Posted 06 June 2007 - 07:58 PM
I feel that Lunesta was the trigger for my disease. This is obviously a personal observation and can't be proved one way or the other. I have read that there are known triggers for Scleroderma. I was wondering if anyone else tried Lunesta or Ambien prior to first symptoms of if you think something else was a trigger?
Posted 09 June 2007 - 01:47 AM
I have not heard of Lunesta causing scleroderma but isn't it well documented about silica and other substances? so, who knows? Maybe for you this was the trigger. For me, and I know it without doubt it was being septic after surgery in 1988. I had a FANA in 12 of 1988 which was negative (during sepsis) - in February 1989 had my first positive FANA. So, I firmly believe in scleroderma being 'triggered'. Boy has it been a ride since.
Wishing you well.
Posted 09 June 2007 - 02:18 AM
Posted 09 June 2007 - 03:29 AM
I spent a lot of time trying to figure out what I did to cause my illness. I am content now with the idea that there was a combination of factors that became the spark or trigger... mostly it's just chance and the way I was programmed.
Later I read that this is a typical stage for most traumatic events - whether chronic illness, cancer, accident, attack, etc.
It may be different for the type of sclero... I have diffuse
Posted 09 June 2007 - 04:37 AM
My husband and I both swear that it was too much Kenelog (steroid injections) that I received for my neck and back pain. I had injections every week for a month and a half. After the total body swelling went down a year later (2006) I still had a patch of skin on my left forearm that refused to go back to normal. It spread from there. I was treated for water retention for 6-8 months and finally sent to a rheumatologist and was diagnosed Jan. 4, 2007 with a very fast aggresive form of diffuse sclero. I'm sure all of my doctors would argue with this, but I have a feeling that it was too much kenalog too fast!
Keeping you in my thoughts. -TJ
Posted 09 June 2007 - 10:02 AM
I have never heard of Lunesta being responsible for scleroderma. There are so many varying factors which you will see when you check out this link from the ISN on Causes of Scleroderma.
I hope this will help you.
Posted 09 June 2007 - 12:25 PM
With lupus and sclero, I've found that I react severely to meds now, although you could have given me d-con years ago with no more than a burp afterwards. It could be that the sclero was already there, and your reaction to Lunesta was due to that. There was a post quite a while back about "triggers," and I don't remember off-hand if it was Americanmike that started it, but a lot of us seemed to have either numerous infections and surgeries for years before the sclero turned up. By any chance is that part of your history too? Not to say that's the cause, but just curious.
Best wishes to you,
Posted 09 June 2007 - 01:01 PM
Posted 09 June 2007 - 05:39 PM
dx Jan 2006
Posted 10 June 2007 - 01:17 AM
I remember as a little girl always being sick with one thing or another. I had strep throat umpteen times until my tonsils were removed when I was 6/ When I was a little older I had constant urinary tract infections (UTIs) and then kidney infections with mono twice in high school. Not sure what my trigger was, but I have been on Ambien for about 4 years now and I don't think it has progressed my disease.
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Posted 10 June 2007 - 02:20 AM
Posted 11 June 2007 - 05:49 PM
Posted 11 June 2007 - 06:30 PM
Posted 12 June 2007 - 05:36 PM
Posted 14 June 2007 - 08:27 AM
Posted 20 June 2007 - 08:10 PM
Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive
a little bent and broken and almost beyond repair!
Posted 22 June 2007 - 10:48 PM
Extremely WEIRD, as this seems to be a "womens' disease" with the stats being only 1 in every 7 patients with Scleroderma being male. I always tease him "What were you guys smoking behind the school, hoping you wouldn't get caught??" Haven't found any evidence of anything, but I'm wondering about "environmental" and combined with the luck (or bad luck as it seems) of their genetic pools.
Normal PFT(July 06), ECG(Nov/06)