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Telangiactasias


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#1 Clementine

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Posted 01 June 2007 - 07:12 AM

I know we discussed this topic recently but I was wondering if anyone had tried any treatments yet to try to get rid of their telangiactasias. Mine are really getting me down. Don't get me wrong, I am way more worried about what the disease is doing to my internal organs, but someone said something to me about the dots on my face recently and am really depressed. My forehead is one big red dot at this point, and I have several every where else on my face. I never have a good day with the red dots but some days they seem even darker than other days. I really hate them. Every time I look in the mirror I see dark red dots every where. They are the worst on my face. I wonder why they are worse there.
Thanks for listening.
Jennifer

#2 CraigR

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Posted 01 June 2007 - 08:26 AM

I had laser surgery done to clear up telangiectasias. It was done by an Ob/gyn who does it on the side. He aims a pen-shaped device at them and zaps them with the laser. There's a little pain, but only during the procedure. There's a need to follow up, since some work out better than others. The doctor charges $75 per treatment, so I didn't get caught up in expensive cosmetic surgical treatment (the doctor told me that he had successfully treated some cases with a few $75 treatments for patients who had earlier been charged $1000 for unsuccessful treatment).

I think it's worth a try if you can find a good doctor who charges reasonably.

Good Luck

Craig

#3 jefa

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Posted 01 June 2007 - 08:48 AM

Hi, guys... we had a discussion on laser treatments for telangiactasia recently. There was a link in that thread you might have missed. Perhaps some of you can share your cosmetic solutions. I will look for a link on that, too.
Warm wishes,
Jefa

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#4 jefa

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Posted 01 June 2007 - 08:53 AM

Actually the Corrective Cosmetic link is on the same page.
Warm wishes,
Jefa

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#5 annkd

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Posted 01 June 2007 - 09:23 AM

Hi Jennifer - I have had the laser procedure several times. I had telangiatasia on my lips that were actually bleeding so something had to be done. To date, the last treatment was very successful (almost two years ago). I still have several on different areas of my face, stomach, arms and legs but not enough to warrant treatments. The laser procedures were done by a dermatologist. I think it is very important to do your research and consult with professionals who have done this procedure many many times. I totally understand what you are feeling. I have several new ones on the tip of my nose... real cute! I use a demablend product for those. Hang in there and let us know what you discover. - Ann

#6 Clementine

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Posted 01 June 2007 - 09:51 AM

Thanks everyone for your help.
Well, I too use Dermablend but I feel SO made up
with it. It does work fairly well, but it does not look that great
in the summer, in the sun or when you are trying to be casual. I just
want to be natural again...not all made up..and I do not
think it's going to ever be that way again. I have so many
dots that just covering one dot at a time does not work,
because mine are in clusters. I'll post a picture of me
sans makeup as soon as I find the software to download
photos from my camera to my computer. I want everyone
to see what I am dealing with. I have two in particular (on the tip of my nose...thank you) that won't cover up.
I realize I may sound pathetic, being worried about red dots...when
there are so many other things to worry about. Guess I
am just having one of those days. Things could be a lot worse. I
will shut up.
Jennifer

#7 jefa

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Posted 01 June 2007 - 10:02 AM

By all means, Jennifer, do NOT shut up. Appearance self esteem (ASE) is rated second only to fatigue in one study: Appearance self-esteem in systemic sclerosis--subjective experience of skin deformity and its relationship with physician-assessed skin involvement, disease status and psychological variables. and Body image dissatisfaction among women with scleroderma: extent and relationship to psychosocial function in another. It is a big deal and we need to give these seemingly superficial aspects of the disease their proper importance in our lives.
Warm wishes,
Jefa

Carrie Maddoux
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#8 emmie

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Posted 01 June 2007 - 04:27 PM

Hi Jennifer,

Appearance does matter--even when you're a 52 year old grammie, so I can imagine when you are a young newlywed! I don't have the red spots, but I do have lots of the brown spots. I know some of them are "age spots" (oh what a horrid term--even marks of maturity would be better.) Others are more the hypopigmentation type of thing. Some of these areas are fairly dark brown. My skin tone is quite fair.

Anyway, without mentioning brand names, I find the "mineral" type of makeup products that are available now give a more natural finish and fairly good coverage. You can simply apply more to the areas that need more coverage. I like it because the products are powder and do not give that heavy foundation coverage feeling.

