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Biomarker for Diffuse Scleroderma skin has been discovered!


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A Friend Of Mine Passed Away Last Night .


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17 replies to this topic

#1 Sam

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Posted 08 May 2007 - 06:49 AM

Her name is Dorothy and she was diagnosis with scleroderma 2 years ago. I don't have any details of what happen yet but I am taking this very hard. I met her at a group meeting and she was so scared and was so glad she met me and others group members. It helped her meeting other with scleroderma and for her to know she was not alone. Well I jsut wanted to share this with you all and please keep her family in your thoughts. We are surely going to miss her dearly. At least I know I am. Sam
Sam

#2 Shelley Ensz

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Posted 08 May 2007 - 07:13 AM

Hi Sam,

I'm very sorry to hear that. My thoughts are with you and all those who cared for her.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 TJ903

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Posted 08 May 2007 - 07:19 AM

Thank you for sharing your thoughts and I'll keep her family in my thoughts and you as well. TJ

#4 Sweet

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Posted 08 May 2007 - 08:58 AM

Oh Sam,

I'm so sorry. You and the family will be in my thoughts.
Warm and gentle hugs,

Pamela
ISN Support Specialist
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#5 Clementine

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Posted 08 May 2007 - 09:15 AM

Sam,
I am really sorry to hear about Dorothy. Thinking of you.
Jennifer

#6 janey

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Posted 08 May 2007 - 09:45 AM

Sam,
My thoughts and hugs are with you and Dorothy's family. My sympathies, Darlin'

Big Hugs,
Janey

#7 kelowna52

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Posted 08 May 2007 - 12:53 PM

Sam, I am so very sorry to hear about your friend Dorothy. It was wonderfull that she was able to meet with other's that have Scleroderma. It's terrible that this desease took her from you, so soon. I will be thinking of you and also Dorothy's family, and I will have you all in my thoughts. Take care.

Jackie S.

#8 WestCoast1

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Posted 08 May 2007 - 01:25 PM

Sam,
I am so sorry to hear about your friend Dorothy. My thoughts will be with you and her family.

Hugs~
*WestCoast*

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#9 sueinvabeach

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Posted 08 May 2007 - 01:46 PM

I am so very sorry to hear of your loss. My thoughts are with you and the family.

Hugs.
Sue
Asthma 1998, Diabetes 2007, Morphea 2007, Fibromyalgia 2007.

#10 Sam

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Posted 08 May 2007 - 02:16 PM

I just got off the phone with Ron. He said she was having shortness of breath and that was going on for awhile. Last month when I had talked to him he had mentioned that and also said that all the test they had ran came back ok. So he with the fibrous being there that is what cause her shortness of breath but what made her go was her heart just stop. She has had a rough 18 months. Going through kidney dylaisis and being in and out of the hospital.

Well I willl be going to Michigan on Thursday for the visitation. I am going to start cooking and take some food up there to help out.

Thanks everyone for your thoughts. I really do appreciate it. Sam
Sam

#11 Margaret

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Posted 08 May 2007 - 02:55 PM

Sam ,

This is what I don't understand about this disease. There's no 'rhyme or reason' for the progression!!! Did she have symptoms longer than 2 years or did it just rear it's ugly head 2 years ago and now she has died? Was she being treated medically? I am soooooooo sorry for you and her husband. Things like this scare me because Gareth was just diagnosed last fall.......no one knows the progression of their disease!!! So many of you have had it for 10, 20, or more years and, then, there are people who last 2 years.

Take care, Everyone.
Margaret

#12 emmie

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Posted 08 May 2007 - 03:56 PM

Sam,

I'm very sorry about your friend, Dorothy. I'm sure her family will appreciate the food you are bringing. I will keep her family and you and all of your group in my thoughts. Take care.

xoxo emmie

#13 Guest_Sherrill_*

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Posted 08 May 2007 - 06:33 PM

Sam,

So sorry to hear your sad news. None of us know how long we have, but it was sad she passed so quickly. I have had diffuse scleroderma for over 10 years now, though nobody thought I would last that long. I've also had kidney dialysis for over 6 years, so no one can say........

I'll be thinking of you.

Warm hugs,

#14 jefa

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Posted 08 May 2007 - 09:00 PM

Sam, I am so sorry to hear this news. My thoughts are with you and Dorothy's family. Please have a safe trip
Warm wishes,
Jefa

Carrie Maddoux
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#15 Patty

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Posted 09 May 2007 - 12:22 AM

(((( Sam )))) I am so sorry to hear the news of your friends passing. I will keep you and her family in my thoughts.
Hugs,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#16 Sam

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Posted 09 May 2007 - 02:50 AM

Thanks everyone !! Sam
Sam

#17 kramer57

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Posted 09 May 2007 - 03:17 AM

Sam, I'm sorry to hear about your friend Dorothy. My thoughts are with you and her family. Have a safe trip to Michigan.
Hugs,
Karen

#18 ssecnirp406

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Posted 11 May 2007 - 07:23 PM

I am so sorry to hear about your friends passing. You and her family in my thoughts.