Posted 31 October 2006 - 10:19 AM
Jan this year I had lab work that came back positive in many of the autoimmune system. I am a diabetic and had been classed as a type 2 as most doctors donâ€™t know the difference. I am now a type LADA and doing well with the diabetes.
I have been on this site since early this year but seldom posted.
I had quiet a run-a-round getting a competent Rheume. A pulmonary doctor was the one to do the test that show autoimmune and told me to see a rheumatologist. I took the labs to one and she looked at them and said â€œI donâ€™t know anything about those testsâ€. She did do 2 tests, which came back positive, but I guess not positive enough to be meanfull. That sounds about as informed as most doctors that treat diabetes. Back to the pulmonary doctor he said get another rheumatologist. It took a couple months but I did see one and think she should be qualified. At least she took the test results from before and ran the tests that the lab had said should be done.
She has not put a diagnosis on it but the note she sent my primary care said scleroderma and/or lupus. I am taking plaquenil and it seems to be helping.
Posted 31 October 2006 - 11:07 AM
Nice to me you. Sorry you are plagued with the aweful disease. I know it can be frustrating not getting clear answers.
Look forward to seeing you post more.
Posted 31 October 2006 - 11:22 AM
I'm glad you posted and told us about yourself. Also sounds like a good thing that you followed your pulmo's suggestion that you find a different rheumatologist... She seems to know her stuff. It's always hard getting started up with new doctors, but hopefully, you've found yourself two who will look out for you!
(BTW, I got diagnosed in 1995, 4 years after I began showing symptoms. I'm not doing too bad for the "shape I'm in" )
Take care of yourself and keep checking in and letting us know how you're doing?
Posted 31 October 2006 - 06:23 PM
I'm sorry for all the health problems you are having as well as the problems in finding a good rheumatologist to get a definitive diagnosis. Hopefully you will get one soon so you can get properly treated. Both Lupus and scleroderma are connective tissue disorders, so the doctors will probably look at your specific symptoms to help narrow it down. So be sure to write all your symptoms down and take them with you to the next appointment.
Please keep us informed on how your appointment goes.
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)
Posted 01 November 2006 - 05:14 AM
And welcome aboard. I hope you given a clear diagnosis soon. Although it can be frustrating not knowing what is going on, you must stay positive so that you don't put stress on yourself. Look on the bright side, you're still alive!!! We all are and that is a blessing within itself.
Lv and peace,
ISN Book P.R. Coordinator for the U.S.
International Scleroderma Network