Jump to content


Biomarker for Diffuse Scleroderma skin has been discovered!


Photo

Nan's Argon Plasma Coagulation Yesterday


  • Please log in to reply
7 replies to this topic

#1 nan

nan

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 19 June 2007 - 04:15 AM

I feel very fortunate. When the GI doctor went in yesterday he found that my juicy lesions were 90% healed from the first treatment on May 7th. Yesterday was my last treatment as long as I don't bleed out again. YEAH!!!!!!!!!!!!!!!
I am lucky in that they don't have trouble getting an iv started, but yesterday they were having a hard time finding a pulse and finding my blood pressure. They wrapped me in really warm blankets and put a pediatric cuff on my forearm finally and the pulse thing on my ear. I told them if they let my almost 15 year old back in the OR my blood pressure would definitely rise! :D
Today I am just really sleepy and a bit crampy.
A week from today we're off to Johns Hopkins.
Have a great day!
Nan

#2 WestCoast1

WestCoast1

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 554 posts

Posted 19 June 2007 - 05:00 AM

Yeah Nan, I am glad to hear that things went well. Best of luck today at JH! :)
*WestCoast*

********

#3 Sam

Sam

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 640 posts
  • Location:Delta, Ohio

Posted 19 June 2007 - 06:23 AM

Nan, that is great news, I'm so happy for you. Sam
Sam

#4 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 19 June 2007 - 08:26 AM

Nan,

Great news! You go girl and keep up the good work!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#5 Margaret

Margaret

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,001 posts
  • Location:Pennsylvania

Posted 19 June 2007 - 12:26 PM

<< I told them if they let my almost 15 year old back in the OR my blood pressure would definitely rise! >>

Nan ,

So happy to hear some good news!!! I know what you mean about kids making the blood pressure go up....although it's usually my dear husband's. I just take their actions in stride since I *know* I didn't walk around with no halo on back then!!!

Take care, Everyone.
Margaret

#6 emmie

emmie

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 321 posts

Posted 19 June 2007 - 04:47 PM

Nan,

I'm so happy to hear that you're not "juicy"! You just keep drying up and everyone will be happy. Hope you feel better tomorrow.

xoxo emmie

#7 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 19 June 2007 - 05:19 PM

Nan,
Thanks for sharing such great news!

Big Hugs,
Janey

#8 jefa

jefa

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 20 June 2007 - 04:52 AM

Terrific news, Nan. Glad to hear you are nearly well done instead of medium rare. :)
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)