Posted 17 May 2007 - 04:27 AM
I already have skin tightening on my shins - Does anyone know what these are related to. Thanks
Posted 17 May 2007 - 05:21 AM
Posted 17 May 2007 - 06:00 AM
Posted 17 May 2007 - 06:51 AM
I too break out in a rash if I am exposed to the sun......right now my hands are covered with dry, raised scaly patches and my neck is just clearing up from little tiny bumps (when I get it on my neck, I can feel it more then see it and it is very itchy). It happens even when I am barely exposed to the sun (e.g., driving in my car and having the sun come through the window). I have always wondered if it was Lupus OR a drug reaction as I know it happens with Plaquenil and I take Plaquenil. So, my question to you, is since you have both Lupus and take Plaquenil, how do you know which is causing the rash? Maybe it doesn't' even matter...
Posted 17 May 2007 - 08:10 AM
Thats a good question. Every time I've had the rash I went to see my rheumatologist and he stated it was due to Lupus.....so that is what I've gone by.
Sounds like you have it much worse than me, I can actually be in the sun for awhile, I just have to be careful.
Posted 17 May 2007 - 08:53 AM
Posted 17 May 2007 - 09:13 AM
I'm really sorry you are dealing with all of this. I can hear the frustration and sadness in your words. Please talk with your doctor about the rash and see if there is anything he/she can do for you.
Hang in there my friend.
Posted 17 May 2007 - 11:02 AM
I noticed that you mentioned your rash has some purple spots to it. I have Morphea Scleroderma as well and what your describing sounds like Morphea to me. You can check out Morphea on this website. Good luck to you.
Posted 17 May 2007 - 12:34 PM
There are times when the symptoms take off like the wind, then you can get sudden breaks. This year was a doozey, but I've had other CTD's for decades too, so it seems that I've beaten the odds by still being around so long. Medically untreated to boot! Last summer it seemed that there were more symptoms than brain cells to remember them, with tons of nuisance type things on top of everything else going on, and although I'm "sicker" in a sense this year, I don't feel as drained. Odd. Each day, week, and even year can be different, so please don't lose heart when symptoms speed up. Sorry I don't have more input than that.
If it makes you feel better though, today was one of my "soul scream fests" in the house once I was alone. Once in a while I just need to let it out, and it does help me to cope mentally with the frustration.
Kelowna, I wear the LONNNGGG skirts since my legs...um...you know where I'm heading. Although it's a cover-up, it's nice to have people say I look classy! Now to find a way to accessorize a walker...I'll add a pic to the gallery once it happens.
Best to both of you,
Posted 17 May 2007 - 12:43 PM
Barbara aka relicmom1
Posted 17 May 2007 - 07:54 PM
Barbara/relicmom, it probably is the macular degeneration that nixes the plaquenil. The Amsler chart I was given to check my vision against while I was taking it is the same one my mother was given to check the progress on her macular degeneration. My doctor took me off the plaquenil when I started having some strange vision problems, even though the optometrist said there was no evidence of damage. He said he would rather err on the side of caution with something like eyesight at stake.
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Posted 18 May 2007 - 03:20 AM
Morphea - It seems that is what I have on going on below my knees at this point
and if it is morphea - what is the best treatment that any have tried?
Posted 19 May 2007 - 01:50 PM