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Biomarker for Diffuse Scleroderma skin has been discovered!


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Repeat Blood Testing


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#1 ErinF

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Posted 14 May 2007 - 04:20 AM

Fantastic news!!! I had my first repeat blood testing after the ones in February that came back positive. My Scl 70 and Ku were negative!!!! My thyroid peroxidase had gone up even just since February so it looks like I'll be starting Synthroid...but I'm so thrilled about the other two I could just cry. The CT scan showed inflammatory arthritis of the spine and hips so I find out on June 4th what the "treatment plan" (doc's words!) will be. I'm so relieved and also think it's so fortuitous that being told I might have SSc is what led to someone finally figuring out what's causing all my back and hip pain. It's such a relief to know that I'm not crazy or lazy or just massively out of shape. We're still going to keep a close eye on everything and now that I'm under the care of a rheumatologist, I feel like whatever else comes down the pike will be caught early and treated well.

What a terrific way to start a Monday!

ErinF

#2 jefa

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Posted 14 May 2007 - 04:27 AM

Terrific news, Erin about the 'scary' tests. I am sorry you are having to deal with the inflammatory arthritis, though. I can tell you it's not much fun. You are lucky to be working with a good medical team. Hope they can help you feel better soon.
Warm wishes,
Jefa

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#3 susie54

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Posted 14 May 2007 - 06:34 AM

Great news Erin!!!!!!!!Nice way to start the week. Hope the meds work out for the back. Susie54

#4 LisaBulman

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Posted 14 May 2007 - 06:50 AM

Erin,
That's fantastic!!!! I am so happy for you. Please let us know what your treatment plan will be when you go back to the dr. For now, enjoy your news!

Hugs,
Lisa
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#5 nan

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Posted 14 May 2007 - 08:55 AM

Erin,
That's awesome news! I am so happy for you. I hope that the treatment they decide on for your back and hips works well.
Take Care!
Nan

#6 Sweet

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Posted 14 May 2007 - 11:05 AM

Erin, that is great!!! Wow, I can't even imagine how you must feel right now!

I would be very interested to hear what the treatment plan ends up being for your back and hips. It may help others here to know about it.
Warm and gentle hugs,

Pamela
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#7 Jessica

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Posted 14 May 2007 - 02:08 PM

Wow, that is awesome news! I can't believe you can test positive for scl-70 and then negative the next. That is really amazing. Did the doctors explain how that could be going from positive to negative?

#8 Tonya-Georgia

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Posted 21 August 2009 - 09:48 AM

Hi Everyone,
I also got two positive scl-70 over the last two years and 3 negative scl-70. Undiagnosised???? Could this be prescleroderma? My rheumatologist says I do not have scleroderma. I do have weird symptoms sometimes and some fatigue. I have 5 year old twins that wear me out everyday. They sleep on me at night and I don't get enough sleep. I am also a health care worker.
I have not been feeling great the past few weeks, so I started reading about diffused scleroderma AGAIN and got myself in the dumps.
Yesterday after I dropped the kids off, I went to the Any Lab Test place and just to make me feel better I had them run the Scl-70, C-3 complement because mine is a few points low, and a thyroid panel. Two years ago they did find just 30 extra cc of fluid on the pericardium, but just because I went in freaking out about the first positive.
I know I should not play my own doctor, but it is just frustrating that I have always took good care of myself, exercised, eat organic and great food.
Now my body is beating it self up. It just does not make sense. I have NO control over my body.
Okay, just have a weak moment and needed to vent.
I could be worse off. Hope everyone is doing good today! TonyainGeorgia.

#9 Sweet

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Posted 21 August 2009 - 11:07 AM

Hi Erin,

That is so great. My heart jumps for joy for you. I'm sorry about your back though. I suffer with back and hip pain as well, so I can sympathize with what you are going through.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)