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Cold Hands


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35 replies to this topic

#21 epasen

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Posted 15 June 2007 - 07:16 PM

I think this might be getting worse, cause right now I'm dealing with a lots of stress, and it feels like my fingers and toes are getting more colder more often. I should probably see a doctor very soon, but then I would have to meet new doctor and that scares me: I want somebody who knows me and knows what to do whit me.

Well I have to hurry up for a family event and we're gonna be late soon.

Thank you so much for existing!

#22 Michelle2

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Posted 19 June 2007 - 11:02 AM

Sam-

I find that putting my hands and feet in warm water helps me the best too. Mine Raynauds flare up at the slightest change in weather. It's sooo frustrating but I've learned to carry gloves with me everywhere I go. Those little packs that warm up work well too when your out and about. B)
Take care and stay warm,

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#23 Joe

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Posted 19 June 2007 - 06:36 PM

I have a parafin wax machine. I just put my hands in the wax for about 60 seconds and lie down for about 5 minutes and the warmth just bakes deep into my hands. The releif is so awesome I cannot express how much it helps me. It keeps your skin softer (as much as it can be) and it did help with the itching somewhat. If the cold gives you constant pain, this will give you temporary bliss. My rheumatologist advised me about it initially. Hope this helps...

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#24 Guest_Ruffin_*

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Posted 20 June 2007 - 02:55 AM

Hi! I have Raynauds really bad too. I get ulcers on my finger tips. My feet get white, blue etc. too but no ulcers there. I use toe warmers and wool socks at work (I work in the operating room at a hospital). I also wear sweaters a lot...even in the summer I carry one with me (I live in Tennessee). At work, I use a hand muff (it straps around the waist like football players wear) and I put the air activated hand warmer inside it(lasts 12 hours!!). I also take viagra which is expensive (insurance won't pay for it) but it helps SO MUCH. I have tried the nitro paste and MANY other medications but the viagra is the only thing that helps as far as medicines go. I also carry the hand warmers in my purse just in case I need one while I'm away from home. I use microwaveable rice/bean mitts and electric blankets in the winter. The warm water trick is the most effective but I can't always get to a sink and I don't want to stand there all day long with my hands in the water! I get white hands with anything less than about 75F and a cool breeze!! I think I should just move to the beach where it is always warm!! Hope this helps.

Annie

#25 Wendy

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Posted 20 June 2007 - 07:50 PM

Hi,
My specialist told me the Raynauds often gets somewhat less troublesome over time as the sclero develops and that seems to be the case for me. So at least you may not have to put up with it being so bad for always. I find keeping my body warm, not just my hands, is really important in controlling it.
I also have problems with my nose which really aches when it goes numb. I jokingly say I am going to wear a nose cover! Does anyone else have this problem?
Regards, Wendy

#26 afii

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Posted 21 June 2007 - 09:41 AM

I haven't heard about these battery operated gloves in my country. :/ Sounds like they are really good. Usually I wear two pairs of gloves (my grandmother knits them for me) in the winter. A month ago my doctor prescribed me a new medicine - Plendil and it seems very good - I can feel how my hands and legs are getting warmer. :D However because of that medicine my head hurts almost everyday.
If they are very cold and hurt I put my hands in really, really hot water.

#27 Sheryl

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Posted 21 June 2007 - 11:42 AM

Really hot water is very bad for your hands and fingers. You are suppose to use slightly warmer than luke warm and slowly warm your hands. I know the hot feels better but, it is damaging. This is what I have always been told. Sure hope your hands get a break from the Reynaulds. Sheryl
Strength and Warmth,
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#28 jefa

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Posted 22 June 2007 - 08:10 PM

Yes, Wendy. My nose and ears get very cold. In fact I have a growth or something on the tip of my nose which I wonder if it is caused by Raynaud's. My general practitioner is referring me to a dermatologist to check it out.

Hi Afii. Plendil is a calcium channel blocker. Sorry to hear it is giving you headaches. Have you shared that with your doctor? Nice to hear from you again.

