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Choking Anyone?


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#21 Margaret

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Posted 22 May 2007 - 08:13 AM

<<The reason for all this was as she said, my trachea (voicebox) had become "pulled up and tethered" as a result of the scleroderma!>>

Hi, Everyone....WOW...I wonder if this is why Gareth doesn't have more than a whisper on most days?!?!? I will keep this in mind when I talk to his rheumatologist the next time.

Take care, Everyone.
Margaret

#22 Piper

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Posted 22 May 2007 - 01:32 PM

Hi, I wonder how many have involvment in their upper throat like Sherrill. For some time now the opening to my throat has been narrowing but I thought I was imagining it. When I went to the Dr.s he said that it looked like my throat was being pulled down on one side, and it feel like it too. Some nights I find it hard to breath and have to put my head back so I can get more air in. Don't know what's causing it but I wish it would stop.
Hugs, Piper

#23 peanut

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Posted 23 May 2007 - 04:20 AM

I'm a hard sleeper and I take sleeping pills, which knock me out cold. One night I woke up choking and coughing unable to breathe. I asked my husband if he heard me and why he didn’t wake up. He told me I choke/cough 2-3x a night. I guess I wake up if it's really, really bad. This scares me.

peanut

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my HMO makes me wear a helmet...

#24 jefa

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Posted 23 May 2007 - 05:08 AM

This would scare me, too, peanut. Not sure whether I would be more scared that I was choking and not knowing it, or because my husband allowed me to do it without waking me up. If you are going to be sleeping that soundly, I do hope you are taking all the other precautions: elevated bed, etc. Take care, please.
Warm wishes,
Jefa

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#25 peanut

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Posted 23 May 2007 - 05:59 AM

Carrie,
Here's the thing... before my diagnosis I NEVER EVER snored unless I was sick. After my diagnosis I've developed this wicked snore that drives my hubby to sleep on the couch. And with the fans and AC running at night (we live in the triple digit southwest) he doesn't always hear me. I'm not sure what to do. I'm thinking about getting a wedge pillow to elevate my head but I'm not sure it helps?

peanut



You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#26 Sweet

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Posted 23 May 2007 - 06:36 AM

Hi Peanut,

Yes! The wedge pillow is an excellent idea and it does help. It certainly would be worth a try for you.
Warm and gentle hugs,

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#27 ShawMJ

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Posted 26 May 2007 - 07:17 PM

Well may as well jump on the 'choking 'wagon,I choke,cough alot too.I have even choked just by turning my head sideways! I don't always have to be eating something for it to happen and I hate it as I've had it so bad that I actually lose my breath and if husband not around I have to find a way to hit myself to get it back and its SCARY! I always have water everywhere I go even to church.Yeah its happened there too so its good to have my water handy! I choke on my own saliva too! I've had a barium swallow and starting coughing choking while they were doing it as I was sideways drinking the stuff out of the plastic cup.Said my esophagus was 'tight".Anyways I think a lot of us have this problem and its the old sd that caused it as well as other problems that crop up and throw us for a loop.I hope all of you are doing okay.I had all my tests done yesterday,barium enema(gross-uncomfortable),bone density chest x-rays and couldn't do the PFT as the nurse said I wasn't doing what she wanted so I told her that was all I could do.They will let me know either for my next visit or maybe sooner.Hugs to all and smiles too.Mary-La.

#28 Member

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Posted 29 May 2007 - 05:57 PM

Add me to the choking group too. I've choked on about everything listed so far (including "nothing"). I sometimes get my pills stuck and just have to hack them out. Along with the choking I 've had the cough, post nasal drip, laryngitis and EVEN the label "difficult to intubate" written at the top of my hospital chart. I'll ask my Dr about the "pulled up and tethered" description. He put me on allergy meds but they aren't really doing much.

I just want to say how much comfort I'm finding tonight, my first night on this forum. I tried a chat room over a year ago and got scared off by hearing about symptoms I didn't have. Now I'm happy (not in a mean way!) to hear I'm not alone. Even going to a great research institution doesn't guarantee your specialist has seen all the variations.

#29 peanut

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Posted 29 May 2007 - 06:59 PM

choking on big air balls of nothing is frightening... I dislike those the most.
peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#30 Guest_Sherrill_*

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Posted 29 May 2007 - 08:24 PM

Sheri,

A BIG welcome to the Forums! I'm glad you found us, and I am sure you will find a great deal of help here.

I am interested that you also "have the label attached" of difficult to intubate! I will be interested to hear what your doctor has to say about the possibility of your trachea being "pulled up and tethered" the same as mine is. Maybe this an unheard of symptom as yet, and although existing has not been recognized?

I am also glad that you find the Forums comforting. Come here often!

Warm hugs,

#31 Patty

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Posted 29 May 2007 - 10:49 PM

Hello Sheri!! Welcome to the forums. I found this wonderful group right after I got diagnosis with sxleroderma last June, and they have saved me in so many ways. This really is a wonderful group. If you have a question someone will come along and try to make sure you get an answer!

Hugs,
Patty
Hugs,
Patty

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Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#32 Sheryl

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Posted 30 May 2007 - 12:37 AM

Peanut. Just your dialog on your symptoms makes me think of myself before going for a sleep study. The chocking or coughing or just being startled awake could be because the flap inside your throat has weaken and is closing up. Also the snoring is another sign of a sleep disorder. I have sleep apnea. It is bothersome and one of the things that I didn't realize was causing my fatigue. Now, if I could finally get in to see the results specialist I could get my machine. My referral was OK'ed but I am playing the waiting game. Just thought you might want to check into sleep apnea. Sheryl
Strength and Warmth,
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#33 Vee

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Posted 30 May 2007 - 02:59 AM

Hi All,

It's been a long time! But, after reading all this choking stuff, I figured I'd add one more!

