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Abdominal Pain


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#1 kiwimum03

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Posted 30 April 2007 - 10:57 AM

I have posted before about having liver pain for the last year, it is usually mild with an episode of intense pain, which they thought may have been a gallbladder attack.

yesturday I ended up in the ER with severe abdominal pain, my regular pain just got worse and it hurt to breathe in, and the pain also radiated from upper right quadrant down and around my right kidney.

I had to sit there for a hour bawling my eyes out, next to a guy who was vomitting, which in turn made me gag.........ugh I hate hospitals.

I had an x-ray, abdominal CT and rectal exam, all normal!!! ugh, they just didn't know what was wrong, and of course I felt like an idiot crying in pain, but all the tests being normal.
Even my liver tests that have been out of whack for a year, were normal!

They thought, gallbladder, appendix, kidney stones, liver, but couldn't find anything!

I got some super-duper pain relief which lowered my BP so much I almost passed out, but after that my pain eased quite a bit.

so after 7 hours I got to go hope, doped up with mild pain and not answers,

So this morning I am still sore, not as bad though.

very frustrating!

Hugs,
Irene

#2 Sweet

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Posted 30 April 2007 - 10:58 AM

Oh Irene,
I am so sorry. I'm sorry for the pain you are having and I'm sorry they couldn't give you any answers. That must be so frustrating!!! Did they say what "next steps" are?
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#3 kiwimum03

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Posted 30 April 2007 - 12:01 PM

Thanks Pam,

they didn't really give me any indication of what else to do besides take pain relief and ant-acids. And they just said if the pain got that severe to come back in.
I just have a follow-up with my own doctor next week.

on the upside, having now had an abdominal CT I know that my insides are normal!

Hugs,
Irene

#4 Patty

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Posted 30 April 2007 - 12:10 PM

Irene,

You sound like me a couple months ago. I ended up in the ER a couple times in one week in pain like you say you have. All tests were normal for me also. I went and saw my GI and she said that it could have been gas pain. I asked her if it could hurt that much and she said yes. Gas pain can be the worst pain a person ever feels. Knock on wood I have not had that pain since then!! I also was on major pain meds while at the hospital. They didn't take the pain away 100% but they sure did take the edge off and sometimes thats all we can ask for.

I hope that you feel better soon!
Hugs,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#5 kelowna52

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Posted 01 May 2007 - 02:58 AM

Boy I sure no where your coming from Irene. I to, get abdominal pain and sometimes yes it can be caused by gas, but I don't know, sometimes I wonder, when the pain goes around to your back and in the shoulder area. I'm glad your feeling better, hopefully the pain will not come back. Take care.

Jackie S.

#6 WestCoast1

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Posted 01 May 2007 - 04:11 AM

Jackie S.,
###### your evening sounds awful....i am glad that you have some relief today. I really hope that you find out what the pain was from.
*WestCoast*

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#7 Joel

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Posted 01 May 2007 - 05:45 AM

Irene,

My severe stomach pain turned out to be an overgrowth of bad bacteria in my small bowels due to the affect of the scleroderma. I lost 80 lbs and looked like I was going to die. My pain was so severe that they thought it was a bowel obstruction and did emergency surgery. Of course they didn't find anything and it took several months of severe pain, daily vomitting and diarrhea before the doctor's figured it out. My doctor put me on some antibiotics and that took care of the pain and I was able to eat and gain some of my weight back (I did not want to gain all of it back) . Within a day or two of starting the antibiotics I got relief and have had relief since June of 2006.

Joel

#8 kiwimum03

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Posted 01 May 2007 - 10:25 AM

Thanks for the replies,

I am off to my regular doctor today, as I was up with pain again last night and had to take strong pain killers, my right kidney area was so sore as was my upper right quadrant.

I am going to get her to write to the Gastro clinic again to see if they can hurry them up for an appointment. They said I had a 8 week wait now its almost 11 weeks, and I can't take it much more.

hugs,
Irene

#9 Guest_Sherrill_*

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Posted 01 May 2007 - 04:38 PM

Irene,

I'm so sorry you're having all that pain! I hope your general practitioner can help some more, or put you on the right track to what is causing it!

The only thing with that much pain which I have had was a kidney infection, but I should think they would have ruled that out!

When I had it I could hardly move for the pain, and as I was taking narcotic pain killers at the time I ended up taking even more! The doctor came to the house for me, and at once knew what it was. She felt round my kidney and I nearly went through the roof! So she prescribed antibiotics, and they worked very quickly indeed! This was before my renal failure, and was not related to it either.

I know how you feel about hospitals! The sights and sounds you see and hear are not pretty, particularly in the ER. Since I have had sclero I have been in hospital about 13 times I think from memory. Sometimes it was for a few days to a week. Other times overnight or for the day on a ward. And several times in the ER overnight and discharged in the morning, so I sympathize.

I learned fairly early in the piece not to minimize my pain. The first time in ER when they asked me about my pain on a scale of 1-10 I said about 4-5....... this with peritonitis, which was agonizing! So I didn't get attention very quickly. The next time it happened (5 times in all), I said about 8-9 which was true! That brought much more attention!

Were you in the City hospital ER or North Shore? I've only been to the City hospital ER as that is where the Renal Unit is.

I hope you get some relief very soon, and don't need to re-visit the ER! Let us know what the general practitioner says.

Warm hugs,

#10 Sweet

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Posted 02 May 2007 - 04:33 AM

Any news from your appointment yesterday?
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#11 kiwimum03

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Posted 02 May 2007 - 07:33 PM

Hi Sherrill and Pamela,

I saw my general practitioner yesturday, and she is contacting the Gastro Dept to see if they can speed up my appointment with them.
It kind of helps I was in the hospital, hopefully they will take it more seriously.

I had terrible pain yesturday, not as bad as monday but a good 6-7/10, and took pain killers all day. when I was in her office she commented on how comfortable I looked and I said, 'well thats just because I took more pain killers', she said well, you should be fine until you see the Gastro Doctor.
I have also had a headache for 48 hours straight, if I wake up again with it tomorrow I am going back to the doctors, I can't keep taking pain killers, my gut can't handle it.

Sherrill,
ugh, the guy in the hospital next to me.........well I had to move, I almost threw up, poor guy he was really sick.
I told them my pain was 9/10, and they were pretty good I think, mind you I was bawling continuously and they kept coming to check on me.
I think I only waited an hour to get a room, and once I got one they put a line in and gave me a stronger pain medication straight away. they had already given me something but that didn't help.
I was in Middlemore ER, its pretty good there, and we knew the nurse looking after me!

hugs,
Irene

#12 Sweet

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Posted 03 May 2007 - 04:05 AM

Hmmmmm,

I have to tell you that your doctor over there don't inspire much confidence! I wish you could get someone to take you seriously. Seems they blow things off too easily.

Hang in there.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#13 kelowna52

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Posted 03 May 2007 - 07:50 AM

Hi, Irene I sure hope your okay today. I sure know what it's like to be in pain and you can't seem to get anyone to take you seriously. Keep in touch and good luck to you.

Jackie S.