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Vitamin B Complex


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#1 Clementine

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Posted 23 May 2007 - 08:50 AM

I have taken Vitamin B Complex a few times recently and I have so much more energy on days I take it. What are your thoughts on taking vitamins when you have Scleroderma? I know some doctors have said not to take supplements, just get the nutrients from your food (with the exception of Calcium and Iron).
Thanks,
Jennifer

#2 WestCoast1

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Posted 23 May 2007 - 09:31 AM

Hey Jen,
That is a GREAT question. I am not really sure what I should be taking, but I do take....Acidophilus and Flax Oil,. I was taking a liquid multi, but when it ran out, I just never got any more.

A 'B' vitamin sounds good. More energy would be awsome!
*WestCoast*

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#3 Sweet

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Posted 23 May 2007 - 10:11 AM

Hi Jen,

I take B vitamins, and lots of them. I am a firm believer in supplements. I take MANY! Both my primary care physician and my rheumatologist are in full support of this. My list is long! If you want to know what I take you can send me a p.m.
Warm and gentle hugs,

Pamela
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#4 kathygirl

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Posted 23 May 2007 - 01:56 PM

I get vit B12 shots about twice a month. I also take fish oil pills 4 a day as well as probiotics. The thing that helps the most is folic acid, if I skip a day I am noticably tired. It also stopped my restless leg problem, the other night I forgot to take my pill and my legs drove me crazy. I am also eating much healthier foods. About a year ago my blood pressure was extremely high the top number was over 200 now my blood pressure is 110over 60. My alternative therapist has really helped alot in this regard. Depending on how Im feeling she makes adjustments in my diet and vitamins. I remember my alternative therpaist said there are some supplements, vitamins not to take when you have scleroderma because they contribute to the building of collegen. Unfortunately I can't remember which ones. Kathy

#5 WestCoast1

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Posted 23 May 2007 - 04:03 PM

One thing for sure that I don't take now are immune enhancers. During cold and flu season, everyone is taking these supplements and drinking the teas.

Since our immune system is over active, I think that these types of supplements might be counter-productive. I have yet to ask the doctor about what he thinks, but I might at my next visit...if I remember :mellow:
*WestCoast*

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#6 Sweet

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Posted 23 May 2007 - 05:16 PM

Erin,

You are right, the immune enhancers are a no no such as echinacea.
Warm and gentle hugs,

Pamela
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#7 relicmom1

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Posted 24 May 2007 - 04:54 AM

Good morning all! I take a Vitamin B Complex and I think it really helps. I also take a multivitamin, fish oil, an antioxidant supplement for eyes, and calciumw/vit.D. I also have restless legs and I've not heard about folic acid helping. I'll have to try it.
Peace :)
Barbara aka relicmom1

#8 peanut

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Posted 24 May 2007 - 06:24 AM

Sweet & Erin,
So echinacea is bad, but what about vit C?

nutty peanutty

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#9 jefa

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Posted 24 May 2007 - 06:30 AM

Taking vitamin C along with it can help with absorption of iron. Any excess vitamin C will be excreted. On the other hand, vitamin C is acidic, so when you take it may make a difference if you have a problem with reflux.
Warm wishes,
Jefa

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#10 Sweet

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Posted 24 May 2007 - 01:45 PM

Hi Peanut,

I had heard Vit C was bad, so I took that question to my rheumatologist and he disagreed. He said to take as much as I want. I take about 2000 mg a day.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#11 janey

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Posted 24 May 2007 - 05:05 PM

WOW - It's interesting how rheumatologists have different ideas on things. Mine told me NOT to take Vitamin C because it helps in the production of collagen and since we already do quite a bit of that already, we don't need the help. I did find this on MedlinePlus about Vitamin C:

"Vitamin C is required for the growth and repair of tissues in all parts of your body. It is necessary to form collagen, an important protein used to make skin, scar tissue, tendons, ligaments, and blood vessels. "

I was adviced not to take a Vitamin C supplement and that I would get enough of what my body needs from a healthy diet. I do take extra Vitamin D and E and calcium. I tried taking a multivitamin but it makes me jittery. Sounds like many of you benefit from B vitamins. HUM - maybe something to look into.

Big Hugs,
Janey Willis
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#12 Sweet

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Posted 24 May 2007 - 05:42 PM

I know Janey how strange. I actually took a similar article to my rheumatologist and he disagreed with it and said it was fine.
Warm and gentle hugs,

Pamela
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#13 bio.teach2

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Posted 06 August 2007 - 05:01 AM

The way I look at it, my immune system is attacking my healthy "self" so why should I take supplements to enhance my goofy immune system? I truly wish the warning about echinacea was made with more emphasis and more often!
Laurie AKA bioteach

#14 Piper

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Posted 06 August 2007 - 06:25 AM

Hi, For a while I was taking an ester C tablet with my iron at bedtime. My Gerd got much worse and I couldn't figure out why. When I stopped the C it improved. I thought that the Ester C was supposed to be less acidic but I guess it's still too much for my system.

I was told by my pharmacist that I should be taking a calcium tablet if I am on a P.P.I for Gerd long term. My Dr. has never mentioned it to me and I'm not going to be seeing him any time soon, I hope. Has anyone else been told this? Just wondering.
Hugs, Piper

#15 debonair susie

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Posted 06 August 2007 - 11:18 AM

Hi Jennifer,
I too take vitamin B and the result is the same as yours... I feel more energetic! I sure notice the alternative if I don't take it. I also take fish oil capsules, along with a multivitamin. My husband also has the same results as we do.

Hugs, Susie
Special Hugs,

Susie Kraft
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#16 peanut

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Posted 06 August 2007 - 11:18 AM

What's a PPI?
I take extra calcium + Boniva cause I'm on prednisone and that causes bone loss. One positive is with the flax and omega 3 my nails have never looked more fabulous.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#17 Piper

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Posted 06 August 2007 - 12:03 PM

Hi Peanut, P.P.I is short for proton pump inhibitor drugs like nexium.
Hugs, Piper

#18 Rachelle

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Posted 06 August 2007 - 12:47 PM

bio.teach2, how are we really sure what our immune system is attacking is really "healthy"? Who knows, maybe our whole bodies are becoming contaminated with the things we consume and breathe that we shouldn't be such as pesticides etc. I am going to start my supplements again, I have already taken Glucosamine, chondroiton, MSM, and Fish Oil and a muti vitamin off and on. I take them for a few months and then get lazy. I feel better on the supplements.

#19 Sweet

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Posted 06 August 2007 - 12:48 PM

I'm with you Rachelle!
Warm and gentle hugs,

Pamela
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#20 Annie N

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Posted 06 August 2007 - 03:20 PM

I take B 12 and I find it really makes a difference in my energy level. Many years ago my blood test showed that I had low B 12 and I've been taking B 12 ever since. I also take an iron supplement - and a probiotic. The iron and B 12 help my energy and the probiotic helps my stomach a lot.
Annie N.