The coverage isn't 100% but whose complexion is perfect? By the time you use the blush etc. it looks pretty ok to me. If you haven't tried these type of products, it might be something to experiment with while deciding about the laser procedures. HTH. Good luck!

xoxo emmie

#9 barefut

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Posted 01 June 2007 - 06:00 PM

Hi Jen,

Sorry you are feeling depressed about your appearance.

Don't discount it as trivial or feel like you're being vain or anything like that. Just because it isn't a life threatening priority doesn't mean it's not or shouldn't be a priority too.

How we feel about our appearance is something we have to deal with every day and I know how easy it is to get depressed about a disapointing appearance! (Been there, doing that! :rolleyes: )

Hope you find a safe, easy, inexpensive fix soon!

Love,
Barefut

#10 WestCoast1

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Posted 01 June 2007 - 06:23 PM

Hi there Jen,
You are allowed to feel that way, and thank you for bringing up the subject because it is something that I think we all deal with on a day to day....or even a moment to moment basis.

Just today at a "buy in bulk store" (as I was looking at all of the creams and sprays and lotions), I was thinking about how I feel so out of controle about my appearence. There are no miracle creams or wonder pills to slow this illness, it has its own agenda, and I guess that we have to just brace our selves for whatever comes next. I always hope that my husband sees my heart and not my skin. As for others that don't know me or about my illness, I choose not to shield them from the scars that Scleroderma can leave, but invite questions.

For those days when I feel the need to wear makeup/coverup, I prefer the mineral type that was mentioned before. I really like it because it is as natural or covering as I choose. You are welcome to PM me for the brand if you like.

Long story short, I'm here for ya!
*WestCoast*

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#11 DBHYGRELL

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Posted 02 June 2007 - 10:42 AM

Hi,

I keep getting new ones and I find it very frustrating. Do they ever stop showing up? Will I keep getting more and more of these spots? I have one on my cheek and several on my lips. Normally, they don't bother me, but I wonder if there is some sort of predictive value to them. Do they mean that your scleroderma is progressing if you keep getting them?

Jennifer, so sorry about your T's. They stink. I hope you find a workable solution!


Denelle

#12 Clementine

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Posted 02 June 2007 - 05:23 PM

Thanks guys. It really helps to hear good vibes from everyone and know I am not alone.
I will try the "mineral" foundation. I do not know if the red dots are a predictor of anything, but maybe someone will chime in.
Thanks again friends.
LOVE,
Jen

#13 bookworm

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Posted 02 June 2007 - 06:59 PM

Hi Jen!

Like Emmie, I use a mineral based makeup -- or whatever it's called. I put a cream on the red spots and then brush on one powder and then another "finishing" powder. This has a much lighter feel to it than the dermablend makeup. It's not perfect, but I have really liked it.

I get really frustrated with these stupid red spots, though! I am reading all of what you folks say about laser procedures. My whole life before sclero, I had nice skin and I wore very little make-up. I'd brush on a little blush, use lipstick and maybe mascara on special occasions, but mpst of the time, I thought I looked okay without any makeup. So I just hate feeling that I can't even run to the grocery store without full makeup! And I do feel that way! I just feel that the spots are so noticeable that heads will turn to look at me and I can't stand the feeling!



Mary in Texas

#14 kelowna52

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Posted 03 June 2007 - 10:36 AM

Hi Jen, I totally understand where your coming from, like Emmie mentioned her age as 52, I'm 53 and have major brown spots all over my legs, arms, hands and chest. My face is just alot of red like the Lupus Buttterfly Mask. I tried Dermablend I found it, way to heavy. I just go natural with a little mascara and Lipstick. No need for blush that's for sure. I would like to try the natural Mineral products some of you are talking about. Good luck to you Jen, and don't worry, the people that are most important to us, see us from the inside not the outside. Take care.

Jackie S.

#15 Sydney

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Posted 04 June 2007 - 12:41 PM

Jen,
I know exactly what you are going through! I have extensive telangiactasias. In fact many, many years ago at a University rheumatologist clinic the rheumatologist said he had never seen them so extensive (face, hands, legs, back .... basically all over). I have been getting laser treatments for the last 12-13 years. Not to scare you but be sure you go to a good laser specialist or you could get scaring (depending on the laser used). I have now tried the IPL (intense pulsed light) treatment which is not as invasive as the laser, feels the same, doesn't leave a purple bruise to dissipate and has similar results. It requires more treatments but has no downtime. I get lasered from 3 times a year to at least yearly to keep up with new and resistant ones. This probably sounds frequent but I not only shoot my face but my chest and hands. As you said, people point out what we already know we have. Hang in there ....... Sydney.