Question For Those With Lung Involvement
Posted 26 October 2006 - 07:35 AM
At what point or how bad off were you before you went on oxygen?
Did your doctor insist on it or did you ask for it?
Are you on it all of the time? If not, when do you need it most?
How is life better for you on oxy?
How is life worse for you on oxy? (is it a pain in the rear?)
Did your family/friends treat you differently when they first saw that you had to have oxy? If so, how?
Do you get stares in public? If so, how does it make you feel?
That's all for now. Thank you very much for your time.
Posted 27 October 2006 - 03:17 AM
Posted 27 October 2006 - 12:13 PM
I wish you the best. If you have any questions feel free to ask. I have not been sold on this, but my Dr. told me I'd be on o2 for the rest of my life.
Posted 27 October 2006 - 02:21 PM
I don't know what the abbreviations mean regarding the PFT's (I know that one ) but I was told my diffusion rate was 67% 3 months ago. Down 3% from the previous 3 month checkup so I wondered why doctor said he didn't need to see me for another 6 months this time.
I get short of breath when I get stressed, which is often (going through a divorce with 2 young kids)
I've also noticed recently that I will get SOB in a stuffy room. I can't sit in my favorite, crowded coffee shop for 20 minutes without feeling SOB. BUT I can work up a sweat mowing the lawn and have no problem. Slow and steady is the key. I tried scrimmaging with my son's soccer team and I wasn't so much out of breath as I was hot and flushed in a very short time.
I'm planning a trip back East to visit relatives and I'm worried about flying. I just know I will have problems breathing on the plane if I can't sit in my coffee shop for 20 minutes, how can I sit on a plane with the stale, recycled air for 5 hours?
I had a mini panic attack once on a crowded flight. I just didn't feel like I could breathe and I started feeling claustrophobic. I had a hard time holding it together. This was 15 years before my diagnosis!
Anybody else experience any of the same - SOB in stuffy rooms, with stress, on planes or flushing quickly with exercise?
Thanks again for the wonderful insight.
Posted 27 October 2006 - 07:32 PM
I guess since your fluctuation was only 3%, it's not until it is a 10% range that doctors take notice and consider it a real curve. The 3% range can just be your breathing was off that day, stress, the person giving the test, and other environmental factors.
About flying...on the airline I use, it cost $100 per segment to use their oxygen and the last I knew you cannot bring your own oxygen on flights. THe cabins are pressurized though. I bought oxygen the first time I traveled after being sick but monitered my saturation and it turned out I remained above 90 the whole time as long as I remained sitting in my chair and didn't get up a lot. I ended up canceling the oxygen for the flight home and saved the money.
Another thing, I used to feel SOB if I even had water in my stomache.
Do you think your SOB could be from drinking the coffee and having a full tummy? I don't mean to sit here and try to diagnose you (ha ha) but I had the same problem for almost a year and finally my dr. listened and put me on a pill that moves food from my stomach faster and it has helped with the SOB that I would get even with oxygen on.
I wish you the best of luck with your everything. I am sure a divorce is so unpleasant and especially at a time like this. You have a bunch of friends right here to listen and try to help.