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Biomarker for Diffuse Scleroderma skin has been discovered!


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ILD And COPD


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#1 peanut

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Posted 18 April 2007 - 05:10 AM

I’m worried about my lungs. I have interstitial lung disease (ILD) caused by scleroderma. According to my spirometry I'm a high COPD (Chronic Obstructive Pulmonary Disease) risk. Is ILD a COPD or an early stage of COPD? I've read that early stages of a COPD condition include - Cough (sometimes called a "smoker's cough"), phlegm/sputum production and shortness of breath. This is my situation everyday.

Should I be worried?

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#2 TJ903

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Posted 18 April 2007 - 06:52 AM

Peanut

Sorry to hear about your condition. I have ILD but no cough. It's definately something that needs your attention. Has your doctor expressed any concerns at this time? He may not realize how much your daily life is affected especially if he's not worried. Sometimes doctors need to be reminded that patients are human and our conditions do not always follow standard protocols.

Good luck with this, hopefully you get get some good results! - TJ

#3 debonair susie

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Posted 18 April 2007 - 10:11 AM

Hi peanut,
I re-read your thread posting, and didn't see where you mentioned a specialist. So, my question: If you don't have a pulmonologist, you may want to see if you can get a referral. I feel that then, you can get the answers you are looking for. Our conditions don't make it very easy to get diagnosed, do we? :blink:

From what you are describing... with the cough and sputum nearly every day... I'm just wondering if you might have bronchitis? My husband has COPD and his chronic bronchitis creates that problem (for him). Is it possible your cough is caused by the sputum? If so, are you able to take Mucinex, by chance? My husband takes (prescription) Guafinesen and he hasn't had any exacerbations since.

Please let us know what you find out?
Hugs, Susie
Special Hugs,

Susie Kraft
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International Scleroderma Network (ISN)

#4 peanut

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Posted 18 April 2007 - 11:10 AM

Hey Susie,
I see a great pulmonologist. She's never mentioned COPD, but when I read the symptoms it's totally me. I just had x-rays and no signs of bronchitis, just coughing caused by the ILD... is ILD a COPD?

Hum.... She told me the phlem is caused by the ILD and Scleroderma.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#5 Sweet

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Posted 18 April 2007 - 12:50 PM

Hi Peanut,

COPD is a general term for "lung disease in which the lungs are damaged, making it hard to breath." That is straight from the National Institute of Health. Here is a link that discusses COPD and who is at risk, causes, diagnosis, treatments, prevention etc. I hope this helps you.

This is something you should discuss with your doctor as well.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 Clementine

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Posted 18 April 2007 - 05:37 PM

Peanut,
I am sure you are worried. I go through bouts of coughing and junk in my throat (and junk in my trunk) and I know it's scary when you also have ILD. I think someone mentioned trying Mucinex...which I believe is a miracle pill. I had a terrible cold and bought Mucinex, and a couple of days later I was fine. I know your problem could be much more serious than a silly cold, but maybe it will help. You have obstructive and restrictive lung disease so who knows. Janey has that cough right now too. I am sorry...I am not much help but the least I can do is let you know I care.
Jennifer

#7 relicmom1

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Posted 22 April 2007 - 02:02 AM

Hey! I , too have ILD. I have terrible reflux at night and unless I totally sit up to sleep, I'll aspirate. I'm sure this doesn't help. I've had pneumonia several times because of it. It's really amazing what we will do to try to help relieve our symptoms!! Hang in there!!
Peace :)
Barbara aka relicmom1

#8 debonair susie

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Posted 23 April 2007 - 09:15 AM

Hi peanut,
I apologize for not replying sooner to you... much too much going on :o
I'm not able to answer your question about whether or not ILD is a COPD... that's more a question for your pulmo.
However, you may still want to ask if Mucinex would be appropriate for you to take, as it does help thin the phlegm. Also, drinking plenty of water aids with its success.
Take care and let us know if you can find out if there's a relationship between ILD and COPD? In the meantime, I'll try to do some checking too ;)
Hugs, Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
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International Scleroderma Network (ISN)

#9 peanut

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Posted 23 April 2007 - 09:56 AM

Hi all,
I ended up calling the nurse at the American Lung Association. She told me that although COPD and ILD may have similar symptoms they are different. COPD involves lungs losing their elasticity due to specific conditions like smoking related emphysema or bronchitis. With ILD, the lungs stiffen and involve fibrosis.

Good to know…
Thanks everyone for you imput

peanuthead

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#10 Clementine

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Posted 23 April 2007 - 11:23 AM

Peanuthead,
That's so smart of you to call the American Lung Association. I am so glad you found out it's not COPD. I will vouch for Mucinex too. It's wonderful stuff.
I hope you are feeling better.
Jenhead

#11 debonair susie

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Posted 24 April 2007 - 09:25 AM

Hi peanuthead... I'm with Jenhead, that was very smart of you! lol:rolleyes: Wow, though... I can sure understand why you were wondering if you did also have COPD...the fibrosis with ILD differentiates the two, doesn't it?
Thanks for the latest information form the lung association :)
Hugs, Susiehead (I just had to do that!lol :lol: )
Special Hugs,

Susie Kraft
ISN Support Specialist
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International Scleroderma Network (ISN)