I've been choking almost since the get-go, 9 years ago. I've been thru the mill of thinkin' it must be the ILD, then maybe just allergies and coughing from my never ending post nasal drip. It feels like sometimes once I get the chewed food on the back of my tongue that I can't seem to "remember" how to swallow it, then I go thru a short panic of "Oh no, I'm gonna choke on this stuff" and then, Yep, lots and lots of water to get it thru the right tube! Dr. Mayes told me that my cough, mainly comes from the acid reflux, but I believe that one of the side effects of the acid reflux meds is COUGHING!!!! As for that choking sensation, when it happens to me, and it doesn't necessarily happen when I'm eating anything. Feels like all the moisture is totally sucked out of my throat around the tracheal area, and then go into coughing/choking fits , sometimes for a good 15 minutes straight, seems like hours when it is happening! Well, Knock on wood, I haven't had an episode in a long time, and my cough has gotten better, and I don't seem to have the nasal drip as bad anymore either!

Someone mentioned the hoarse voice. I went to an Ear, nose, throat specialist last January, and she looked down my throat and found that I have nodules on my vocal chords which are a result of all the coughing and acid reflux. She said that it was possible to minimize them with proper and dedicated therapy. She also said that because of the nasal drip, I tend to clear my throat alot, without even realizing that I am doing it, that and coughing, makes your vocal chords "slap" together, and after prolonged "slapping" the nodules occur and make it difficult for your vocal chords to make smooth sounds, thus the hoarseness! I'm supposed to just swallow when I get the urge to "clear" my throat. and to "try" to not give into the temptation of that darned cough, which I thought was impossible, but I find if I pay more attention to myself, that I do cough at time that I could possible just breath thru it. Sometimes it is impossible though! My voice got a little better, and I have days that I barely have a voice at all. There goes my singing career! :P

So that's my story! I'm sure there's more, but I've rambled on long enough!

Hope you are all doing as well as can be expected! Remember to stay as happy as you can, it makes for an easier day!
Happy people don't have the best of everything, they just make the best of everything they have!

Warm and Happy to you! Vee

#34 janey

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Posted 30 May 2007 - 04:32 AM

Welcome Sheri! It's a great place isn't it! I'm so glad you've joined us and hope that you post often. It's always good to hear new experiences and to share.

Vee - you mentioned the post nasal drip which also caused a lot of my coughing. Every morning I'd wake up to a 10 - 15 minute coughing fit, gagging and spitting a lot (it was gross. My hubby always thought I was dying). A lot of my cough during the day, I could tell was due to the post nasal drip thing. So - after seeing my last bone density scan where I was greater than 100% on all my readings - I decided to stop dairy completely. (I did talk to the rheumatologist about it and he said it was worth a try as long as I supplemented my calcium). I've done something I thought I would NEVER be able to do and that was to give up CHEESE! I love cheese!!!! However, within two days of not having any dairy products, that morning coughing fit went COMPLETELY away as did many of my spontaneous coughing fits during the day. It's been 3 weeks now and yes - I still miss the cheese and had to forgo the ice cream on the peach pie Monday night, but, I can honestly say -it's been worth it. I supplement my calcium by drinking soy milk and soy yogurt (something you have to get use to) and taking calcium tablets.

Yes, I still choke on things like food, water and air, but the post nasal drip thing is gone!

I, too use a wedge pillow with a pillow under it and one placed vertically on top of it. That helps me a lot.

Big Hugs,
Janey Willis
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#35 peanut

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Posted 30 May 2007 - 04:34 AM

Sheryl,
A sleep study is the one test I haven't done yet... I think because I don't feel particularly excite to use a CPAP to sleep. I have to take sleep meds or I stay up or am restless. I think the salagen and reflux are causing me to choke in my sleep. I'd love to find out what's causing the snoring though.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#36 Guest_Sheri_*

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Posted 30 May 2007 - 03:37 PM

Hi All,
Thanks for the warm welcome. I love the descriptions as in sometimes I "forget how to swallow", which is what I experience also. I guess I should ask to see an ENT also after hearing your comments. I'm just so tired of going to doctors I have put off doing that and asking about a sleep study (trouble falling asleep - need meds every night.) I do a bit of throat clearing that I'll have to work on (isn't it frustrating to have to be conscious of so many automatic responses like swallowing, reaching for things and whacking your knuckles, etc.??) But with sclero I've learned that every day can bring new surprises. Thankfully some symptoms go away (Yeah!) and others you just get used to and they become part of the "background noise" of your life that you can forget if you're busy having fun!

Janey - let me know if taking dairy out of your diet continues to help. I hate to go without cheese,ice cream and yogurt but suppose there are substitutes for all that would take getting used to but would be worth it.

Warm regards,
Sheri

#37 peanut

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Posted 30 May 2007 - 06:06 PM

I also gave up dairy and have found a few yummy substiutes for icecream, butter but not cheese. If any one knows of a good fake cheese please PM me. I still cough alot but I know I'd be a lot more mucusy and itchy with dairy... dairy also gives me an itchy inflammatory rash. yuck! One of my doctors tried to get me to go vegan. She said consuming any animal product can cause inflammation. Hum... well if I did that I'd be on a diet of styrofoam.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...