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#1 Sharonvandee


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Posted 13 June 2007 - 09:10 PM

I have been having trouble with a wheeze in one lung and breathlessness, after trying different treatments my doctor has placed me on prednisolone to try and help but I have read articles about this not be a good option for people with scleroderma. Has anyone had this drug and if so did it help or make other problems

thank in advanvce
Kindest Regards


Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!

#2 Patty


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Posted 14 June 2007 - 12:45 AM

Hi Sharon,

I have been on Prednisone for the better part of a year now and am now on a teper. I gained a lot of weight from it. I am now tapering so I will know more of what side effects it had on me once I am off all together. I know others have been on it so someone shpuld post soon what they have dealt with on this drug. For me I have dermatomyositis so its hard to say hw at the med did to me or what the DM and sclero did.
Good luck!!


If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#3 Sam


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Posted 14 June 2007 - 03:38 AM

predisone is a good drug its the side effects that isnt so great. I had taken it for a short time for my ulcerative colotis. My dad has been on a low dose of predisone since 1970 something for his lungs. He helps him alot. Sam

#4 whirlway


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Posted 14 June 2007 - 06:52 PM

My 2 cents, for those of us who have taken it, prednisone is the drug we love to hate. It truly can be a miracle drug, but the side effects can be devistating. When I first became really ill, back in the '80's, I was a mess. Couldn't dress myself, bathe by myself, could barely walk, truly thought I was going to die. Finally a dr put me on prednisone, what a difference. I could actually live again.
Down side, I gained over 100 lbs. became Jekyll and Hyde, developed osteoporosis, and other things along the way.
Finally, about 8 years ago, I thought I was going to die again, due to the continued usage of high dose prednisone. I found a different dr, changed meds, now on 2000mg of cellcept, and will always have to take at least 5 mg of prednisone every day due to the fact that my body cannot produce natural prednisone on its own any more.
It's a good drug, taken in moderation and monitored very carefully. I took too much for too long, and I am suffering from it today.

#5 barefut


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Posted 15 June 2007 - 08:49 PM

For me Prednisone is the drug I hate to love (rather than the drug I love to hate)

I am only on 5mg daily and it has helped me a lot. I am afraid to go higher and afraid I will soon find that 5mg isn't doing it fot me anymore as I have already found on some days.....So then what?

By the way....What is the difference between prednisone and prednisolone?


#6 jefa


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Posted 15 June 2007 - 09:35 PM

Prednisolone is the active metabolite of prednisone. Prednisone is metabolized into prednisolone by the liver after you have taken it, so delivery form is the difference.
Warm wishes,

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
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International Scleroderma Network (ISN)

#7 Timo


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Posted 16 June 2007 - 12:16 AM

Hi Sharon,

I have been on Prednisone on and off, and at varying doses for four years now. I am currently on 20mg a day and have been on 50mg a day. The 50mg really knocked me around. I put on a lot of weight, I had nightmares and my mood changes were riduculous. My mum had to speak to the teachers (I was in yr 10 at high school) and tell them to let me just walk out of the room if I was angry and let me go.

I am on a kidney protetor now so that's good. I think my doctor is looking at having me on it for a fair while. I also just had a Bone Density test as prednisone can affect your bones. A friend of mine has been on prednisone for several years for asthma. She is pregnant now and her pelvis is cracking from the weight of the baby and the brittleness of her bones.

However, I swear by prednisone. It is the only thing that works for me. I have been on other drugs and I find prednisone to affect me the least. I am happy on 20mg a day but would not be comfortable going back to 50mg.

I take endep to help me sleep because I find that I have restless sleep on Prednisone but the endep does the trick and I sleep through the night.

I went off the prednisone for a year last year (I tapered down slowly) and I was good for a while but eventually had to go back on it. I always make sure that I talk to my doctor about the benefits and the risks, and you just have to weigh them up for yourself. No one else can tell you whether you should be on this drug or not, not even your doctor. If you feel that the benefits outweigh the risks, which they do for me, then take it. And also remember that this is not a forever choice. You can stop taking it. Slowly, but you can do it.

Just remember that it is your body and you have the ultimate choice about what goes into it.

Good luck
Talk again soon