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Losing Balance


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41 replies to this topic

#1 kathygirl

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Posted 21 April 2007 - 11:23 AM

hi all,
Hope everyone is able to enjoy the beautiful weather.
My question is does anyone have trouble with balance. I noticed when I was in the yard the lawn was a little uneven and I would lose my balance while walking.
Does that happen to anyone else? It does happen in the house on level flooring as well. Kathy

#2 relicmom1

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Posted 21 April 2007 - 11:58 AM

Hey Kathy,
I lose my balance all the time. Have for over 6 years now. I use to fall alot, down steps, up steps, in the middle of the floor, it didn't matter. The one thing that did to be in common about falling it was in the dark or near dark. About 5 years ago, I had to go for a sleep sudy and the Dr. said I have peripheral neuropathy. He told me that I should never walk in the dark because since I couldn't sense or feel where my feet are, I fall. When he told me that I put night lights everywhere and I don't seen to fall no where near as often. I do lose my balance in the light now, but I also make sure to watch where my feet are going :lol: YOu know, I'm one of theose people looking down as they walk, now I may run into something!! So, you're not alone.
Peace :)
Barbara aka relicmom1

#3 Sweet

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Posted 21 April 2007 - 12:07 PM

Yes!

I am "off balance" quite a lot, however I've never been given any good reasons as to why. :blink:
Warm and gentle hugs,

Pamela
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#4 susie54

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Posted 21 April 2007 - 12:35 PM

I too am off balance alot. When the hot weather hits and I get numb more , it seems to be worse. But I do notice it all the time. Susie54

#5 TJ903

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Posted 21 April 2007 - 12:51 PM

Count me in too- I'm always veering off to the right for some reason. Good thing I walk with a cane! Does anyone know why exactly or is it just because of our conditions?

#6 kathygirl

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Posted 21 April 2007 - 02:06 PM

Thanks for all your replies. Its nice to know its just not me.
Picture a group of us after having a couple drinks. :lol:
Kathy

#7 CarriePan

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Posted 22 April 2007 - 03:05 PM

Well you can count me in on walking sideways LOL Would be a sight though wouldn't it? sclero=drunks ;) Can we use that in court?? I can't even walk a straight line sober!! :mellow:
I thought it was just me...nice to know we are all going through the same things! I'm not crazy after all <sigh>
Carrie
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#8 TJ903

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Posted 23 April 2007 - 08:43 AM

CarriePan-

Loved your post - Sclero-drunks gave me a much needed chuckle!! I just picture myself from behind and can now laugh about what I must look like. I'm trying to get disability- do you think this is a viable condition for the disease!? Seiously tho' can anyone tell me?

#9 nightfrog

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Posted 23 April 2007 - 11:37 AM

i also fall or stumble a lot but I've always been a clutz but it has gotten worse this year than ever before I notice it the most when I first wake up or try to hurry to do something I'm glad I'm not alone in this smiles to all :D

#10 CarriePan

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Posted 23 April 2007 - 02:54 PM

Dear TJ903~
I really don't know. Sorry :( I thought I was really a dizzbat bit not really dizzy because I felt my mind was playing with me lol Ugh...this morning I kinda fell off balance sideways and dropped all my meds on the floor LOL I watched them fall and did nothing! So much for my swollen fingers and loss of balance lol
Hope you're feeling good these days B)
take care~
Carrie
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#11 CarriePan

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Posted 23 April 2007 - 02:58 PM

Nightfrog~
Clutz huh? Now we have a legit excuse?? HA! Who knew?? What else is going on with you???
Have a good one...
Carrie
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#12 whirlway

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Posted 24 April 2007 - 07:07 PM

And I thought it was just me. I have been having trouble ever since I went to Vegas last April for my son's wedding. The minute I stepped off the plane, I felt like I had just gotten off a ship and couldn't get my land legs. I have seen a neuro, en&t guy, and have been going to physical therapy, she calls it vestibular. Don't think the therapy is helping, due to the fact that sometimes when my hubby and I are walking somewhere, all of a sudden I just might veer off in a total different direction. At least we can laugh about it. Can't stand up withmy eyes closed for very long, really sway and stagger. I am supposed to walk down our hallway and glance from side to side, well, how does running into the wall sound. Yep, that's me. Alan always wants to know what I have been drinking, lol. At least now I know I am not alone.
~whirlway

