Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

Raynauds Gettin Warm?


  • Please log in to reply
15 replies to this topic

#1 Sharonvandee

Sharonvandee

    Silver Member

  • Members
  • PipPipPipPip
  • 118 posts
  • Location:Albury Australia

Posted 27 May 2007 - 05:43 PM

I have always been a little sensitive to the cold always made me feel bleak but in the last 12 months this has progressed to Raynauds. We live in a too hot nor cold area but no matter what we do at the moment the keeping warm is a rela struggle. Does anyone have any suggestions on things they have done to keep warm. Who know one might work for me.

Many Thanks In advance
Kindest Regards

Sharon

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!

#2 WestCoast1

WestCoast1

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 554 posts

Posted 27 May 2007 - 06:26 PM

Hi Sharon,
There are little heat packs that you snap in half and they get really warm, and stay that way for a long time. You can slip these in your mittens, or your pocket...even your boots if you are in the snow. These little babies are inexpensive and disposable. you can PM me for the brand name if you are interested.

I am sure you have seen others mention on the forum that wearing mittens while shopping in the frozen food section is a must and also for digging around in your freezer.

I have noticed that I almost always have my hands tucked under my legs to keep them warm. Recently I take notice of rooms with air conditioners and slip on gloves...even in summer.

There are several medications out there that combat Raynauds. In the end, you have to decide if the "good" of the meds outweigh the bad. I have chosen....at least for now...to deal with the raynauds on a daily basis without meds.
*WestCoast*

********

#3 RememberingToSmile

RememberingToSmile

    Silver Member

  • Members
  • PipPipPipPip
  • 104 posts

Posted 28 May 2007 - 02:30 AM

I always have one of those disposible hand warmers in my pocket, no matter the temperature outside.

Here is what I do...

When I get a Raynauds attack - I slip a cut-off trouser sock on my bad wrist/hand and tuck the warmer in to keep my bad hand warm. I use the cut-off toe of the sock to hold the warmer. I cut a small hole into the side of the remaining sock to slip my thumb through so the sock runs from my fingers up through the wrist. It looks a bit like a carpal tunnel brace, but it is just a sock to keep my wrist/hands warm. If I drink a cold drink, I have the warmer in my pocket [or bra] to help recover my core temp.

The summer is easier than the winter, of course. In the winter, I wear a version on my feet, too. I started Norvasc this last winter when I started getting more sore spots, especially on my toes. I still get the attacks, but haven't had any sores lately. Early on I had an ulcer that left a pit in one of my finger tips [that was painful]. If I didn't have the ulcer history, I too would probably avoid the extra medication. So far, I am doing well on this med. At first it lowered my BP, but I've adjusted.

Let us know what works for you...

-RTS

#4 kramer57

kramer57

    Senior Bronze Member

  • Members
  • PipPipPip
  • 82 posts
  • Location:Michigan

Posted 28 May 2007 - 03:18 AM

Hi Sharon, I use those disposable hand and foot warmers too. During the winter I was taking blood pressure pills and applying nitroglycerine paste to my hands & feet to help improve blood flow. Now that it's warmer, I quit taking the pills & only use the paste when I need to. (the pills & paste require prescription by Dr.).
Also, I always carry a sweater with me. Even if it's 80 degrees and I'm wearing shorts, I will have a sweater & jeans in the car, so if I get cold I can add some layers! I've found I can be hot outside, but get cold in a store so I put a sweater on before going in the store. Putting mittens on to grab frozen things is a good idea too, I use mittens or a hot pad to hold my can of diet shake, otherwise my hands will freeze.
Best wishes!
Karen

#5 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 28 May 2007 - 06:40 AM

Hi,

We had a great thread on this once that had tons of ideas, I've looked for it and couldn't find it...Janey, others do you know which one I'm talking about?? Can we find that to help this member??
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 Clementine

Clementine

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 684 posts

Posted 28 May 2007 - 08:41 AM

Sharon,
Nothing is worse than a Raynaud's attack...in the summer. I drink warm water and it helps to warm me up and I always have on fur-lined slippers (PM if you want the brand name). Since I have started taking Procardia XL, I rarely get a Raynaud's attack. I don't know if you are taking medication for it or not but my Dr. thinks it is very important to keep it under control. Mine was bad though and I got it every day until the meds. Now, I only get it ocassionally.
Good luck.
Jen

#7 jefa

jefa

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 28 May 2007 - 07:51 PM

No joy, Sweet. I thought it might be in the old MSN forum so I had a look over there, too -- wow, I can't believe how much nicer this one looks and feels. At the time I was reading it, it didn't seem that bad.

