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#1 Margaret


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Posted 12 June 2007 - 02:23 PM

Hi Everyone,

Is it just me or wishful thinking? Gareth started Plaquenil 10 days ago and I swear there is a difference already. He didn't sleep/nap all weekend like he usually does and is actually turning on the TV and watching again. He still complains of his 'hard stomach' and we're trying to get the ENT doctor lined up with the gastro doctor for another exploratory on his vocal cords, esophagus and colon.

Take care, Everyone.

#2 WestCoast1


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Posted 12 June 2007 - 04:30 PM

Hello Margaret,
I am glad to hear that you see some improvement in Gareth. That is what matters! Over a period of 2 to 3 months you should hopfully see some other signs that he is feeling better.

I think I have said this before, but he is a very lucky guy to have a mom like you! :)


#3 Jordan's Mommy

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Posted 12 June 2007 - 05:56 PM

Hi Margaret,

Jordan started Plaquenil shortly after her 5th birthday, and about 3 months after her initial diagnosis of linear morphea/localized scleroderma. She was on prednisone and naproxen first. Her rheumatologist wanted to start Jordan immediately on methotrexate, but I told her I wasn't ready to go that route so soon. She suggested Plaquenil as a "milder" drug that still has great success. She has been on Plaquenil for about 1 1/2 years now, and there has been no progression of her disease. There never was an issue of tiredness or lethargy, so I don't know if the Plaquenil prevented that before it could set in or not. I have noticed, though, that her hair has thinned out considerably, and she can get very emotional at times. Make sure you get Gareth's eyes checked also!

Take care. You are a STRONG WOMAN and a GREAT MOM!!!


#4 Sweet


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Posted 13 June 2007 - 09:12 AM


I'm so glad to hear about his improvement. Probably not your imagination. Plaquenil has made a HUGE difference in how I feel. Yeah!
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#5 nan


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Posted 13 June 2007 - 01:14 PM

That's great to hear. I just wish his tummy felt better.
Take Care!