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Posted 03 May 2007 - 09:53 PM

Hello everyone!

I thought a lot about joining this forum. I read it for a quite sometime. As you all see I decided to join. Let me introduce myself. My name is Milica, I am 27 years old and I live in Serbia. I have scleroderma for 16 years.

I was diagnosed with sclero in 1991 (of course I had many bad diagnoses before), and hospitalized in january 1992. I couldn’t walk, sit, I was very sick. I have skin changes everywhere, except my hands and face. As years went by I had a lot of health problems that were related to sclero. I was negative for ANA for many years and I didn’t visit doctor often. Lately I have some problems again, and I’m going to check everything.

I live with this disease for quite sometime and a lot of things you wrote about, I experienced. I’m sorry that so many people have this problem, but I’m glad that we can talk to each other and exchange experiences.

Thank you all for listening

#2 TJ903


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Posted 04 May 2007 - 04:13 AM

Welcome Milica,

Sounds like you could be one of our experienced participants. So sorry you have had to deal with this for such a long time. My sclero is the diffuse kind (diagnosed Jan. '07). I've a Rodnan score of 23, my esophogus has already been dialated, I've got interstitial lung disease, and now my heart and kidneys are being affected.

What kind of sclero do you have if I may ask? Are the treatments in Serbia comparable to here in the US? I've got tons of issues with my insurance company, is your healthcare state run?

Sorry for so many questions, I just find it fascinating that I'm talking with someone from across the sea. We've got people from all over the world, but I don't know them personally.

Anywas welcome!

#3 Sweet


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Posted 04 May 2007 - 04:38 AM

Hi Milica ~

Welcome to the Sclero Forums! I'm really sorry you are here due to scleroderma. You will find a lot of information, support and friendship here.

I look forward to knowing you better.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#4 janey


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Posted 04 May 2007 - 06:32 AM

Welcome to the forum Darlin'. Having dealt with this disease for 16 years, you probably have a lot of experiences to share. That number of years is also very encouraging for those with recent diagnosis.

I'm sorry you are starting to developed new problems. Please share more about yourself and some of your symptoms. I too am interested in your answers to TJ's questions.

Please let us know what is happening and what you find out from your doctors. Again, Welcome. I trust you will find participation in this forum as extremely helpful.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#5 Shelley Ensz

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Posted 04 May 2007 - 12:05 PM

Hi Milica,

Welcome to Sclero Forums! We're delighted to have you join us, and look forward to hearing more from you.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#6 WestCoast1


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Posted 04 May 2007 - 12:36 PM

Welcome to the forum. I am so glad that you dicided to post.

I am sorry to hear that you have scleroderma. You are so young and it sounds like you have gone through quite alot. I am glad to hear that you are willing to tackle this illness by seeing the Dr. and learning more about it.