Tests How Many.
Posted 08 June 2007 - 04:23 AM
Echocardiogram, Psychologist, Physiotherapist, Respiratory function and Occupational therapist I already feel like a laboratory Rat.
Posted 08 June 2007 - 04:30 AM
I am sorry that you have to go through this and I can't imagine what it is like doing it all in one week.
I feel for you right now. I do believe that your doctors are doing everything neccessary for you. It is really hard to deal with when you feel like a "lab rat", but on the other hand it is much better to have all of the tests now to cover everything.
Hang in there, all of these tests will give you and your doctor answers that they need to treat you in the best way possible.
Posted 08 June 2007 - 11:29 AM
I'm sorry you're going to have to go through a week of testing, but to tell you the truth - it's probably better to get it all over with in a week than drag it out over several months. That's how it was with me. Once a week I was going up for another test or to see another doctor. This lasted about 6 months after diagnosis. I wish I had gotten it all done at once.
You need the baseline from all these tests so IF something starts going wrong in an area, they can determine the level by how you started off. I nice thing is that the majority of these tests are non-invasive and painless. I don't remember any of tests causing pain of any kind. So relax, and remember that it's for the best. The doctors will find out a lot, very quickly.
I'll be thinking of you. When do you go in?
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)
Posted 08 June 2007 - 02:23 PM
Since Gareth was diagnosed last Nov. he has seen the rheumatologist, Cardiac doctor, gastric doctor, and Ear/nose/throat doctor, and Psychiatric doctor.....plus his regular doctor. Sooooooooooooo, you are getting the whole workover....which is good.
Take care and keep us posted.
Take care, Everyone.
Posted 09 June 2007 - 04:42 AM
Good to hear that your doctors are on the ball and not playing around with this. I'm sure we've all felt a part of the "sclero mouse club" at one time or another. Some of us are used to having to wait for tests, so hang in there and know that you're getting great attention and hopefully great results!!
Posted 09 June 2007 - 09:59 AM
That is a lot for one week. However it sounds like your doctor is being very thorough, which will help find out what your baseline is in some areas, etc. In the end it will be good that you had all of this done.
Hang in there!
Posted 10 June 2007 - 01:20 AM
I totally understand! My friend calls me a guinea pig! After it is all done, you will be glad it is all over and hopefully the dr.'s will have what they need to help you.
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)
Posted 10 June 2007 - 02:12 AM
Having lots of tests is "normal" for us I think. Things should settle down, although some tests might lead to more tests or more Dr. visits. As others mentioned, having certain tests is normal when you are first diagnosed, like pulmonary tests - although my rheumatologist wouldn't order one even though I asked. So I'm a little jealous - I actually want a pulmonary function test! And I'm not impressed with my rheumatologist who refused to order one. If I get some health insurance, I'm going to try to switch to a new one.
I've had lots of testing too; EEG, EKG, Echo, EGD, flouroscopy of stomach, lots of stomach & esophagus testing, thyroid tests . But my tests have been spread out over the years, as I"ve developed symptoms one at a time and they didn't figure out the Scleroderma until this year. So this year I had about 20 blood tests and a hand biopsy, and a Chest XRay - It's been a slow year.
Good luck with all the tests, hope they slow down soon and you can have more time for life