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Choking Anyone?


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#1 Patty

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Posted 18 May 2007 - 11:11 AM

sorry but its me yet again!! I have been choking a lot more lately and I notice that it happens more if I am eating food that crumbs like ground meat, crackers etc etc. Anyone else have tis happen and what do you do about it. Also should I put a call inot my GI about this?

Hugs,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#2 Sweet

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Posted 18 May 2007 - 11:34 AM

Hey Patty,

ohhhh so sorry you are having troubles with this and it seems to be increasing. Yes, please call your doctor and let them in on this problem.
Warm and gentle hugs,

Pamela
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#3 WestCoast1

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Posted 18 May 2007 - 12:45 PM

Hello Patty,
Have you had a Barium Swallow recently? This is a good test for motility. You might mention the symptoms to your Dr. at the next visit and see what they recommend.
*WestCoast*

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#4 peanut

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Posted 18 May 2007 - 01:26 PM

Patty,
I choke at least once a day. My husband says - chew your food - which is suppposed to be a helpful reminder but most of the time I choke on air, or nothing.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#5 Sweet

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Posted 18 May 2007 - 01:37 PM

Peanut,

You have a way with words - have you ever thought of being a comedian?? :)

I'm really sorry that both of you are having problems with choking. That has to be a scary feeling.

Erin has a good thought. A Barium swallow might not be a bad idea.
Warm and gentle hugs,

Pamela
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#6 Elehos

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Posted 18 May 2007 - 04:25 PM

Hi Patty,

Last year the corporate stock for Cream of Wheat went sky high thanks to me, but this year I can get actual grownup food down. Swallowing still doesn't come without some effort, but there are times when the choking eases up, and maybe you'll also find some relief. Of course check with the doctor since it might become more problematic at some point, and you don't need more trouble on top of everything else you have going!

Hi Peanut,

Yeah, I hate those enormous molecules of "nothing" getting stuck too!

Take care y'all, and best wishes to everyone,

Elehos

#7 Donna

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Posted 18 May 2007 - 05:58 PM

Hi,
It's been such a long time since I have been here -

But yes, definetly check with your gastro first.......

I also suffer from this choking problem and it depends on the food - I also find ground meat very difficult to get down......

Wishing you the best..........HUGS.........Donna B)

#8 Sweet

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Posted 18 May 2007 - 06:00 PM

Hi Donna,

I just wanted to welcome you back to the sclero forums.

I look forward to knowing you better.
Warm and gentle hugs,

Pamela
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#9 jefa

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Posted 18 May 2007 - 07:57 PM

I have found that drinking water with mouthfuls of small particles helps to get them down, though sometimes I even choke on water. It gets worse when my esophagus is more irritated, like when I fall off the low acid wagon with very spicy foods or lots of tomatoes. Good to see you back and posting, Donna.
Warm wishes,
Jefa

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#10 Patty

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Posted 19 May 2007 - 12:26 AM

Hi everyone!!

Thanks for all the replies. I will call my GI Monday and see what she wants to do. I had kind of thought that I would wait on this because I am due for the full day of testing in a couple months but I guess this is not good to keep happening so I guess it won't hurt to call her.

Welcome back to the forum Donna.

Hugs,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#11 janey

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Posted 19 May 2007 - 08:28 AM

WOW - There is so much in the forum this morning that describes my evening and morning!
Choking - YES! About once a day and about 90% of the time when I'm drinking or eating something. This morning when eating my first bite of fruits/soy/nuts breakfast, a little piece of almond got caught at the top of the esophagus and for the life of me, I couldn't get it to go down. I had to leave the room I was grossly coughing trying to get it unstuck. Water didn't help so I forced myself to drink a little soy milk and I guess the thickness of that forced it on down. UGH! I hate it when that happens!

BTW - the other 10% of the time is when I get so involved in my work that I forget to breathe! :blink:

Big Hugs,
Janey Willis
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#12 debonair susie

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Posted 21 May 2007 - 09:01 AM

Hi Everybody!
Patty, I've had that trouble too...I got diagnosed with Sjogrens a while back, but believe I've had it for quite some time. Anyway, I credit it for some of that. Others have already mentioned that they usually have something on hand to drink while eating. Yes, for sure, the crumbly things, dry things, etc. seem to cause the most trouble.
I hope your doctor can get an answer for you soon!
Hugs, Susie
Special Hugs,

Susie Kraft
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#13 Sweet

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Posted 21 May 2007 - 11:12 AM

Hi Patty,

Not sure what time your GI appt. was today, but let us know how it went.
Warm and gentle hugs,

Pamela
ISN Support Specialist
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#14 peanut

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Posted 21 May 2007 - 12:20 PM

Hi Everyone,
I had a barium swallow test, which revealed that I have no esophagus/swallowing problems, yet on the day this post started I had the worst swallowing/choking/coughing fit ever. It took a half an hour to struggle to breathe while calming my panicking body down. That’s what I get for eating more than one cracker at a time. Back to baby food.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#15 Patty

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Posted 21 May 2007 - 12:53 PM

hey Pam,

I talked to the APRN today and shes going to talk to the GI when he comes in tomorrow. She feels that I won't need more tests at this point as I have already had most of them. She thinks I will have to go on a protein pump med. She will call me back tomorrow. I will let you know what happens. Thanks for thinking of me!!

Hugs,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#16 Sweet

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Posted 21 May 2007 - 02:20 PM

Patty - thanks for the update. I'll look forward to hearing what the GI says.

Peanut - Baby food? Gee I thought I had it bad. Sorry doll. *hugs*
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#17 Elehos

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Posted 21 May 2007 - 02:25 PM

Hi Peanut,

And everyone else too! Does the choking pick up in intensity at times and drop off unexpectedly? Last year was difficult, and as the muscle spasms in my body went crazy for a while, my throat went right along with it all. There's always a "stuck jellybean" sensation as I've mentioned several times, but at least food goes down easier once the body spasms ease up. Muscle relaxers help tremendously with it, but I don't know if they help everyone. Just a thought...

Best wishes to all,
Elehos

#18 Member

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Posted 21 May 2007 - 04:30 PM

I've been reading several message threads about choking as they have evolved. Now I have decided to put in my 5 cent's worth.

I've had diffuse scleroderma for over 10 years now. Some years ago I found I was becoming increasingly hoarse, and periodically suffered from coughing fits. Although I've had some lung fibrosis in the base of my lungs almost since the word "go", the coughing didn't appear to come from my lungs. Someone said it was like a hair in their throat, which pretty well explains it.

It was not till I had surgery in early 2004 for an unrelated condition, that something became apparent. When the anesthetist found she would be attending a scleroderma patient, she prepared for possible problems, and had another anesthetist and a helper. It was just as well she did! She had told me that she wanted to be able to give me a general anesthetic, as it would be nicer for me. If she couldn't it would be an epidural. So in case there were nasty things to be done she put me out first with a very strong sedative.

She came to see me after I had woken from the surgery, and told me that I had VERY difficult endo-tracheal intubation. She couldn't use the usual method of making an airway to my lungs, and eventually after much trying, had to use a fiber optic tube, which went round corners! (I knew that they'd had trouble as under my chin was sore for weeks, where obviously someone's thumb had been pulling on my chin!)

The reason for all this was as she said, my trachea (voicebox) had become "pulled up and tethered" as a result of the scleroderma! So I gather that this was somewhat blocking the straight path needed to my lungs. Because of this she recommended I get a Medic Alert bracelet with "difficult endo-tracheal intubation" on it. The surgeon also saw me afterwards, and remarked that I gave the anesthetist considerable problems! I was so lucky to have such a good anesthetist, who was also compassionate!

She said that this problem could definitely have a bearing on my coughing fits. If I had reflux, the coughing would be made worse by it. But as I seldom have had reflux or heartburn it probably wasn't that.

I have since found that post nasal drip (as Janey mentioned in another thread), was a big factor. Unfortunately one of my BP meds, Cardura, also known as Doxazosin, can cause rhinitis, (among other things!). Since I have been on it I always have fluid from my nose going down my throat, and at night it is usually the worst, particularly if I'm sleeping on my back. I often choke and cough for ages trying to clear my throat of this stuff! It feels as though it is stuck in the region of my trachea, and knowing what I now know about it, this is probably what is happening.

Like others have said, I also get other things stuck, which make me choke. Particularly dry stuff, or large pieces of meat. I really do suspect, with me anyway, that having my trachea in a different position, courtesy of scleroderma, is a big factor in my coughing/choking fits. I wonder how many of us actually have this problem without knowing about it? I certainly never suspected it until my surgery!

Warm hugs,

#19 peanut

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Posted 21 May 2007 - 04:49 PM

wow Sherrill,
I'm so glad you shared. That is quite an experience.
Your story sounds familiar. I have postnasal drip for which I’m prescribed a steroid nose inhalier. My voice has been going in and out over the last several months. They say it’s a rare side effect of QVAR, a prednisone inhaler. With my choking and coughing fits, Hum… but what if it is my voice box? How might they check? It’s always good to rule things out.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#20 Guest_Sherrill_*

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Posted 21 May 2007 - 05:09 PM

Peanut,

I guess they'd have to have a look down your throat! :( I'm not sure if it would be evident with an endoscopy, but I did have two of those about 2001 I think it was. No one said then that it was hard to get down my throat :unsure: And of course I might not have had the problem then. But maybe it's only when they try to get into your lungs for an intubation, that it becomes evident? Ask your doctor next time you see him.

Warm hugs,