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Localised Scleroderma


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#1 gordon

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Posted 10 May 2007 - 12:19 PM

Hello,

 

My name is Gordon. I'm 45 and from the UK. I found this site today and have spent most of the day reading peoples stories,and experiences,it has been quite something,i myself have not yet had a full diagnosis,im still after 3 weeks waiting for skin biopsy results,i have all the signs and pains of this condition which started with a skin scaring on my right arm,then a very large bruise like wound on my leg,my local general practitioner had no idea what the problem was and I was left with no idea what was going on,i was eventualy sent to a consultant who gave me some idea and sent me for the biopsy since her diagnosis my condition has got worse both legs all up my trunk both sides slightly across the chest and down both arms,i would like to say I havent been able to ask any body about this condition as I am the second case my consultant has seen in 13 years,its the not knowing that has been frightning,thanks for a website like yours I feel a little more at ease although I have a long way to go,can somebody tell me if this condition affects the protiens in the blood,as ive been told I have a problem there sorry to go on.

 

Many thanks,

 

Gordon



#2 jefa

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Posted 10 May 2007 - 09:23 PM

Welcome to the Forums, Gordon. Glad you found us, but sorry to hear about your illness. I am also from the UK and understand the frustrations of waiting for a proper diagnosis and the length of time it takes to get test results back. Do let us know when you get your biopsy results. Hopefully you will be able to find the information you are looking for in this page on Autoantibodies in Scleroderma. The section called IgG Antibodies (about 3/4 of the way down the page) should be useful.


Warm wishes,
Jefa

Carrie Maddoux
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#3 Heidi

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Posted 11 May 2007 - 02:15 AM

Hi Gordon,

Welcome to the forums! I am so glad you found us and have been reading and getting lots of information. I am just sorry you are here because of your suspicions of having scleroderma. Please do let us know what the skin biopsy shows! I am sure you will find everyone here very warm, supportive, and encouraging. And there is so much information here. So, just ask away.

Again, welcome!

Warm wishes,

 

Heidi



#4 janey

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Posted 11 May 2007 - 05:35 AM

Gordon,

 

Welcome! I'm sorry that you are here due to your current health problems and all the visible skin issues. I'm glad that your doctors have done a skin biopsy to try to narrow this done and possibly come up with a diagnosis of some kind. We've all been through the "not knowing phase" so we can relate to what you are going through right now. Hopefully you get your answers quickly.

Jefa has provided a great link that I'll add a little personal experience to. Even though I've never had my blood tested for its amount of IgG antibodies, one of my treatments is a monthly infusion of IgG antibodies. I have both systemic scleroderma and polymyositis and this infusion helps me tremendously. My rheumatologist said that it's always a guessing game as to who benefits and who doesn't which tells me that for some people their IgG are fine.

Anyhow, please let us know the results of your biopsy. I hope it turns out to be something easily treatable. You'll be in our thoughts.


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#5 Sweet

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Posted 11 May 2007 - 06:17 AM

Hi Gordon,

Welcome to the Sclero Forums. I'm sorry you have a pending diagnosis of Sclero. I'm sure glad you found us!

I look forward to knowing you better.
Warm and gentle hugs,

Pamela
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#6 scampie5

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Posted 11 May 2007 - 08:04 AM

Hi Gordon glad you found this site I also live in the UK and like yourself only the second person they have had with this condition , I have both Diffuse and Crest but with out the C part you will find this site is so friendly and helpful and will get good support take care Lynn

#7 WestCoast1

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Posted 11 May 2007 - 12:59 PM

Welcome Gordon,

 

I am glad that you decided to post about your experience. I am also sorry to hear that you might have a type of Scleroderma. Please keep us updated. We are all here to help each other.


*WestCoast*

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