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Atrophoderma Of Pasini And Pierini

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#1 phar3ona



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Posted 15 May 2007 - 02:28 AM

I have Atrophoderma of Pasini and Pierini several years ago ..which resulted in several pigmented areas in my trunk back and arms .. I have tried antibiotics and creams for bleaching .. A cream is working but very slow and it doesn't completely removes the colour.. I read on the net about Q switched laser treatments and I went to see my doctor but he didn't assure me and he is not even sure if it is going to come back after treatment as he believes this disease is very rare.


Did anybody try this therapy before? If yes kindly give me info about results and complications if any and if you have any idea if it comes back again after therapy please tell me as it is a very costly treatment . Also I would like to know if the pigmentation will totally disappear or it will just lighten? Thanks.

#2 janey


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Posted 15 May 2007 - 03:49 AM



Welcome to the forum! Yes, you do have a strange one. Never heard of us until now, but I did find that we have a short page on Antrophoderma of Pasini and Pierinihere are ISN. The first link is to eMedicine that does mention the Q laser treatment:

"However, improvements were shown with the use of a Q-switched laser. Arpey and coworkers believe that they were able to improve the clinical appearance of lesions in 3 treatments. The improvement was suggested to be caused by a mechanism that reduced the number, size, and volume of melanosomes."

I read that this is a morphea "like" illness, so maybe some of the treatments are similar. I did find one article where a pulsed dye laser was used for morphea.

Hope you find something that helps you. Looks like you've tried quite a bit. Sorry I can provide any personal experience, but maybe someone else can.

Janey Willis
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#3 WestCoast1


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Posted 15 May 2007 - 04:10 AM

Welcome Par3ona,


I am sorry to hear that you are dealing with this illness. The link from from Janey looks like a great place to start.

I am glad you found this forum!



#4 Sweet


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Posted 15 May 2007 - 05:11 AM

Hi Phar3ona,

Welcome to the sclero forums. I am so very happy you have found us, but I'm sure sorry it's due to you having Atrophoderma of Pasisni and Pierini.

I don't have any personal experience with this, but I see Janey gave you a link that I hope you find helpful. I also hope others with experience will chime in and give you the help needed. Again, welcome!
Warm and gentle hugs,

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#5 jefa


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Posted 16 May 2007 - 06:28 PM

Welcome to the Forums, Phar3ona. Glad you found us. As you can see the members here are very helpful with information. I hope the information is useful to you and that you will keep us posted on your decision for treatment.
Warm wishes,

Carrie Maddoux
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#6 pinkism



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Posted 12 May 2015 - 03:23 AM

Hi I have this too, diagnosed when I was a child and I'm 33 now. I just accept it. I have patches right around my trunk and one on my neck.

#7 Joelf


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Posted 12 May 2015 - 08:39 AM

Hi Pinkism,


Welcome to these forums!


I'm sorry to hear that you've been suffering with Atrophoderma of Pasini and Pierini and have had to deal with it for so many years. It is similar to Morphea Scleroderma.


Are you under the treatment of a rheumatologist who is familiar with this condition and have you had any successful treatment?


Kind regards,

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#8 Shelley Ensz

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Posted 12 May 2015 - 11:35 AM

Hi Pinkism,


Welcome to Sclero Forums!  I'm very glad you've found us, and I hope you stick around. 


As you know, Atrophoderma of Pasisni and Pierini is a very rare disease, and we don't have very much information on it yet.  We serve people with scleroderma and related diseases, like yours.  We are sort of one big rare disease family around here.


I'd most especially like to encourage you to post symptom photos in our Sclero Forums Gallery.  Please label them well, so people know what it is, and let us know about it in this thread. It really will help raise awareness, and let others know they are not alone, as well.



Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.

#9 Amanda Thorpe

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Posted 14 May 2015 - 12:06 PM

Hello Pinkism


Just came along to sat welcome and I love your username! It's hard having a rare disease because no one knows what you're talking about but you win the "what's it called, how do you say that!" trophy for sure!


Take care.

Amanda Thorpe
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