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Scoliosis


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#1 Sharonvandee

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Posted 26 May 2007 - 04:12 PM

I recently was diagnosed with CREST but have had scoliosis for a long time now but I have started to get a lot of back pain and wondered if this is related to the scoliosis or if it is being made worse by the scleroderma.

Any one else know much about this?
Kindest Regards

Sharon

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!

#2 Sam

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Posted 27 May 2007 - 02:41 AM

Sharon, I ws diagnosis with crest back in 1996 and I had gone to a chiro 2006 and he said I have a little bit of curve in my back, I had always gotten thqt checked at school over the years and some how it showing up now. Sam
Sam

#3 WestCoast1

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Posted 27 May 2007 - 04:35 AM

Hello Sharon,

I also have mild scoliosis. During physical therapy, she found it. I don't believe that it caused the shoulder pain/tightness that I was going through. I really think that the pain would have been constant, but that is just my opinion.

Have you talked to the doctor about any physical therapy, hot and cold packs, or anti-inflammatories? Sometimes a little pampering can get you through the worst part of the pain.

Hope you feel better soon.
*WestCoast*

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#4 jefa

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Posted 27 May 2007 - 06:38 AM

Hi, Sharon. I searched through the site and didn't find any connection between scoliosis and scleroderma, though I know that isn't exactly what you asked. It seems more likely that the pain would be caused by the scoliosis than CREST, but it wouldn't hurt to ask your doctors. It could also be from something completely different. I do hope you find some relief for it. Erin has some good suggestions.
Warm wishes,
Jefa

Carrie Maddoux
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(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#5 Margaret

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Posted 27 May 2007 - 08:51 AM

Hi Sharon ,

I do not have sclero....my son has UCTD. I do have a severe curvature (S), though, and I am in pain almost daily. On the worst days, I feel like I have a knife between my shoulder blades and my left hip acts up to the point where I get out of the car and walk like a 'gimpy ole lady'. I am in my early 50's. There is a doctor in Baltimore that is doing reconstructive surgery on ladies like me. I see him this week, in fact.

Take care,

Margaret

#6 Sweet

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Posted 27 May 2007 - 02:43 PM

Hi,

I also have scoliosis, and have my whole life. My rheumatologist and primary care physician both agree that my back pain is due to just that, and not my sclero. Of course the 30 pounds I've gained isn't helping much either I'm sure.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#7 Sharonvandee

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Posted 27 May 2007 - 05:33 PM

Thank for the information.

Went to the doctor this morning and she says it is arthritis caused by the curvature of the spine. She has referred me for some physiotherapy to see if that helps so fingers crossed

Thanks again.
Kindest Regards

Sharon

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!