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Finally Having Gastroendoscopy


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#1 kiwimum03

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Posted 01 June 2007 - 02:01 PM

Well I finally got my call up for my Gastroendoscopy!

Happy to finally be having it, but not looking forward to the procedure after reading the leaflet they sent me, sounds kinda scary!
I am going to a private hospital, but it is through the public system so I don't have to pay for it.......that is such a blessing.

I will be going on Tuesday morning so I will let you all know how it goes.

Hugs,
Irene

#2 Guest_Sherrill_*

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Posted 01 June 2007 - 02:44 PM

Hi Irene,

I was wondering how you were getting on! Glad to hear you finally have had the call!

Don't worry about it. I've had 2, both in the public hospital, and found they're not a big deal really. The first one they talked me into just having an IV anti-depressant, which didn't really do anything. I was awake for it all! But I've certainly had worse, though I did a bit of gagging. However, it was over quickly.

The second one I insisted they put me out to it, and that was better. I didn't know anything after they injected the drug into the IV. First I knew was waking up in bed out in the corridor.

I was starving after both as I'd had to fast for longer than they said. So I was glad to have dinner. I had a bit of a sore throat for a day or two, but also nothing alarming.

Good luck, and let us know how it goes. I'll be thinking of you.

Warm hugs,

#3 jefa

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Posted 01 June 2007 - 06:40 PM

Hi, Irene. Glad to hear your name is finally up! :)

Don't let them talk you into toughing it if you have a strong gag reflex. Next time I am taking the sedated route. But that was the worst of it and it doesn't last all that long. Let us know how it goes.
Warm wishes,
Jefa

Carrie Maddoux
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#4 kiwimum03

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Posted 01 June 2007 - 07:06 PM

Thanks Sherrill and Carrie,


I am very happy to finally have it done, but I am not fond of "going under", even though I have been under anesthetic 2 times before, I still have a fear of not waking up, and it freaks me out. But of course I don't fancy being awake either, so I will just have to see when I get there.......I am not sure whether or not they give me a choice anyway, as they did say that I would have to wake up out of the anesthetic, so I guess that means I am going under.

Sherrill, they told me not to eat anything 6 hours beforehand, but since my appointment is at 10:30am, I should be up to eat lunch.......I am terrible at fasting, I get so light-headed.

I will definately let you all know how it goes.......I wonder if they will tell me anything while I am there? or perhaps I will have to wait.........ugh, I hate waiting.

hugs,
irene

#5 Sharonvandee

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Posted 01 June 2007 - 10:38 PM

Good luck

I am sure things will go ok I have had three of these precedures and going for my fourth soon. I am sure that they will take good care of you.
Kindest Regards

Sharon

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!

#6 2hope

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Posted 02 June 2007 - 07:10 AM

Hi Irene,
I am brand new to this forum. I was diagnosed with Scleromyxedema about 4 years ago. I had a biopsy done on my lower leg. The dermatologist gave me cream and said this will soften the area and it should subside. Uh no! I stopped using that since it was obviously doing no good. The size has increased. Presently and as far as I know it is only located in my lower legs. It is scary.
I finally met with a Dr and had a consult, we spoke 1 hour and he was very concerned when I mentioned this disease. He had never heard of it, so immediately he looked it up and he was shocked. So he is going to look into this deeply.
He is sure my GI problems may be involved with this disease. So he prescribed a upper and lower GI series- drink barium and then they want to see the other end and will check those areas.
My other DR had been after me to have the gastroendoscopy and the other one which I'm sorry (the name I forgot) I know it also is an endoscopy of some kind. (senior moment) but have been unable to due to cost- my share to pay. So I told the new DR- he is a Hemotologist/Oncologist this and this is why he suggested the other tests instead.
Have you had any of these tests and if so are they tolerable?

I hope your test comes out well for you. I am glad to know they will at least sedate individuals if they wish.
You know I just wish I knew much more about this disease, but here in California they have no idea. Most DR's have never heard of it, so no one knows how to treat it either.
But at least maybe I am on the right track with this Dr. He cares, and that is just so rare.

Good to know there is a place to go, a forum to tell others, and places of interest concerning what we have.

