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Gi Issues


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#1 Margaret

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Posted 17 June 2007 - 02:24 PM

Hi Everyone,

For those of you with gastric/esophageal issues, could you explain the feelings you had when they had to *stretch* your esophagus. I know his esophagus doesn't push the food down and he has to 'wash' it down with liquids. What do they stretch....the esophagus itself or the opening into the stomach? Gareth has been in pain now for over a month with this *hard* stomach feeling after meals. He doesn't complain too much after breakfst....usually Rice Krispies or Cheerios. Lunch and supper is a different story, though. After he eats, he's in his recliner curled up because it's 'hard and hurts'. His stomach emptying was OK....I am assuming this since the GI doctor hasn't called me differently. That is one of the main problems right there....he won't call me, period. I have a call into his primary care physician to find a new GI doctor.....I am half tempted to call Dr Medsger's office, too, and find out who he refers his sclero pts to that have gastric issues.

Thanks everyone........I really appreciate you help.
Margaret

#2 Sharonvandee

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Posted 17 June 2007 - 10:59 PM

Dear Margaret

I suffer from dysphagia which makes swallowing difficult. I had a test done that show that the muscle itself works but is to weak and narrowed from repetitive bouts of reflux and severe vomiting. It feels like all food gets stuck till recently where I actually choke on the food so I have gone to a liquid diet till I have the gastrocope done and then the doctors will look at tightening the sphicter valve and widdening the top of the espohegus.

I hope this sort of answers your question feel free to email me if you want more details
Kindest Regards

Sharon

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!

#3 jefa

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Posted 18 June 2007 - 07:26 PM

Hi, Margaret. I haven't had one, but there is a good description in the Gastrointestinal Involvement part of the ISN Medical Tests page. Click on the link for Esophageal Dilation


Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#4 Margaret

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Posted 19 June 2007 - 01:12 AM

Thanks Jefa. That's a good site for explaining dilation and I hadn't seen it before. You guys seem to come up with sites for just about everything!!! I am not sure that is Gareth's problem.....just that he has complained for a month that his stomch is 'hard.' Some days, the 'hard' is painful but other days it's just 'hard.'

Take care, Everyone.
Margaret

#5 nan

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Posted 19 June 2007 - 11:32 AM

Margaret,
I have had it done. I think they stretch the esophagus and I don't remember it being painful. It was just a little sore. Take care! I wish Gareth could get rid of the hard stomach.
Nan

#6 Sharonvandee

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Posted 20 June 2007 - 03:11 AM

Hey Margaret

I have been thinking about your post for the last couple of days and decide to post a secound reply as I get a terribly hard stomach often after eating mainly in the later part of the day along with the hard stomach, I get terrible pain which has meant a few visit to ER, after a few test they discovered that it was cause by esophogereal spasm, the doctor placed me on ADALAT twice a day which is a blood pressure medication to relax the muscle a little. This has made it more bearable but it is still there. Maybe this is similar to what is happening.

Just thought it was worth mentioning

Sorry Gareth is suffering though I know how bad it can get
Kindest Regards

Sharon

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!

#7 Margaret

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Posted 20 June 2007 - 01:49 PM

<<I get terrible pain which has meant a few visit to ER, after a few test they discovered that it was cause by esophogereal spasm, the doctor placed me on ADALAT twice a day which is a blood pressure medication to relax the muscle a little>>

Hi Sharon~~~

Gareth was put on Isosorbide for esophageal spasms. His doctor wasn't sure he was having them.....we just know that it's painful during/after meals when his food is 'stuck.' This 'hard' stomach is something that has been going on for over a month now and he woke up this morning and fell to the floor because his stomach hurt. I found that out tonight when he went to bed.....he told me 'matter of factly'...."Mom, morning, I fall stomach hurt, 6:02." That's my whole problem....this stupid autism and so little communciation skills!!! I guess he had gotten up and out of bed at 6:02 and, then, fell down on the floor because his stomach hurt so bad. "Thanks for telling me now, Gareth!!!" Before, he complained that it was just hard.....now it's chronic pain all day.
Take care, Everyone.
Margaret