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#1 kiwimum03


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Posted 25 June 2007 - 11:02 AM

Hi everyone,

I just wanted to drop in and say hi, since I feels like ages since I have been here.

Just been really busy with my 3 little boys and ill husband, and of course trying to keep myself healthy.
I feel like the Plaquenil is finally starting to work, and I am not sure in which way as I still have days with pain and still have days I am tired, but I have STAMINA.........I don't know where it came from, but I haven't had it in years!!!

I also had a mental shift to in regards to being sick and personally having to look after a mentally ill husband, it takes alot out of me and I am quite sure I have been quite depressed for the last 3 years, but I have kind of taken stock of my life and feel like I have more purpose now........it just takes a while to get out of a funk I guess and I think the Plaquenil is helping me to do that.........I just feel a bit better.

I have decided that the next 4 years my goal is to become an Art Therapist. There is only one college here in NZ that you can do a post graduate course and it is actually the Art School I went to when I left high school that that is kind of cool, but my children are not quite at school yet, hence the 5 year plan and I have to take into account my husband and I hope by then his meds a helping a bit more.......there are many factors including my heath too.

I think I was just putting my life on hold while I tried to figure out my illness, but have kind of had the sudden realisation that my life was going to pass me by if it I did that, and I just had to 'factor' it in like I do everything else.......kind of like a 'AHA' moment!!!

yeah, I know I am rambling :)

I am also currently being tested for Cushing's finally, just about to do my 24 hour Urine and also going to see an Neuro for my Nystagmus and Tinnitus and perhaps an MRI.........my general practitioner has finally seen the light and realised SHE has to send me for testing and not hope some other specialist decides to do it ( I think my sudden Lactation kind of spurred her into action).
I am back to the rheumatologist early next month, where I hope he does more bloods as I think they need to be done. Since coming off the Prednisone I have more skin rashes and hyperpigmentation, also my arms are constantly itchy and I have to take an antihistamine.

Sorry this is so long.........thats for all your friendship and support,


#2 Sweet


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Posted 25 June 2007 - 03:49 PM

Oh Irene, it is soooooooo good to hear from you.

Sounds like you have made a huge leap since you last posted. I'm really happy for you that things are starting to come together and purpose is back in your life.

Keep up the good work, and do drop in when you can.
Warm and gentle hugs,

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#3 WestCoast1


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Posted 25 June 2007 - 06:17 PM

Hey there Irene,
It is so great to see you post again. I had no idea that you had so much on your plate right now. You have so much to be proud of! I know how hard it is to live with a mentally ill family member, children and an illness to boot. I am so happy to hear that you have some future goals and dreams that make you happy and excited to keep doing the great job that you are already doing.

Plaquenil can be a great med when used for the appropriate illness. Its great to hear that it is working well for you. It is also a life saver for me!

When you get the chance please let us know how your progress is going.


#4 kiwimum03


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Posted 26 June 2007 - 01:12 AM

Thanks Erin and Pam for your replies,

Life has been hectic lately, and I felt I needed to take a bit more time to myself away from the computer, I am sure everyone does it at some stage.

Erin, its nice to hear from someone who has experience and understanding with the mentally ill. It has been very difficult at times and I don't have alot of support except my mother (bless her), but the way I look at it, if it was me with the mental illness I would want someone who loves me to look after me as best they could and that keeps me going.

My husband was un-diagnosed for about 10yrs which makes him harder to treat, but I feel we are slowly getting there in terms of his medication.

Everyone has their own hill to climb, don't they :)

I will try and check in here more often, big hugs to everyone,


#5 LisaBulman


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Posted 26 June 2007 - 01:53 AM

Hi Irene,
I am so glad you dropped in to let us know how you are. It seems like the plaquenil is doing what it is supposed to even if you don't quite know what that is. It is very difficult to care for yourself when someone else needs you to care for them. Please do not forget about your needs! You are important too and if you are not feeling well then you can't help someone else.

Lisa Bulman
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#6 Rachelle


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Posted 26 June 2007 - 08:44 AM

What a great update!! Our attitude can have so much to do with how we feel. Keep your chin up and go for it!!!

#7 emmie


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Posted 26 June 2007 - 04:18 PM


It was really, really great to hear from you. I'm happy to hear the plaquenil has kicked in for you, but most of all I'm happy for you "aha" moment. They are so liberating, aren't they?

I wish you all the best in all of your endeavors no matter how many years they take! The journey is the best part of all. Keep taking good care of yourself and your family. Pop in when the time is good for you.

xoxo emmie

#8 jefa


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Posted 26 June 2007 - 09:34 PM

I have missed your wee kiwi, Irene - one of my favorite avatars. I will join the others in giving you a big hug. I am glad to see you are keeping such a positive path for yourself in spite of all the difficulties. The job of art therapist sounds extremely rewarding and enriching. I wish you much luck in this. I can remember when I was looking forward to getting my kids all into school so I could do something with my life and I wasn't even sick at the time.

Lisa is right. You must remember to take care of yourself first, so that you can have the energy and spirit to take care of the others.
Warm wishes,

Carrie Maddoux
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#9 kiwimum03


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Posted 30 June 2007 - 10:31 PM

I actually think I did a bit too much lately. Isn't that always the way, you start to feel much better and off you go.............doing normal things!!!! :)

I painted my room with the help of my husband, I couldn't believe it that I felt good enough to do that in two days. Even for a few days after I was tired but okay.

But now..............I am wiped out........just drag me across the floor, muscle aches and fatigue.

Lesson for myself. when feeling good don't go over board!!! Haha, I will learn in time :)

thanks again for the replies, mentally I have alot more stamina, having focus again has really given me a new lease on life.
And of course being able to share with you all is a blessing for me.

I am off the the rheumatologist tomorrow, I haven't seen him in 4 months since I started back on the Plaqquenil, so I will see what he thinks.