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Frustrated With Insurance!

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9 replies to this topic

#1 WestCoast1


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Posted 08 June 2007 - 04:19 AM

I need to vent about my Iron Infusion apt.!!!

Yesterday, I went in for the infusion, and the doctor finally comes in the room for a pre-infusion visit....He says "yesterday your insurance called and said that they won't cover your infusion!". SO....I have already paid for my co-pay, and I wait for the doctor, only to be told that I can't get this Infusion! I still feel yucky and was really hoping that the infusion would help out with energy and dizzyness.

I am so dissapointed in the insurance co. and with the doctor for NOT calling me the day before to say that I don't need to come in.

Whats next??? What other medical procedures will they choose to deny? Am I going about this all wrong?

There I said it....I know that all of you have been given the run-a-round a time or two before, so thanks for understanding. :mellow:


#2 jefa


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Posted 08 June 2007 - 06:38 AM

Oh, Sweetie. I know you must be completely frustrated by this. What was the reason they gave you for not being able to do the infusion -- was it just because the insurance wouldn't pay? There is no good excuse they couldn't have called you, but that has happened to me before with appointments. I have taken time off work and travelled an hour by bus only to find out that my appointment had been rescheduled. I had on file to always call me at work, but they had called my home.

I don't think you are doing anything wrong, but I would stand up for your rights, demand answers, if I were you.
Warm wishes,

Carrie Maddoux
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#3 nan


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Posted 08 June 2007 - 06:51 AM

I am so sorry that that happened to you. I don't understand why your insurance wouldn't cover it. It would have been nice for the doctor's office to have let you know so you didn't have to go in..... I would call the insurance company and get them to give you reasons why they wouldn't cover it.
I send good thoughts your way.

#4 Shelley Ensz

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Posted 08 June 2007 - 11:11 AM

Hi Erin,

I'm sorry you couldn't get your infusion. It sure sounds like you have an interesting insurance company. I hope something works out so that you feel a little bit better soon.
Warm Hugs,

Shelley Ensz
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#5 janey


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Posted 08 June 2007 - 11:19 AM

Well that's a real bummer!!!! I know you were really looking forward to that kick you need right now.

The same thing has happened to me before so now, I always call the day before to make sure the approval came through. I hate going to the clinic for nothing. It's not like we don't already spend half our lives there.

Big Hugs,

#6 WestCoast1


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Posted 08 June 2007 - 04:09 PM

Oh girls....Thanks for the hugs!!! It just makes me smile to know that someone else understands, and cares.

Nan, I took your advice and called the doctors office asking them all about it, and I have to wait about 2 weeks for the paper work (on their end), to go through. Then I can request my money back and dispute the "appointment" that I will have to pay for.

Shelley, you are right, this year I picked the wrong insurance plan. None of my doctors can believe the hoops that I have to jump through to be seen and have it covered. I have learned my lesson, and I won't do it again next year if at all possible.

Janey, that is so true...it feels like we do spend half our lives at the doctor's. :huh:

Jefa, I also called the insurance today and they said that since I have never taken the Iron pills that I could not have the Infusion because it is such an expensive drug...I should have tried "other" methods first. So through another hoop I jump!!!

You all are the BEST....thanks for cheering me up!


#7 emmie


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Posted 08 June 2007 - 05:48 PM

Hi Erin,

I totally understand. I got the call from my doctor yesterday that the IVIg infusions that I need to try to get me into a remission from the Hashimoto's encephalopathy (neurological complication from the autoimmune thyroiditis--very rare so don't get scared anyone!) had been denied by our new insurance carrier.

This is the same problem we had with the last insurance company. So once again we start the appeal process. In the meantime, I don't get the treatment I need.

Have you tried the oral iron pills before? Bad luck with them? It is so infuriating that insurance companies can tie up our health care for so long. Good luck with your situation and sorry you have to feel crummy for a while longer. Not to mention 5 thumbs down to your doctor's office for not notifying you!

xoxo emmie

#8 LisaBulman


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Posted 10 June 2007 - 01:26 AM

Hi Erin,
If your dr ordered the iron infusion for you he should know what ins you have and if they will pay. It is his office that is responsible for getting the approval for the infusion. There is paperwork they can file to fight on your behalf to get them covered. If your iron is that low and the pills aren't going to work becauseit is so low, they need to fight for you. Believe me I have had my run around with insurance, not only for myself but for my daughter. Keep fighting!

Lisa Bulman
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#9 kramer57


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Posted 10 June 2007 - 01:57 AM

Hi Erin,

Good luck trying the iron pills - maybe they'll help you so you don't need the infusions ;) At least it sounds like if they don't work, then the insurance will cover your infusions again... too bad they waited until you were at the office to tell you that! I hope you get some relief soon.

#10 Sweet


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Posted 10 June 2007 - 09:27 AM

Hey Erin,

I'm so sorry your insurance denied this treatment. Can you appeal it and have your doctor write a letter as to why you require it?? A lot of times that helps.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)