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#1 JG07

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Posted 06 June 2007 - 12:34 PM

According to the SSA - my disability is not "severe" enough to qualify for benifits. I guess being on full time oxygen, having sclero, PAH, Reynaurds & Sjorgens is not enough. I am going to appeal - Any advice

#2 Sherion

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Posted 06 June 2007 - 01:44 PM

My advise would be to get a good lawyer that specializes in disabilities. Good luck on your appeal. From what I hear, most people are denied on the first try. Sometimes it takes two or three appeals. Hope you don't have to wait that long!

Sherion

#3 Sweet

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Posted 06 June 2007 - 02:22 PM

Sorry to hear it was not approved. It is not uncommon to be denied the first go around. Do not give up. I do agree with Sherion that an attorney who specializes in disabilities is the way to go.

I am gathering info at this point in my life to file as well, but I'm not quite ready to do so.

Don't give up!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#4 peanut

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Posted 06 June 2007 - 02:24 PM

I'm glad I'm not the only one who is compiling an SSI file. I have a phone meeting next month.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#5 Clementine

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Posted 06 June 2007 - 02:43 PM

Do you have a copy of the disability form your dr. completed? My Dr. painted a very severe picture on mined and I researched the codes he used and the codes were of poor outlook. I also had 3 doctors complete mine, not just one. I had my primary care physician, pulmonologist and Rheumatologist complete mine. The two specialists worked together at the same hospital so they knew my case. Also, does it help if you see a scleroderma expert to have them fill out the forms? My Dr. told me I would get it for sure, due to my severe interstital lung disease. Are any of your organs damaged to the level of severe?

Although my disability is through a private insurer, I still had to go through the steps with social security. Maybe it's easier my way.

I hope you get what you want...good luck sweetie.
Jen

#6 JG07

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Posted 07 June 2007 - 06:59 AM

Thanks for all the great advice - I am going to appeal - and prob get denied again - then have to get an atty - Unfortunately - I guess the system has been abused .

#7 nan

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Posted 07 June 2007 - 12:54 PM

Definitely appeal! I was denied the first time. I appealed and I got it the second time. When I applied I hadn't even been diagnosed with scleroderma yet. I had Raynaud's, Fibromyalgia, Sjogren's, GERD, watermelon stomach, ostheoarthritis, and one hand that was quite smaller than the other due to surgery. My primary care physician thinks I got it because of my hand. Jennifer is right about the doctor's wording. My primary care physician was young. She didn't word it well. I was a school teacher. I got denied by the Virginia Retirement system also. When my primary care physician appealed VRS they set it up for me to be examined by one of their physicians. He wrote 10 pages about me back and front. My husband said at that point if I didn't get it I never would. I got VRS and then after that Social Security approved me also.
Hang in there! I am surprised you were denied because I thought the Sjogren's foundation got something passed so it was easier to get disability. Plus, you have a lot of health issues going on that don't allow you to work.
I send good vibes your way! :D
Nan

#8 Clementine

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Posted 07 June 2007 - 02:06 PM

My doctor used number codes on my disability form and I looked them up and they were poor prognosis codes.
Ugh.

Jennifer

#9 relicmom1

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Posted 07 June 2007 - 06:36 PM

DEFINATELY GET A GOOD LAWYER!!!!! and keep after it. It took me from June 2004 until Jan. 2006 to win benefits. I was turned down at every appeal UNTIL I had my first "hearing" before an administrative judge. I was fortunate that he did his homework on this disease befoe my hearing. I am positive my lawyer had a lot to do with that in sending in things in preparation for the hearing. I was told by some people (not SSA) that if you are age 50 or younger you are automatically denied repeatedly because they feel that anyone in that catagory can't have a disability severe enough to qualify. Now, the good news is that once you are awarded benefits, they have to pay you back benefits (but they don't pay interest) You have to be disabled for 6 months before you are eligible for benefits, so in my case , I stopped working in Feb 2004, so they paid me for for Sept 2004 until March 2006 in one lump sum. The lawyer's fee is withheld from your lump sum and paid directly to them. If you have minor children at home, they are also eligible for benefits (same lump sum rule, etc) and they remain eligible for benefits until they turn 18 or if they are still in high school and over 18, they continue benefits until they graduate high school. After you are awarded benefits, you then apply for them, but it's just a matter of the paper work. Get a good lawyer and keep at it!!!
Peace :)
Barbara aka relicmom1

#10 MaryFanPhilly

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Posted 08 June 2007 - 12:30 AM

Don't give up, and keep on documenting, documenting and documenting some more. I was approved a year ago, first time around. And I was 44 years old, so I don't think that over 50 rule is hard and fast. What I think was the big thing for me was the arthritis; I saw an occupational therapist who took a lot of measurements of my range of motion, which was and is very poor. My hands are curling and I have no strength at all. The Raynaud's is another thing because I live on the East Coast and simply cannot leave the house when the weather is cold. Or hot-- air conditioning is just as bad on me if not worse. My doctors were all on board so make sure you have their support. I did not use a lawyer, but would have if I had been denied. Good luck and keep your chin up!
Diffuse sclero; diabetes; hypertension; GERD with Barrett's

#11 WestCoast1

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Posted 08 June 2007 - 04:24 AM

Hello there,

I think that you received some great advice and encouragement. I also agree that you should pursue this with an lawyer that specializes. I have also found that if you can join a group in your area that deals with disabilities, you will meet others that can recommend you to a good lawyer or maybe even other possibilities that may benefit your situation.
*WestCoast*

********

#12 JG07

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Posted 11 June 2007 - 03:03 PM

I am going to see a lawyer on Wednesday. Everyone says I should appeal on my own, but given the odds it will take forever. I am sure this will take at least another 6 months before its over.

#13 nan

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Posted 11 June 2007 - 04:04 PM

That sounds good!
Nan

#14 JG07

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Posted 14 June 2007 - 09:43 AM

I went to see an atty yesterday - and she could not believe I was turned down. She is filing the reconsideration papers for me free of charge and if they turn me down again, she will formally take my case. Although she is confident that it won't go any further, but who knows what will happen.

#15 peanut

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Posted 14 June 2007 - 12:11 PM

Wow that's great. I've just started the process and reading all this makes me nervous. I think I'm going to try my first time without a lawyer... and if I get denied hopefully I can find a lawyer like yours.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...