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Going To Dr And Demanding Off The Prednnisone!

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#1 Patty


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Posted 17 May 2007 - 03:07 AM

OK everyone this should be the end to the prednisone drama I have been going through. I go this afternoon and I may leave with no Sclero Dr but I will leave with my pride back! I want off the prednisone because its causing me more harm then good so its time to try something else. When my BP goes up to 154/115 I know I need to make some serious changes in my life. I will let you all know how it goes. Wish me luck!!


If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#2 Sweet


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Posted 17 May 2007 - 03:19 AM

Hi Patty,

This is certainly your choice! I'll be thinking about you, please let us know how it goes.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#3 Clementine


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Posted 17 May 2007 - 03:38 AM

Good luck Patty. I thought I read a while ago that Prednisone is not really effective for Scleroderma, as previously thought. I could be totally wrong.
It's your body, your choice. Good luck and let us know how it goes.

#4 WestCoast1


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Posted 17 May 2007 - 04:17 AM

Hello there Patty,
I really hope that your appointment goes smoothly today. It is just as important for the Dr. to respect your medical needs as it is for you to recieve the right treatment. Let us know how things turn out for you.

Here is an interesting link to the ISN that coveres some pros and cons with Glucocorticoids treatment: