Jump to content

Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Lines Around My Mouth

  • Please log in to reply
9 replies to this topic

#1 Member


    Senior Bronze Member

  • Members
  • PipPipPip
  • 39 posts

Posted 26 October 2006 - 02:25 PM

Who else has lines around their mouth and chin area? From my nose down, I have so many wrinkles and deep lines. I have no idea if it's from Scleroderma or just aging and the sun. My mouth has gotten a tad smaller. Would that cause the lines? I have sine scleroderman, so it's not hardening of my skin that is causing them.

#2 Heidi


    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 573 posts

Posted 26 October 2006 - 03:12 PM

Hi Jennifer,

I too don't have any skin hardening on my face, but I have a lot of vertical lines around my mouth. I have often wondered if it was aging or if it was the "purse" mouth described by Vee. I don't think my mouth is smaller, but I am not really sure.

Sorry I wasn't able to help more.

Warm wishes,

#3 barefut


    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 26 October 2006 - 04:08 PM

Hi Jennifer,

I have microstomia (big word for small mouth) and I have one particular deep vertical line above the left side of my upper lip. It kinda looks like a scar almost.

I can tell my mouth has gotten smaller just by looking :mellow: and I see a big difference when I look at photos of me 10 years ago.

My rheumatologist says its caused by tightening of the tendons in my face.

Its hard for me to look in the mirror. I try not to.

You are gorgeous in your photo!

#4 whirlway


    Silver Member

  • Members
  • PipPipPipPip
  • 104 posts
  • Location:Washington State

Posted 26 October 2006 - 10:35 PM

I also have those deep vertical lines , just thought it was from aging. I do know that my mouth is getting smaller, because my dentist comments on it every time I go see him. He is a great guy, he always stops and massages my jaw when he can see that I am in so much pain from trying to hold my mouth open for so long.

#5 Judy Devlin

Judy Devlin

    Silver Member

  • Members
  • PipPipPipPip
  • 214 posts

Posted 26 October 2006 - 10:38 PM

Hi Jennifer,
I believe the lines and deep wrinkles around my mouth are scleroderma related. I have CREST and over the years I have had severe facial, jaw pain from TMJ, and some wicked painful nerve in the cheek. When I was stressed and/or in pain I use to clench my teeth.

I eventually got dentures -had all my teeth removed due to the gum pain, cracked and crumbling teeth etc., That did solve most of my facial pain, but the scleroderma seems to do a number on some of us in the mouth area. I don't like wearing my dentures- they feel so heavy and the dentist says it's because my mouth/jaw muscles have weaken and shrunk over the years. I have to keep getting them adjusted. I only wear my dentures when I go out .

I don't miss the facial pain etc., that I had before I got dentures, but I do miss being able to eat some foods which I cannot eat with or without them.

The other thing that happens is my jaw locks sometimes now and I think that's part of SD- like if we sit or don't move for a length of time we get stiff..I live alone and don't talk much so my jaw gets stiff. To solve that problem I talk to my cat more LOL!

Take care,
There are over 1,000 patient and caregiver stories on the main Sclero.org site.
Warm regards,

Judy Devlin
ISN Archive Committee Chair
International Scleroderma Network

#6 Sally


    Bronze Member

  • Members
  • PipPip
  • 11 posts
  • Location:Jupiter, Fl.

Posted 27 October 2006 - 03:09 AM

Hi Jennifer, I also have absolutely no skin involment, but do have the deep wrinkles around the mouth and chin. Also the shape of my mouth and lips are so dramaticaly changed, I honestly don't know if this is from the Scleroderma or not. If you get any info on it please let me know, Good luck. Sally

#7 miocean


    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 925 posts
  • Location:NJ

Posted 27 October 2006 - 03:10 AM

My mouth got smaller when I first came down with the disease but it is normal size again. I do have vertical lines around my mouth, it almost looks like I was a smoker. My skin is getting softer for which I am glad.
ISN Artist

#8 Sheryl


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,029 posts
  • Location:Brooklyn, Michigan

Posted 29 October 2006 - 02:17 PM

I also have the deep lines above and below my lips. Also, my lips are thinning. Especially, my upper lip. It is very thin now. Forget lipstick. It looks silly. I haven't noticed my nose area getting thinner. I am getting the little red lines around the nose area though. I've had severe teeth and facial pain on both sides of my mouth on the upper part I now have two caps because the nerves had to be destroyed in those teeth. I now wear a mouth guard and was diagnosed with TMJ and I have had Triage Minal Neuralgia a few times lately. Spelling may be wrong. Don't know what can be done to stop the facial pain. It happens so quickly and goes away within a minute or two. A tinge of pain remains for several hours. My dentist said that by wearing the mouth guard it might help protect my teeth. And possibly keep my lips from shrinking much more. We will see. Sheryl
Strength and Warmth,

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)

#9 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 30 October 2006 - 08:40 AM

It sure isn't much fun...trying to put lipstick on and it just doesn't look the way it used to <_< . My skin became tight on my face at the onset of the disease... CREST. Dental work is no picnic either, is it :unsure: ?
Sheryl, I too, have trigeminal neuralgia... finally getting the diagnosis two years ago after trying to deal with the pain for two years, the dr and I thinking it was a "sinus infection" (yet the pain was always on the left side of my face). I have great empathy for you, as it's very painful. I take Neurontin to treat it, but take it 3xdaily., which helps greatly.
I also wish there was something that could be done about the thin lips, the vertical lines, etc.
(Hope all of you are staying warm... we got snow here this a m... not ready for that yet).
Hugs, Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#10 susie54


    Silver Member

  • Members
  • PipPipPipPip
  • 259 posts

Posted 30 October 2006 - 08:49 AM

I also have had many lines around my mouth after seven years of this. My lips are defintely smaller. Jenifer, you sound alot like me on nerve related pain and neuralgia in the face. It caused so much teeth pain, I ended up pulling the tooth out just to relieve the nerve pain. It did help but I am not crazy about the bottom partial I wear now. I did have trigeminal nerve pain also with TMJ. Thankfully it does not last long as some of you have suffered. Susie54