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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 peanut

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Posted 24 May 2007 - 05:47 AM

Does anyone notice they're losing the padding on their feet? A lady in my support group withscleroderma has near to no padding. I know I'm losing mine. Now days I strictly wear slippers or flats with inserts or some kind of padding. If this is happening to you what do you do about it? Would a foot specialist help?

peanut

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my HMO makes me wear a helmet...

#2 scampie5

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Posted 24 May 2007 - 07:07 AM

Hi Peanut, I too am losing the padding on my feet it can be very painful sometimes one day hubby saw me walking on me tip toes and asked why and it was because it just hurt so much to walk also losing padding on hands lYNN

#3 nan

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Posted 24 May 2007 - 07:21 AM

Peanut,
The podiatrist told me that I have no padding on the botttom of my feet. I got some really expensive shoes and inserts made specifically for my feet. They're great! I also have a metal plate in the top of my foot that makes shoes uncomfortable. My poor feet! I used to be a ballerina. If you want to email me I can tell you the type of shoes.
Take Care!
Nan

#4 Piper

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Posted 24 May 2007 - 07:26 AM

Hi Peanut, I also have sore feet and it feels like the balls especially have no padding. I have bought some of those gel insoles and they help some but they seem to put a strain on my other joints (knees, ankles) because I feel like I'm walking uphill. I also have a large lump that has come up in the sole of my foot. The Dr. looked at it and told me I would have to pad it but didn't really tell me what it was. I like to walk, even tho it hurts as it's good for the heart and lungs but sore feet really put the kybosh on walking too far.
Take care,
Hugs, Piper

#5 peanut

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Posted 24 May 2007 - 07:33 AM

Walking on hard surfaces like linoleum or wood flooring causes my feet to shoot sharp pains, so I have fluffy, thick house slippers. Wow nan a metal plate… ######. That must make finding shoes interesting. I also use expensive inserts but is it enough? I feel like my feet are slowly deflating.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#6 Clementine

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Posted 24 May 2007 - 07:59 AM

What causes this?

#7 peanut

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Posted 24 May 2007 - 09:06 AM

Good question Jen! I've asked several times. No one knows or seems to respond. Even my rheumatologist shurgged his shoulders and said its a part of scleroderma.

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#8 jefa

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Posted 24 May 2007 - 09:08 AM

Hi, ladies. I have this problem, too. If you search using "Mayo Clinic" and "foot problems" as keywords, you can find an article on foot problems in women. In the article it explains how the natural padding under heel and forefoot thins and your feet become wider and flatter. It's all part of the ageing process and other things (bad shoes, posture, habits, etc.) can contribute. If you check out any image of the anatomy of a foot you will see that there is nothing actually connecting the metarsals together accept tendons, ligaments and muscles. There is no way around this shifting being painful if your feet are not cushioned and supported properly. My rheumatologist instructed the occupational therapist to provide me with leather pads attached to an elastic strap. The padded leather fits under the ball of the foot. I can't wear them in shoes, but they help my feet feel better when I walk around barefoot. I also have some socks with woven in elastic around the forefoot. They help, too - like a massage, almost. They keep everything closer together like it used to be. On cold days I put my bare feet right into a pair of sheepskin lined boots. The sheepskin really makes them feel comfy. Unfortunately, they get hot quickly in warmer weather.
Warm wishes,
Jefa

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#9 Diana Miller

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Posted 25 May 2007 - 03:48 AM

I'm going to describe this to the best of my ability..

I have a problem with this has well.. the padding on my heels is very very hard, and the skin on my toes seems to be jagged. I also have a problem with the skin separating on my toes.. so I have to be careful especially when walking on carpet. Every now and then the carpet will snag some of the harder skin thats become separated and literally pull it off. When that happens it leaves a raw streak on my toes.

Most people see this sort of thing around their fingernails.. for some reason I have this on the bottom of my feet as well.

#10 Diana Miller

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Posted 25 May 2007 - 04:00 AM

In the article it explains how your the natural padding under heel and forefoot thins and your feet become wider and flatter. It's all part of the ageing process and other things (bad shoes, posture, habits, etc.) can contribute.

Mine didn't thin, the skin on my heel is very thick.

#11 Sam

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Posted 25 May 2007 - 04:04 AM

I too have no padding at the ball of my feet, I also wear inserts in my shoes and it does help alot. I forgot how much it cost to get them made for my feet but it was well worth it. I also dont have any arches so that is why I have arch support inserts. Sam
Sam

#12 WestCoast1

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Posted 25 May 2007 - 04:37 AM

As I get older it seems that the feet get more sensitive. I can't tollerate high heals like I used to!

Diana, I have also wondered about the thickness of the skin on my feet. It is painful to look at, I thought it was just me....
*WestCoast*

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#13 jefa

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Posted 25 May 2007 - 06:07 AM

Hi, Diana. The 'lost' padding is the soft tissue under the skin. You can have very thick skin on your heels and the ball of your foot, but the cushion under the skin has thinned allowing your bones and connective tissue to spread out.
Warm wishes,
Jefa

Carrie Maddoux
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International Scleroderma Network (ISN)

#14 peanut

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Posted 25 May 2007 - 07:12 AM

I still wonder if the process described on the mayo site is furthered by scleroderma. I am not that old, under 30 so I'm not sure how much the "aging" process pertains to me, but perhaps I'm older than I think? After all my lungs are that of a 84 year old…

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#15 kelowna52

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Posted 25 May 2007 - 12:43 PM

Hi all, I thought I would jump in here. the skin on my heels is thick and cracks constantly. I have to use one of those things you rub on your feet to soften the skin, I can't remember what there called. The cracks get quite deep at times and extremely painfull. I don't think I've lost the padding, but my feet are painfull most of the time, I mean all over pain, very annoying.

Jackie S.

#16 jefa

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Posted 25 May 2007 - 09:37 PM

I have a problem with this has well.. the padding on my heels is very very hard, and the skin on my toes seems to be jagged. I also have a problem with the skin separating on my toes.. so I have to be careful especially when walking on carpet. Every now and then the carpet will snag some of the harder skin thats become separated and literally pull it off. When that happens it leaves a raw streak on my toes.

I seem to have skipped over this post the first time, Diana. You are describing a different problem completely. When I first saw the podiatrist (through the rheumatology clinic, which has one on staff) she used a blade to remove some of the callous tissue. I told her I preferred to soak my feet then rub off the loosened skin with a towel. She said soaking the feet would dry out the skin, so I let her do it. After she did that, I had some of the what you described. There were thin lines of hard flesh that kept getting snagged on the carpet, leaving tender areas underneath. After those healed, I went back to my soaking/rubbing regime (just part of my normal bath process) and just added moisturiser to my feet after.
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)