Newbie From Oz - Gi Tract Surgery
Posted 15 May 2007 - 03:45 AM
I am fairly new to scleroderma and have only had a diagnosis for a couple of months so I still have a lot to learn.
Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive
a little bent and broken and almost beyond repair!
Posted 15 May 2007 - 04:42 AM
Welcome to the Forum! I'm Karen, 36 from Michigan, U.S. and I was diagnosed with Scleroderma this year, in January. I don't have the exact same thing as you, but I think part of my stomach surgery is similar to what you are describing.
I have achalasia: no motility of the esophagus and the muscle between my stomach & esophagus was clenched shut. So in 1998 they cut the muscle at the top of the stomach to allow food to go through easier, and to prevent reflux they did a partial Nissan Fundoplication - they wrapped a part of my stomach around the sphincter to reinforce it, to help keep food in the stomach & prevent reflux. I think that part of it sounds like what you said about having the sphincter reinforced.
The surgery helped my abillity to swallow, I've gained weight back that I had lost from not being able to swallow. It feels like my stomach is smaller - I can't eat as much at a time, get full easier, but I still managed to gain weight . I still have a lot of reflux though. Hope this helps.
Posted 15 May 2007 - 05:01 AM
Welcome to the sclero forums. I'm sure sorry you have recently been diagnosed with Scleroderma. You will find this site has a wealth of information and support and you'll find some great friends here.
I look forward to knowing you better.
Posted 15 May 2007 - 05:41 AM
It's great to see you on the forum. I promise promise you will learn so much here.
Your MS friend,
Posted 15 May 2007 - 10:28 AM
Karen, I can see how your stomach would feel smaller as part of it is used as the supporting tissue to give the lower esophageal sphincter (LES) a better fit in the opening of the diaphragm, basically giving it something to resist against. This PubMed article in our files does report good results on the fundoplication procedure with motility issues. I hope both of you keep us posted on your progress.
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host
International Scleroderma Network (ISN)
Posted 15 May 2007 - 01:26 PM
Welcome to the Sclero forums. I am sorry that you have scleroderma. I think that learning as much as you can about a procedure and your illness before you get surgery is so important.