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#1 suzanne970



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Posted 03 May 2007 - 10:16 AM

Hi there Sue here from the UK. I was recently told that I have the markers of this disease in my blood but as yet not the full clinical signs. What I forgot to ask my rheumatologist was the antibodies in my blood that are fighting my immune system is it possible these are why I am constantly catching everything under the sun. I catch almost everything that is going round?

Has anyone else had these kinds of problems?

#2 peanut


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Posted 03 May 2007 - 10:37 AM

I was just telling my husband how before I was diagnosed I was sick all the time, and now that I have a diagnosis and am on an immunosuppressant I have yet to have a major cold (knock on wood). Ironic. I have no medical background, but maybe when the disease is unmanaged the body is too busy attacking itself, and with the extra collagen and inflammation it wears itself down making it more susceptible to colds and infection.


You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#3 TJ903


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Posted 03 May 2007 - 12:32 PM

Can't say that I was sick all the time. I haven't caught a cold in years. Like peanut have yet to get sick but I'm also on an immunosuppressant.

When you talk with your rheumatologist make sure he understands your concerns. Sometimes they forget that we're just regular people and not educated on all the little things that could happen.

Good luck and we look forward to hearing from you. TJ

#4 WestCoast1


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Posted 03 May 2007 - 03:35 PM

I just wanted to say Welcome Suzanne!

I am not positive but I think that the immune system is over active with autoimmune disease. Sometimes it is so active that it attacks the internal organs, tissues and skin. As for catching colds and flues, I am not too sure.



#5 janey


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Posted 03 May 2007 - 05:15 PM

Hey Sue,
Welcome to the forum! I'm glad that you've found this forum but I'm sorry you are here due to medical problems. As West Couast mentioned, with autoimmune diseases the immune system is overacting, but unfortunately, it's overactive in reverse of the way it should act. Instead of attacking unhealthy cells, it attacks healthy cells and tissuse.

For about five years prior to the onset of continuous symptoms, I got some weird illnesses (inner ear virus, shingles for a couple) that are due to a "weakened immune system". So what did I do - took supplements to boost the immune system. Didn't help obviously. Our immune system is designed to prevent our bodies from getting sick, but with autoimmune diseases that prevention is compromised.

Please let us know how your doctor appointments go and how you are doing. There is a lot of information on this site and lots of experience among the members, so do not hesitate to ask.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#6 Sweet


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Posted 04 May 2007 - 04:49 AM

Hi Sue,

Welcome to the Sclero Forums. We are so happy to have you here, but I'm sorry it's due to you being ill. You will find a lot of information, support and friendship here, and we all look forward to knowing you better.

I can't say I catch anything more frequently, but when I do get a cold etc it never stays just that -it progresses into some sort of infection, e.g. sinus infection, pneumonia etc that requires more than the normal treatment.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#7 susie54


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Posted 04 May 2007 - 07:16 AM

Hi Sue ,

Welcome and sorry you are dealing with alot. You have come to a good place for information and support. When I went on the immunosupressant I thought I would be sick all the time but actually I get sick with colds less than I used to. But when I do get them they are hard to get rid of and always are complicated with secondary infections. I hope the immunosuppressant gives you relief soon. It takes awhile to kick in. Susie54