Posted 18 April 2007 - 12:23 PM
Thanks for the reply! I live in BC, Canada so the treatments are free. The catch is the IVIG is not just handed out.... Thats awesome to hear its working for you!! I will be seeing my specialist soon as I live 14 hours away from my specialist. So I will be asking about this in May. It gets me so excited to hear positive things, I try not to get to excited though, try to advoid the disappointment. I believe there has to be a cure or something out there for this... I two have MCTD with Scleroderma, Lupus and Raynaud's. I was diagnosed when I was 21. I believe it was caused by hormones. I was on the birth contol pill, then was forgetting to take my pill. Went onto Depo-Prevera and wasn't working that well so switched back to the pill after I had recieved my 3month dose of Depo. Later about a month or so I woke up and couldn't move my hands. They put me on Prednisone and then about 3 hours later I moved them! Since then I haven't had any answers as to why my hands did this?? I feel great and work out at 3 times a day and Supervise a Preschool/Daycare with 43 children! This I'am very greatful for, I just wish I didn't have it all......!
I would love to hear your story if you will share? I 'am now 26 and trying to get pregnant. Do you have kids? Talk to you soon, Thanks so much! Jenny