Lines Around My Mouth
Posted 26 October 2006 - 02:25 PM
Posted 26 October 2006 - 03:12 PM
I too don't have any skin hardening on my face, but I have a lot of vertical lines around my mouth. I have often wondered if it was aging or if it was the "purse" mouth described by Vee. I don't think my mouth is smaller, but I am not really sure.
Sorry I wasn't able to help more.
Posted 26 October 2006 - 04:08 PM
I have microstomia (big word for small mouth) and I have one particular deep vertical line above the left side of my upper lip. It kinda looks like a scar almost.
I can tell my mouth has gotten smaller just by looking and I see a big difference when I look at photos of me 10 years ago.
My rheumatologist says its caused by tightening of the tendons in my face.
Its hard for me to look in the mirror. I try not to.
You are gorgeous in your photo!
Posted 26 October 2006 - 10:35 PM
Posted 26 October 2006 - 10:38 PM
I believe the lines and deep wrinkles around my mouth are scleroderma related. I have CREST and over the years I have had severe facial, jaw pain from TMJ, and some wicked painful nerve in the cheek. When I was stressed and/or in pain I use to clench my teeth.
I eventually got dentures -had all my teeth removed due to the gum pain, cracked and crumbling teeth etc., That did solve most of my facial pain, but the scleroderma seems to do a number on some of us in the mouth area. I don't like wearing my dentures- they feel so heavy and the dentist says it's because my mouth/jaw muscles have weaken and shrunk over the years. I have to keep getting them adjusted. I only wear my dentures when I go out .
I don't miss the facial pain etc., that I had before I got dentures, but I do miss being able to eat some foods which I cannot eat with or without them.
The other thing that happens is my jaw locks sometimes now and I think that's part of SD- like if we sit or don't move for a length of time we get stiff..I live alone and don't talk much so my jaw gets stiff. To solve that problem I talk to my cat more LOL!
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International Scleroderma Network
Posted 27 October 2006 - 03:09 AM
Posted 27 October 2006 - 03:10 AM
Posted 29 October 2006 - 02:17 PM
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International Scleroderma Network (ISN)
Posted 30 October 2006 - 08:40 AM
It sure isn't much fun...trying to put lipstick on and it just doesn't look the way it used to . My skin became tight on my face at the onset of the disease... CREST. Dental work is no picnic either, is it ?
Sheryl, I too, have trigeminal neuralgia... finally getting the diagnosis two years ago after trying to deal with the pain for two years, the dr and I thinking it was a "sinus infection" (yet the pain was always on the left side of my face). I have great empathy for you, as it's very painful. I take Neurontin to treat it, but take it 3xdaily., which helps greatly.
I also wish there was something that could be done about the thin lips, the vertical lines, etc.
(Hope all of you are staying warm... we got snow here this a m... not ready for that yet).
Posted 30 October 2006 - 08:49 AM