I keep my hands in pockets or sit on them when it's cold. My feet are just as bad. I have a couple of pairs of very fuzzy socks - one pair in bright purple which are quite toasty. Sometimes I drink a cup of hot water just to having something warm to hold onto.
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#8 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 29 May 2007 - 11:48 AM

Sharon,
Well - you've been given lots of great ideas most of which I use. I love those little heat packs. They're great. In addition, I try not to let myself get cold. I dress in layers, always wear socks, long sleeves and long pants. I drink hot tea, about 3 cups a day year round and use the cup to keep my hands warm. When the air is cold I have a neck warmer I can pull up over my nose and mouth to warm the air. I hate breathing in cold air. The freezer section at the groceries is painful at times.

Stay warm Darlin'
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#9 peanut

peanut

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 738 posts

Posted 29 May 2007 - 12:31 PM

hey sharon,
I can't add much to the advice others have given. I use an xl heating pad and fuzzy slippers to keep me warm. A scarf helps too.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#10 Timo

Timo

    Bronze Member

  • Members
  • PipPip
  • 15 posts
  • Location:Australia

Posted 29 May 2007 - 02:08 PM

Hi Sharon,

I also live in Australia.I am 19yrs old and have had raynauds for 7 years, long before I knew I had sclero. I know how hard it is to keep warm esspecially when so many places love to crank up the air con.

I have found that I always, always have a spare jacket in my bag, just a light, but warm one. I also wear clozed in shoes pretty much all year.

I have been using Nitrolingual spray for 4 years now and have not had an attack while using it. It is prescribed usually for heart patients to open up the arteries, and while they spray it under their tongue, we can spray it on our wrists. This open the capilleries almost immediately and stops an attack. Perhaps you could talk to your doctor about something like this, esspecially if you are getting frequent attacks. I hope that helps.

Good Luck!

Timo

#11 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 29 May 2007 - 02:31 PM

Hi Timo,

Welcome to the Sclero Forums. I'm glad you've joined us, but sure sorry it's due to you having Scleroderma. You will find a lot of information, support and friendship here.

I look forward to knowing you better and again welcome!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#12 Wendy

Wendy

    Newbie

  • Members
  • Pip
  • 6 posts

Posted 29 May 2007 - 03:01 PM

Hi Sharon,
I finding keeping warm overall, even your head, and not just my hands and feet, makes a difference.
Wendy

#13 bookworm

bookworm

    Silver Member

  • Members
  • PipPipPipPip
  • 292 posts
  • Location:Texas

Posted 29 May 2007 - 07:52 PM

Sweet,

I remember the thread you are talking about and there were really dozens of ideas!

Sharon, I agree with keeping warm all over. If I get a chill it seems to immediately affect my hands and fingers.

Besides just generally keeping warm, though, I have hot corn bags, which I like because they aren't disposable and they are cheap! It's just a fabric "pillow" about 8 or 9 inches square. It's filled with deer corn, which you can buy at any feed store. You put it in the microwave for a couple or three minutes and it puts out a moist heat that is WONDERFUL! It stays hot for a pretty long time, depending on where you are. I always have at least two or three of them. They are good for cold car trips, church, weddings, funerals, piano recitals -- anywhere you have to be that might turn on the air conditioning. I really don't leave home without mine!

If you don't sew, you can put the corn into an old sock and tie the end with yarn or ribbon and get the same great warmer.



Mary in Texas

#14 jefa

jefa

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 29 May 2007 - 08:11 PM

Mary!! Thanks. After reading your post, I thought to search on corn, remembering that you have posted this suggestion before. I was able to find the thread in question (or at least one with lots of useful tips in it, anyway).

Helps For Daily Tasks, Changes/purchases made to accomplish daily tasks
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#15 Sharonvandee

Sharonvandee

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 118 posts
  • Location:Albury Australia

Posted 05 June 2007 - 03:56 AM

Thanks for all the great suggestions and support.

We dont have corn bags here but I did find some wheat heat packs at the markets which you heat in the microwave, that are supposed to be for aches and pain , but they work a treat and meant that yay I got to sit through a social outing with out leaving because I was struggling with being cold.

Nice and toasty well some times.
Kindest Regards

Sharon

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!

#16 bookworm

bookworm

    Silver Member

  • Members
  • PipPipPipPip
  • 292 posts
  • Location:Texas

Posted 05 June 2007 - 05:53 AM

Hi, Sharon,

I had a wheat bag one time, too, and also I've had a rice bag. Apparently, any grain will work. They are wonderful, aren't they? I don't know what I did before I got mine! Now I have one with me all the time!

Mary in Texas