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Why Does Everything Come Up Negative?


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#1 kelowna52

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Posted 02 May 2007 - 11:24 AM

Hello all, I hope your all having a nice day. I just got back from my Ultrasound re: Gallbladder. The girl told me everything looked normal. I cannot believe I can feel this bad and everything be normal, it makes no sense. I have pains in my stomach, sternum area, my lower back left side, not to mention all of the other body pain I have on a daily basis. Plus I have to put up with this awfull reflux. Sometimes I think these doctors must think I'm crazy here. I just hope they believe me when I tell them what's going on with me. I think this is the most frustrating thing, my legs have a lot of hard raised spots on them. The Dermo. told me, oh, I think it's a combination of old age, sun damage and Scleroderma, I'm only 53 for pete's sake! I wanted him to take a biopsie of one of these raised areas on my legs, but he said I don't need to I know what it is. Well I would like some kind of proof that this is Scleroderma. I'm sorry to go on and on, but I just can't believe this. I seem to remember a few of you going through this similiar situation. Thanks for listening. If you have any suggestions I would appreciate it.

Jackie S.

P.S. How can all of my doctors in California say it's the Scleroderma doing these things to my body, but these doctors in Washington think I'm crazy, at least that's what I think there thinking. My rheumatologist in Seattle is the only one who goes with most of what my rheumatologist in L.a. told him, but he thinks this is more MCTD, so I don't know.

#2 Sweet

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Posted 02 May 2007 - 11:40 AM

Jackie - How frustrating this must be for you. On the one hand it would be nice for you to know what is causing your pain, and yet on the other hand, you probably really don't want to find out your body is defying you.

I'm really sorry. I hope that your doctors in CA can convince or help the ones in WA see there is something going on here!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#3 kelowna52

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Posted 02 May 2007 - 01:07 PM

Pamela, I can't tell you how frustrating this is. My rheumatologist in L.a. forwarded everything to my rheumatologist in Seattle. So he has all of the info from my doctor's in California, but I'm still unsure about whether or not I want to continue with my doctor's here in Bellingham. I will definately keep my rheumatologist in Seattle, but I was hoping that some of the other's could be here in Bellingham. I feel that my Gastro doctor here is definately up to speed with Sclero. he said he has other Sclero. patients and plus he seems like the type of guy that wants to get to the bottom of this. He is definately exploring all options. It's just the rheumatologist here I wasn't to sure about. If I can't get any answers soon I'll just have to see my rheumatologist in Seattle sooner than is scheduled. Thanks for your reply.

Jackie S.

#4 peanut

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Posted 02 May 2007 - 01:11 PM

Jackie,
You live in Bellingham! I went to University there! I miss it!

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#5 kelowna52

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Posted 02 May 2007 - 01:20 PM

Peanut, that is so cool, I don't really know many people here, I wish you were still here.

Jackie S.

#6 kelowna52

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Posted 02 May 2007 - 01:27 PM

Peanut I forgot to tell you, that we aren't right in Bellingham, we live 30 minutes outside of there.

Jackie S.

#7 janey

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Posted 02 May 2007 - 04:46 PM

Jackie,
Congratulations on the normal ultrasound! It's good that it didn't identify any problems, but I'm sorry that it didn't help to determine what's causing some of your problems. I know how frustrating that can be. I'm 53 also and to have a doctor blame my symptoms on "age" is infruiating. That happened with my primary care physician prior to diagnosis. Never went back.

Have you asked your GI doctor for a recommendation on a rheumatologist? Since he treats other sclero patients he might know some doctors that could be more knowledgeable and helpful.

Sorry you're having all this problems. I hope you get some satisfaction very soon.

Big Hugs,
Janey Willis
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#8 Heidi

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Posted 03 May 2007 - 03:01 AM

Hi Jackie,

I am so sorry to hear of your frustrations in trying to figure out the pain! I hate when I have something going on and the tests all come back normal.....it is so frustrating! I wish I did have some advice on what to do. Just know that you are in my thoughts.

Warm wishes,
Heidi

#9 kelowna52

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Posted 03 May 2007 - 07:41 AM

Thank you Janey and Heidi for your input. Actually Janey it's my Dermatologist here in Bellingham, that I'm frustrated with. He's the one that put the old age factor into the mix. My rheumatologist in Seattle is great, it's just that it's a 1 1/2 hours from here. I was just trying to stay local, but it's not worth it. I'm having major body pain and migraine today. Yesterday I was washing our cedar deck down. It get's a lot of moss on it from all of the rain here. Today I'm suffering big time. I just wanted to try to take my mind off of the pain, but you just can't do that, because you end up worse off. Take care all of you and have a great day.

Jackie S.