Also, back to the dry part, I do have to use adhesive to hold them in because of the lack of moisture. That was an interesting learning experience. Last year when I finally gave up the battle, I had already lost two molars on one side and the bottom front 4 and my front top two had dissolved on the inside of the enamel and all I had left was an enamel shell, like an egg shell. I went to an oral surgeon and all the top ones removed at one time under general anesthesia, had to let that heal and get the top denture, kinda get use to that one and then go back and have the same done with the bottom ones. I was told to wear the dentures at night also for the first month or so, but I wear them 24/7, I just feel too weird without them. :P It did take quite a while to get use to them and to be able to eat somewhat normally again. To quote a Grateful Dead song "what a long strange ride this has been" (uh-oh showing my age again!! :rolleyes: ) Good luck to you because I personally know what pain can be involved in this mess and the dentures are somewhat of a pain, but no where near the pain I was in with the constant infections of the teeth and jaw bone and the repeated surgeries to try to debride the dead bone tissue. Let me know how it goes!!! And I will keep you in my thoughts.
Peace :)
Barbara aka relicmom1

#12 WestCoast1

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Posted 21 April 2007 - 07:10 AM

Jen,
sorry to hear about all of the mouth pain you are going through!!! Just to add a few things, my mother has Sjogrens and her dry mouth is not the main symptom...but she does have lots of teeth issues. Her last root canal did not go well also and it lingered on for a really long time. she was swollen, bruised and in pain. It did finally heal, but she is also not on Cellcept. She continues to fight the battle with her teeth.
*WestCoast*

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#13 Clementine

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Posted 21 April 2007 - 11:14 AM

Thanks everyone....I am now on Amoxycillan for 7 days, which means I have to go off Cellcept for that long. I think....I will confirm with rheumatologist on Monday but that's what happened last time I had a tooth infection.

I have a very swollen face, but not really swollen near the tooth. Weird.
Jen

#14 Guest_Sherrill_*

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Posted 21 April 2007 - 09:26 PM

Barbara,

It doesn't sound like a picnic! :blink: I guess I'll just have to take it as it comes, though what that will be I'm not quite sure yet. I have lost 2 molars on the bottom at the back on each side. The last molar on the left side is due to let go very soon, due to lack of bone and gum support, though the tooth, although with a large filling, is basically OK.

The top molars are OK at present and long may that last. However, in December last and January I lost the two premolars at the top right side, just behind my eye tooth. Both these teeth had root canals, and as such were more brittle. However, my main trouble with tooth loss is due to the roots being reabsorbed just below the gumline. These two teeth had this happen and I crunched on something which made them shatter at that point! (It felt and sounded awful!) :o

The front premolar, next to my eye tooth, looked as though it would be suitable for a mini implant, as there wasn't enough bone for a full implant. However, once the socket had healed the dentist found I'd lost the extra 3mm of bone which I spoke of, and which made it unsuitable for any sort of implant.

He also found at the same time that the eye tooth next door, which a few months back had suffered the root resorption, had gotten even more and would fall out soon. So he preferred to take it out in a controlled fashion. When it first happened to this tooth he did a root canal to hopefully stop the process, as this can do it. He then peeled back my palate skin and filled the gap in the root. But it was not to be! So we're going to try a full implant for this tooth and hopefully it will work.

He has done a similar process with a front bottom tooth, and so far it's working. Plus a couple of other bottom teeth.

Anyway, he says he *may* be able to do a bridge for the 2 premolars which came out, after the full implant for the eye tooth has integrated. he would use this plus my 2 back molars to anchor the bridge.

Maybe I'll try a partial plate for these 2 behind the eye tooth, at least until the implant has healed. If I can't stand it, then I'll probably try the bridgework! There's just so many "if's" and "maybe's"! :(

Regarding lack of moisture for holding dentures or plates in.......... I have kidney failure with dialysis, and can't drink indiscriminately. Nor can I drink stuff with sodium in it, as diet soda often has, because I am on a low sodium diet! :blink:

Oh the stuff which sclero gives us all to cope with!!! :angry:

Jennifer, I have lost count of the number of root canals I have had, but I don't remember any giving me any trouble and most of them have been after I got sclero! I'm glad you're on antibiotics anyway!!

I've really written a book here, so sorry about that!

Warm hugs,

#15 Heidi

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Posted 22 April 2007 - 02:06 AM

Hi Sherrill,

I am so sorry to hear of your teeth problems! What an absolute pain! I sure do hope the implant takes and holds for you and that then you can get that bridge. I am sure this whole thing is just so frustrating for you! It just seems as if it is not one thing it is another. You are in my thoughts.

Warm wishes,
Heidi

#16 jefa

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Posted 22 April 2007 - 03:58 AM

"I've really written a book here, so sorry about that!"

Sherrill, please don't apologise--your information is always so thorough and educational. We appreciate every word you write.

#17 Guest_Sherrill_*

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Posted 22 April 2007 - 09:18 PM

Thank you Heidi and Jefa!

You know Jefa, I start off with a message saying to myself, now this will be brief. But before I know it, it's anything but brief! :lol: I think to myself now this and that require more explanation, so there you are!

One thing I forgot to mention about my teeth...... the last 2 premolars I had out had to come out in bits. And the last part of the root was stuck so hard to my jawbone that one had to be drilled out right down to the bone! This one was done by a woman who did a great job, but she didn't have the "oomph" in her wrist to get my tooth out.

My usual dentist did the second one, which was a crowned tooth. He tried VERY hard to save it, but couldn't. But he found the same thing that the root didn't want to part company with me! However, he managed, and found that there was a small piece of jawbone attached to the bottom of the root when it came out! He explained that I had ankylosed roots, which means there is no connective tissue between them and the bone, so they're stuck really hard! Once again a product of autoimmune disease!

The dentist was so unhappy about having to take my tooth out that he refused to charge me! He hates taking teeth out as he prefers to save them if he can! He is a VERY nice guy, and you don't get many like him!

Needless to say I'm not looking forward to the eye tooth coming out if it has the same problem!

Warm hugs,

#18 susie54

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Posted 23 April 2007 - 12:28 AM

Hi Jenifer,

I hope your tooth heals and you can keep those teeth as long as you can. I lost almost all my bottom teeth two years ago and have a partial on the bottom. My teeth just loosened up where the connective tissue holds them below the gum and the dentist didn't even have to wobble them to come out. I did retain the back molars to hang on to and the partial works well. I take Evoxac for dry mouth and it really helps.

Sherrill, your teeth woes continue. I am so sorry. I had on of those tooth shattering in pieces when pulling to. It took forever to dig it out and the sound was awful. You have been through so much and I am glad you have your diet sodas back. I love my one a day. Susie54

#19 ErinF

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Posted 23 April 2007 - 05:33 AM

Hi Nan,
Nope, I'm not on any meds. As of right now, I'm not "bad" enough to justify them...and I'm not complaining. I'm glad I'm not terribly sick! I go back to the dentist on the 17th of May, and we're supposed to talk more about what kinds of things I can do over the counter. Right now I use a dry mouth toothpaste and rinse.

ErinF

#20 Clementine

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Posted 23 April 2007 - 07:10 AM

Thanks everyone! My mouth is healing finally. The dentist actually called me last night to ask how I was doing. Amoxycillan and Ibuprofin have helped. I am sorry to those that are also having teeth problems.
Thanks and remember to always smile!
Jennifer