Scleroderma Pulmonary Fibrosis
Posted 10 June 2007 - 03:56 PM
Here's my question for the day...Does anyone know if Scleroderma pulmonary fibrosis is any different than primary pulmonary fibrosis?
Posted 10 June 2007 - 06:36 PM
My dad had pulmonary fibrosis and congestive heart failure. I've always believed he had scleroderma, but when I tried to discuss it with his heart dr. the dr just brushed me off, like I didn't know what I was talking about. It's difficult for me to think about what may lie ahead for me, after watching my dad slowly suffocate. I wish I would have really pushed that dr at the time, but you know hindsight is always 20-20. So far, for me, my lungs remain clear, and I know I have a good dr whom I trust and like and I think he is taking good care of me.
Wishing us all better health.
Posted 11 June 2007 - 01:53 AM
That's a good link.....very easy to read and understand. Thanks.
Take care, Everyone.
Posted 11 June 2007 - 05:45 PM
From what I have read, it seems that one of the causes of the PF can be Scleroderma.
Posted 11 June 2007 - 08:44 PM
The word idiopathic means "of unknown cause" This article on Merck Online does a great job of explaining primary or idiopathic pulmorary fibrosis.
An ISN link to this PubMed abstract looks studies outcomes of Pulmonary arterial hypertension related to scleroderma (PAH-Scl) compared with the idiopathic form of PAH (IPAH)
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host
International Scleroderma Network (ISN)
Posted 12 June 2007 - 04:17 PM
Posted 18 June 2007 - 11:22 AM
I had read that it was usually the case that PF in Scleroderma was less severe than Idiopathic PF. Not a doctor of course, but that's what I came across.
Michael In Florida