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Welcome Matilde Acosta: Isn Support Group Leader For Venezuela

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#1 LisaBulman


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Posted 14 May 2007 - 12:01 AM

Matilde Acosta: ISN Support Group Leader for Venezuela. I have been a patient of systemic scleroderma for 9 years. Nowadays I run the Venezuela Scleroderma Association, an organization of my inspiration. I wanted to do something since I could identify with the loneliness that a patient feels when they know their diagnosis when they find out that there is no cure, and see that some doctors have no interest in working with them since they are a minority and there is no specific medication for their illness. Posted 05-10-07. (Also see: Venezuela Scleroderma Association)
Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)