Posted 30 May 2007 - 12:28 AM
I am now getting off all my meds that I do not think are not helping me. My neurontin is now 1200 a day down from 1800. And the APRN al;so said I could start a taper from the elavil so I am now on 20 mg down from 30-40. I hate taking all the meds feeling that they are not helping me. I really want to get off all meds and start over. I am also on a prednisone taper so one day soon I should be off all but a couple meds!!
If Life hands you lemons, make lemonade.
Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.
Posted 30 May 2007 - 06:57 AM
Thanks for the update. It's hard when you disagree with a diagnosis. It will be interesting to see how you feel once you taper down or off of some of your meds. Make sure your doctor knows about everything you do though.
Posted 30 May 2007 - 09:04 AM
It's great that you're tapering off some of your meds!!! Sometimes I think they make us feel worse than the disease. My cardiologist has been so puzzled about my Atrial fibrillations and flutters that he took me off my anti-arrhythmia drug to see what happened. It turned out that NOTHING happened. My EKGs were the same before and after. I can't tell you how much better I feel having come off that drug. That's 6 pills a day I don't have to take anymore. I certainly hope that you have the same experience! Keep us informed on how you're doing.
I'm sorry you're not satisfied with the diagnosis on your foot and back. Well, keep a close eye on things and if it starts to get worse, please see your regular doctor.
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)
Posted 30 May 2007 - 06:15 PM
I am sorry to hear about the "maybe"diagnosis with the foot and and back. I am sure that that can be very dissapointing!
Best of luck with your tapering process. I think that as long as it is monitored by your doctor, you will do just fine. Sometimes the doctors just give us a prescription to kill one side effect, only to create a new one....and so on.
Please let us know how you are doing.
Posted 31 May 2007 - 01:24 PM
Good luck to you with your foot and back troubles. I sure hope they get better real soon.