#13 CarriePan

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Posted 25 April 2007 - 03:11 AM

Whirlway~
If I closed my eyes and walked, I'd fall over LOL It sounds funny but it's very frustrating :mellow: Just don't get caught walking down a hotel hallway LOL they just might call security :P
Take care~
Carrie
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#14 charlene

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Posted 09 May 2007 - 11:12 AM

Hello All,
This is my first time here. I had to laugh at the losing balance answers. I was diagnosed with CREST in 1999, and I always say I'd probably walk better if I HAD drank. Always to the right, and thought it was just me being klutzy. I'm so glad I found this site as there seems to be sooooo much on here that applies, and it's comforting to know. Thanks all, Charlene

#15 Connie

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Posted 09 May 2007 - 02:12 PM

WOW! I have a balance problem as well. I can be walking down a sidewalk and just fall. Last year I fell on the stairs and fractured my ankle. My husband says I need to watch where I'm going but I can't do that and watch my feet also. You should have seen me on crutches :D .
Connie

#16 siouxzie

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Posted 29 May 2012 - 10:34 AM

Thank you all so much for sharing your clumsy, balance episodes. My doctor has never addressed this topic and I have been sick for 13 years. I have a fear of falling down the stairs to the point that we added onto our home so I can live on one floor. It has helped my fatigue and joints. I know that not everyone can do this- but I feel affirmed now with the need to do that. Yard work was very hard this season.I sit on a stool that looks like a tractor seat. It save me from kneeling and trying to get back up. Still the heat and work sets me back a few days.

Siouxzie ( I see there are a lot of Susies on this site )

#17 Joelf

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Posted 29 May 2012 - 11:13 AM

Hi Siouxzie,

Welcome to these forums!

I'm sorry to hear that you've been unwell for the last 13 years. Have you been diagnosed with Scleroderma? It certainly can cause vestibular balance disorders from which thankfully I've never suffered, but I know some of our other members have done. I've included a link to Brain (Cerebral) Involvement in Scleroderma which I hope you'll find interesting and informative.

Do keep posting and let us get to know you.

Kind regards,

Jo Frowde
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#18 miocean

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Posted 29 May 2012 - 07:11 PM

I have a good friend who does not have sclero and has had two bad falls this past year, one where she broke her glasses and had to cut a vacation short, another where she just went down. She claims it's from looking around and not paying attention and has told me if she wasn't holding onto her husband's arm she would have gone down a lot more. Her mother had scleroderma but she is adopted and has no other symptoms so she just needs to pay attention.

I am a looking at the ground walker and always have been. When I was a runner I was told to look straight ahead at the horizon and the run would be better. Sorry, I don't trust the ground or pavement and look down. There is a whole theory on your personality based on where you look when you walk.

I stumble and have to hold on to things. I drop things all the time, especially pills. But I am one of these people that if I fall I GET UP really fast so that no one sees me (or as fast as one can with all the skin hardening.) Then, days later, I find bruises and bumps and think, where did I get that?

I'll read the links and see.

miocean
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#19 marsha

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Posted 30 May 2012 - 06:50 AM

I never even thought twice about this until I read this post. I am wobbly all the time. I thought it was just cause I was stiff when getting up. Nice to know I am not alone.


#20 miocean

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Posted 30 May 2012 - 06:49 PM

This morning I dropped a container of calamata olives all over the shelves of the refrigerator and floor. This is because of my bad hands not being able to put the lid on right, and my clumsiness putting the container on the shelf. I yelled words so loud that you are not allowed to put on this forum that I am surprised you all didn't hear them. Not only did I have a mess of olives and juice all over the place but these were REALLY good olives from a specialty Greek store in New York City. Normally, if something falls on the floor it goes in the garbage because I am so concerned about bacteria but the floor was clean and I opted for the 5 second rule and put them all back.

The good news is due to my skin softening I was able to crawl under the kitchen table to get a couple of stray ones and could bend down to wipe the mess up instead of having to call for help!

miocean
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