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#1 kobi



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Posted 26 May 2007 - 05:05 AM

Hi my son is just going through testing for scleroderma, and needs to be hospitalised for a week for tests can someone tell me what may be involved and what they use for treatment and outlook. regards worried mother.

#2 Sweet


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Posted 26 May 2007 - 05:11 AM

Hi Kobi,

Welcome to the Sclero Forums. I'm really sorry your son may have scleroderma. I have provided you with a link to get you started on understanding a bit more about this disease.

This site is a wonderful place for information and support.

Please let us know how the testing goes.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#3 Sheryl


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Posted 26 May 2007 - 05:19 AM

Kobi, It depends what your son's initial symptoms are. The doctors will do several blood tests, exrays or Cat scans. They will try to relieve the symtoms and find out what kind/type of scleroderma your son has. How old is your son? Relief will happen depending on what is happening at the moment.
Welcome to our family of Sclerodians. Hopefully, you will learn a ton of information that will be helpful in getting your son relief. Knowing the age of your child could be helpful. Others that have children in that age group will respond. Or other teens in our group could respond. I hope your son gets to come home soon. All our faith - hope - and healing comes your way. Sheryl
Strength and Warmth,

Sheryl Doom
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#4 Margaret


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Posted 26 May 2007 - 05:45 AM

Hi Kobi ,

I also have a son with UCTD.....19 years old. They diagnosed him last Nov. How old is your son and why is he being hospitalized? This forum is great for information and encouragemnt.

Take care, Everyone.

#5 WestCoast1


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Posted 26 May 2007 - 06:08 AM

Hello kobi,
Welcome! I am sorry to hear that your son is being tested for Scleroderma. It is hard to say what the weeklong stay entails for him. It really depends on what exactly they are looking for. What were some of his symptoms? What type of scleroderma did the doctor say they were looking for?


#6 jefa


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Posted 26 May 2007 - 06:56 AM

Hello, Kobi. Let me add my heartfelt welcome. I am sure you must be frustrated and wondering what is going on with your son. The fact that you have come here looking says worlds--you have come to the right place for information and support. Read whatever you can, but try not to worry too much. Do let us know how the week goes and what the doctors have learned about your son's condition.
Warm wishes,

Carrie Maddoux
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International Scleroderma Network (ISN)

#7 janey


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Posted 26 May 2007 - 08:42 AM

I would like to join the others in welcoming you to the forum. I'm glad you went searching for help, because it truly can be a great comfort just to know there are those of us out here that understand.

With a week in the hospital it sounds like there will be lots of testing. The majority, if not all of tests are very noninvasive but will give the doctor an idea of what's going on and, if your son does have scleroderma, what is involved. You might want to visit our page on Common Medical tests for scleroderma. I don't know how old your son is, but we also have a section on Juvenile Sclerodermathat might also provide some information.

Please keep us informed on how your son is doing and how you are doing. You can get lots of hugs here!

Big Hugs,

Janey Willis
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