Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

Exercise Induced Pulmonary Hypertension


  • Please log in to reply
5 replies to this topic

#1 Clementine

Clementine

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 684 posts

Posted 06 June 2007 - 08:06 AM

Hello everyone!
I want to know more about exercise induced pulmonary hypertension. Peanut has me curious, as she was tested and has it. I wonder why I would have had the heart catheter and was not tested for this automatically, since I am already on oxygen.

I have had echos and one right heart catheter and I do not have PAH. I just wonder if there is a chance I could have exercise induced PH as my oxygen definitely drops in 80s when I exercise.

Any information anyone has would be greatly appreciated.

Oh, and I traveled to a town that was at 7000 elevation and tried to hike on a slight incline without oxygen supplement, and my o2 dropped to 72 and my heart rate went up to 145. Ugh.

Thanks,
Jennifer

#2 peanut

peanut

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 738 posts

Posted 06 June 2007 - 09:43 AM

72 not good... silly woman!
Maybe it's the doctor or surgeon’s preference. I think they ran that test on me because I kept having shortness of breath and couldn’t figure out why…

peanuts

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#3 Clementine

Clementine

    Gold Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPip
  • 684 posts

Posted 06 June 2007 - 11:00 AM

Peanuts,
I know, 72 is bad. I wonder how much damage is done if you stay that way for an hour, 7 days a week.

Have you had a sleep study done? I was just curious, after doing some research. I read somewhere that exercise PAH is predictive of the 6 minute walk (which you have had) and desaturation while sleeping. My 6 minute walks are not bad at all. As a matter of fact, I quit doing them because I do not think they are true for me. I know for a fact I desaturate at exercise and for me, walking 6 minutes is not "exercise"....not strenuous enough. I can walk on a treadmill at the gym and go down in the low 80's but walking in the hospital I don't drop much. I wish my Dr. would have had me do flies while I had the catheter. Too late. :)

I just called my PAH Dr and left a message with the nurse, asking what kind of tests I could have for this. I have an echo scheduled in August...

Thanks Peanuts.
Jens

#4 peanut

peanut

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 738 posts

Posted 07 June 2007 - 04:48 AM

I worry about your 02. I think it's called Hypoxemia, or low blood oxygen.
A sleep study is probably the only test I haven't done. I don't want to do another 6-min walk. It aggravated my cough for two days.

Signs of Obstructive Sleep Apnea, from the Mayo site:
* Excessive daytime sleepiness (hypersomnia)
* Loud snoring
* Observed episodes of breathing cessation during sleep
* Abrupt awakenings accompanied by shortness of breath
* Awakening with a dry mouth or sore throat
* Morning headache
* Difficulty staying asleep (insomnia)

The first 5 are me. And it says about half the people with sleep apnea develop hypertension. Maybe I should look into it? My husband says I sleep like darth vader. With a cpap I’d totally be darth vader. I wonder how helpful Cpaps are?

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#5 Clementine

Clementine

    Gold Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPip
  • 684 posts

Posted 07 June 2007 - 05:48 AM

Uh oh Peanuts. Well, I'm thinking the combo of loud snoring, your Viagra and a cpap is interesting.

Well, I have only done a sleep study where I just slept with a pulse oximeter on my finger and done at my house. The oxygen company dropped off the computer and oximeter and that was all. If you have sleep apnea and have all those symptoms, it may be a good idea to find out if you have sleep apnea.

I worry about my o2 also.

Jenhead.

#6 relicmom1

relicmom1

    Silver Member

  • Members
  • PipPipPipPip
  • 208 posts
  • Location:Colonial Heights VA

Posted 07 June 2007 - 07:16 PM

I have not heard of exercise induced PAH, but now you've got me wondering. I have had a sleep study and I did desaturate, but they said not enough to warrant O2 yet. My pulm has me walk up and down the office hall and then does a pulse ox and so far, it's not dropped much, but I don't walk 6 min, maybe 2 min. I have to find a new pulm doctor because my insurance changed and my current on doesn't accept my current ins. That stinks because he's in the same practice as my rheumatologist.....now explain THAT to me <_< I have PFT's every year because I have some interstitial lung disease. I'm past due because of the doctor situation.
Peace :)
Barbara aka relicmom1