Jump to content


Have you seen Barefut's latest blog: "My Scleroderma and Depression Stole My Son." yet? Do visit and read it.....it's terrific!!

Photo

Tight Feet And Legs


  • Please log in to reply
8 replies to this topic

#1 Patty

Patty

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 318 posts
  • Location:N.W. Connecticut

Posted 17 May 2007 - 01:14 AM

OK I know I am on a roll today with questions. I have been feeling tightness in the back on my ankles and the bottoms of my feet. Things on shelves in my house I once could reach I no longer can due to the tightness in my ankles. Does sclerodewrma effect tendons in ankles and feet and also is this normal for a person with limited or is it seen more in diffuse? I am going to UCONN today to see DR Rothfield but I am not sure I will get a chance to ask her theses questions as I am going in for my breathing......... wish me luck!

Hugs,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#2 CraigR

CraigR

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 683 posts
  • Location:Escondido (near San Diego), Ca

Posted 21 May 2007 - 11:30 AM

Muscles in my lower legs have become tighter - most noticeably in the back of my leg (hamstring). When walking up an incline, my heels may not touch because the muscles have become so tight and inflexible. No amount of physical therapy seems to have a lasting effect. Muscles in my toes ahve also lost their elasticity.

Craig

#3 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,940 posts

Posted 21 May 2007 - 12:50 PM

Hi Patty,

Not sure how I missed this post, but guess I did. I do have increased tightness in the backs of my legs. Not on my feet though. I stretch several times a week if not daily to keep things moving. I noticed if I miss a week of this my mobility is really decreased, so I try to keep up with it.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#4 Patty

Patty

    Senior Silver Member

  • Topic Starter
  • Members
  • PipPipPipPipPip
  • 318 posts
  • Location:N.W. Connecticut

Posted 21 May 2007 - 12:58 PM

hey Pam,

I talked to the intern the other day and he showed me some stretching I can do to try to help it out. I am already short( 5'1") so now to have this happen really is a pain. I have a hard time now just getting the laundry out of the washer because I have no elastic left in my leg tendons it feels like. Oh if its not one thing its another for me lately. It sure feels like I have taken a huge step backward in my health real fast. I am so lucky that I have found this forum and all you wonderful helpful people!

Hugs,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#5 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,940 posts

Posted 21 May 2007 - 02:23 PM

Patty,

I'm glad you found some stretches to do. I know how discouraging this disease/diseases can be. Seems they clump together and just about the time you think things are going better then about 10 new things pop up. Hang in there, we're here for ya.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 Elehos

Elehos

    Silver Member

  • Members
  • PipPipPipPip
  • 206 posts
  • Location:Upstate NY

Posted 21 May 2007 - 02:30 PM

Oh, I'd never make it without large daily doses of stretching! It's like trying to stretch plastic in a way since the effect isn't as long lived as it would be for a "normal" body, but keep at it and it will help. My fingers are actually straightening more these days!

#7 WestCoast1

WestCoast1

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 568 posts

Posted 21 May 2007 - 03:06 PM

Patty,
I am so sorry to hear about your tendons feeling tight. I can hear the frustration in your post, and I hope that you find some relief soon. Sometimes when things get tough with this illness, I just say that "Tomorow will be a better day". I wish that for you.

Hang in there.
*WestCoast*

********

#8 barefut

barefut

    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,189 posts
  • Location:NW Washington

Posted 21 May 2007 - 04:22 PM

Isn't it maddening that we have to stretch 10x that of a normal just to try to come close to the flexibility of a normal?

If I stretched this much without scleroderma, I could be a gymnast by now! :blink:

#9 Sheryl

Sheryl

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,133 posts
  • Location:Brooklyn, Michigan

Posted 22 May 2007 - 12:13 AM

Patty, I have limited and I get the tightening in my tendons and muscles in my legs and feet. I get pains similar to charlie horses not only in my calves but across the middle of my foot and across the pad under my toes. You can't rub the pain away. It only brings on more attacks. I get severe pain for a couple days at a time in the middle of the left calf. I also have the shinny skin on my ankle areas about 7 inches high up the leg. It is still pliable but different. Sheryl
Strength and Warmth,
Sheryl

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)