Thanks,
2hope

#7 jefa

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Posted 02 June 2007 - 07:20 AM

Welcome to the Sclero Forums, 2hope. I am sorry to hear of the problems that brought you into our group, but you have definitely come to the right place for information and support. Please continue to jump in with your experience and questions.

Jefa <--resident expert on senior moments
Warm wishes,
Jefa

Carrie Maddoux
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#8 nan

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Posted 02 June 2007 - 07:38 AM

Irene,
I am sure that it will go well. At this point I have had 7 of these done. Only once do I remember gagging the other times I have been in the twilight zone. The reason I have had it so many times is due to watermelon stomach. I now might have to do it every 4-6 weeks for a bit due to recent gastric bleed. They go in and cautherize the bleeding vessels. Whenever I have it done the doctor lets me know and my husband know what he found. Of course, if he biopsy you have to wait for those results. Let us know how it goes. I send good thoughts your way. :D
Nan

#9 kiwimum03

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Posted 03 June 2007 - 08:49 PM

Thanks for all the feedback, it sounds like many of you have been through this proceedure before, so I am trying to chill out about it :)

Welcome to the forums 2hope. I am still officially undiagnosed and have a very tentative "connective tissue disease" label, and I am currently taking Plaquenil, which is slowly kicking in.

My Gastroendoscopy is the first kind of invasive procedure to have in this journey so far, and I do hope it will enlighten my doctors a bit more as to what is going on.

I am very happy that you have found a good doctor that cares, its nice to have someone on your side.
This forum is a wonderful support for me and I am sure you will find friendship, guidance and a wealth of information.

well, only 15hours to go.......i will keep you posted.


Hugs,
Irene

#10 Guest_Sherrill_*

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Posted 03 June 2007 - 09:23 PM

Irene,

Hang in there! I know how you're feeling as I always feel like that whenever I have to face a procedure, or even just go to the doctor! Last Monday I had a top eye tooth extracted, and I think the waiting beforehand was the worst part of it......... almost! :unsure:

But once it was over the relief was enormous to think I didn't have to still go through it! In 3 weeks the dentist is going to try an implant, so I suppose I'll have the "beforehand nerves" all over again!

Good luck!

Warm hugs,

#11 kiwimum03

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Posted 04 June 2007 - 04:26 PM

Well I had my endoscopy this morning, much better than I thought it would be!

I wasn't knocked out, just lightly sedated, which was rather nice actually. The worst part was the foul tasting throat spray I had to swallow.
To be honest I don't really remember too much even though I was awakish. I thought the whole thing only took 5 mins, but was told it was more like 20mins. I just kept forgetting everything straight after it happened.

It just felt like I had a matchbox stuck in my throat, but didn't really hurt, and then I got to doze for about 30mins after, and I got given some yummy food to eat.

I got the pics from the endoscopy, and was told they were perfectly normal, he couldn't find anything wrong..........yipeeee! But he did do a copy of routine biopsies so we will see how they come back.

so all in all, it went really well, phew!
Thanks so much for your support.

Hugs,
Irene

#12 jefa

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Posted 04 June 2007 - 11:33 PM

So glad to hear all went well. You make it sound almost pleasant. :)
Warm wishes,
Jefa

Carrie Maddoux
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#13 kiwimum03

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Posted 04 June 2007 - 11:37 PM

Hi Carrie,

yeah, I think I got lucky............I know not everyone had such a good experience with it as I did.

Not sure where to go to now though. I still have terrible acid and regurgitation most nights and abdominal pain. But I haven't actually sat down with a Gastro Specialist and talked all this through, I just got sent for the endoscopy by my general practitioner, so I will have to go back and talk to her about it.

hugs,
Irene

#14 Guest_Sherrill_*

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Posted 05 June 2007 - 02:12 PM

Hi Irene,

I'm glad it went so well for you, and as Carrie says you make it sound almost pleasant! :P

Warm hugs,

#15 Sweet

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Posted 05 June 2007 - 03:01 PM

Hey Irene,

Thanks for letting us know. I'll be rooting for you!!
Warm and gentle hugs,

Pamela
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