You are right, Sheryl -- it is best to warm them gradually in warm water.
Warm wishes,
Jefa

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#29 WestCoast1

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Posted 23 June 2007 - 05:49 PM

Hey there Wendy,
Thats funny that you mentioned that because all winter long I would joke about inventing an ear-muff/nose warmer. :blink: I can just imagine how silly that would look, but who cares when your nose is so cold that it hurts right?!

I think that I have read that the nose, toes and fingers can all be effected by Raynauds.
*WestCoast*

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#30 epasen

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Posted 23 June 2007 - 08:57 PM

Wendy, I've noticed my nose getting very cold sometimes! I think it's just funny because it's not getting painfull (yet). d: It just feels funny, but don't know how it's going to turn out in the future.

#31 bio.teach2

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Posted 06 August 2007 - 04:35 AM

Just in case you are unaware...these arterial spasms that trigger our Raynaud's symptoms are made MUCH worse by vasoconstrictors, so avoiding caffeine and nicotine and keeping warm rate among the first stpes in diminishing your symptoms.

Good luck and keep warm!
Laurie

#32 luvbnmom3

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Posted 17 August 2007 - 02:43 AM

I didn't have time to read all the responses so I apologize if some of my info is a repeat, but I have Raynauds as well. I get a handicap plackard in the winter months, I use many different heating tools like microwavable things, heat packets for toes, feet, & hands that you buy at a sporting goods store, hunters use them. You peel the tape off & that activates the heat. I put them on the balls of my feet & toes when I go out in the winter & in my gloves. I have problems in the summer as well, still use the heating blanket etc.

I believe that this is how it goes in regards to raynauds attacks & damage done, & I may be wrong, but a raynaud's attack means a lack of oxygen in that area, your body is made of cells, cells need oxygen to function & survive. When the cells in the affected area are lacking in oxygen, damage, even slight damage, can occur. The more attacks there are & the longer in duration they are, the more times those cells go with out oxygen & the longer they go without oxygen & the more damage is done. The more damage is done, the more suseptable they are to raynauds attacks that are longer in duration & it's kind of a viscius cycle.

Again, I may be wrong on this but from what I've learned in Biology & rad about Raynaud's.... I think that's sort of how it goes. So it's important to protect your body as much as possible & keep attacks & duration of attacks to a minimum.

Also, in regards to warming them, when extremities are warmed up too quickly damage gets done & I am pretty sure that that is how chilblains occur. It's important to warm up slowly in warm water. I admit that I have been guilty of breaking this rule though.

#33 epasen

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Posted 17 August 2007 - 07:06 AM

Yeah, my nose's getting very cold sometimes.. But it really doesn't bother me that much, so I don't do anything for it.

I've taken new medication for Raynauds more than a week now, I think these bad side effects are getting not-so-noticable, which is good thing. But I don't know if I should continue taking these, cause they are still making me tired and my mouth dry etc. Well I'll let the Finnish cold wind to show me if I need them or not.

#34 janey

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Posted 17 August 2007 - 05:18 PM

During cold weather I wear a turtle (I think it's called) around my neck. When I go outside, I can pull it over my mouth and nose, still keeping my neck warm. I love it!

Also, have you checked the "Warm Me Up" products? Warm Me Up is a donor to ISN for scleroderma research and support. I understand the products are great!

Big Hugs,
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#35 barefut

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Posted 17 August 2007 - 10:20 PM

Something to think about........

When I'm not sleeping in my recliner, I tend to curl my hands up under me at night and will wake up with both hands asleep. Then I worry about my Raynaud's. So I started sleeping with my left wrist brace on and it helps a lot. I need to get a righty now.

B

#36 peanut

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Posted 17 August 2007 - 11:52 PM

I've had Raynauds in my fingers forever it seems. About a month ago my toes became frozen, which is funny because it's 110+ outside. Even in the sun they're still toe-popcicles. So I started applying the nitro bid cream to my toes as well as my fingers and they're warming up thankfully. Sometimes I don't have the cream with me so I have my husband sit on my feet. His bum warms them right up.

peanut

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